Which Nebrulizer for use with TOBI?

[Gammaw]

My CFer has been on TOBI twice now. The prescription for the nebulizer was written at one point when we first used TOBI. But the nebulizer delivered was not a PARI LC PLUS®/PulmoAide. In recent research, I've found repeated statements, including from the makers of TOBI, that the PARI LC PLUS®/PulmoAide Nebulizer was the ONLY nebulizer approved by the FDA for use with TOBI. I have seen lots of threads on this forum indicating that other nebulizers are used too. Which is right? Should I be pushing for a PARI LC PLUS®/PulmoAide? What gives?

 

[Ratatosk]

How long are the treatment times taking? Should take about 20-25 minutes tops to do a vial of tobi. When DS was first prescribed tobi, we didn't realize his brand new Pari Proneb Ultra was faulty. Tobi took 45-50 minutes

Tobi should be done with a machine capable of maintaining 23 psi. I believe the main machines used with the Pari neb cups are Pari Vios (used to proneb ultra), Devilbiss Pulmoaide and Mobilairre (sp).

 

[Gammaw]

It takes about 15 to 20 minutes. At first it would take 40-45 like you. I had the home health company replace the nebulizer and we're down to 15 to 20. We have a Phillips Respironics Inspiration Elite. We do have the Pari cups - that was a long story and a fight, but it's done. They were giving us disposable cups until I figured that one out too.