Hi my name is Herman, I am 30 years old. I was diagnosed at 7 months. I have been in and out of the hospital growing up. I married 5 years ago and have two step kids. I started coughing up small amounts of blood 4 years ago. once or twice it was alot but my dr always got it stopped. A few weeks ago I started agean and was treated with antibiatics and had another ablation. 6 all together and they seem to last 4 to 6 months. Then 4 weeks ago had alot of blood come up. I was put into the hospital and well ended up with the top and middle lobe of my right lung being removed. Me and my wife are tring to fine out as much info as we can. We here about transplants but not alot about people who just had a removial. For some reason my Dr. dose not tell us alot about some things that I wish he would, and dont get me wrong with out him I would not have made it a few weeks ago. He had to do alot of bronks after the surgery.
I see alot of stuff on this site that I never knew and me and my wife have so many questions like do most people see only one Dr or do you see a regular Dr and once or twice a year go to a CF center?
I live in North West Fl and we are thinking of tring to start a CF meeting for people to just be able to get together an talk.
Well thats a little about me... More to come.
I see alot of stuff on this site that I never knew and me and my wife have so many questions like do most people see only one Dr or do you see a regular Dr and once or twice a year go to a CF center?
I live in North West Fl and we are thinking of tring to start a CF meeting for people to just be able to get together an talk.
Well thats a little about me... More to come.