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crazygrl1747
Guest
Needing people whose been on this to tell me about it please 
Whose on Colistin?..Need some info im not familiar with this medicene
Needing people whose been on this to tell me about it please
What would you like to know?
I have been on it for years on an aerosolized formula.
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crazygrl1747
Guest
Well the docs are wanting to start me on it because im havjng bad reactions to tobi lost 5% fev in just 5days of dosing it!..i was pretty upset to cause i worked my but off to get 35% best i been in 15mnths and raised it to that from 29% ..so my question is what do you culture and what did you notice when you first started..an why were you placed in it?..and has it helped you
I am on Colistin, 75mg twice a day (when acutely ill, docs bump it up to 150 twice a day) and have been on it for years as well. TOBI just wasn't doing it's job, so we decided to switch....I think I'm doing better with Colistin. I grow out PA, resistant as well as other bugs (Steno, Staph, and at times Achromobacter X. ) I haven't had too many adverse reactions with the Colistin, except for hoarseness and it is a weird tasting neb.
Jenn 40 WCF
Jenn 40 WCF
I'm using colistin, 2000000 * 2 times a day for 8 months. I like the results. Tobi did not help me at all. After colistin, in the last analysis, decreased the number of the PA - was 10**7, and now has 10**5, hope this is not a bug! Only here immediately after inhalation difficulty breathing- bronzospazm, but after about 30 minutes pass, it can and be patient
I had the same issue with TOBI making me sick! I am on inhaled colistin, 75mg 2x/day on a month on/month off cycle. It's also one of the drugs in the IV cocktail we use when I'm on IVs. The inhaled doesn't give me any side effects; IV can give me numbness of the mouth. We found that we can prevent the numbness if I deliver it via syringe instead of an elastomerric (sp??) ball.