working mom of a cf child

anonymous

New member
I am a mom of a cf child who works full time and would like to talk to other working moms. I have always wanted to be a stay at home mom, but have to work due to benefits. Thankfully I enjoy my job and have a very flexible one, but feel very guilty that I have to put my child in day care. I also find it hard to juggle my days and feel bad when I have to start my child's treatments very early in the morning. I would like to hear how other mom's deal with this...thanks!!!!<img src="i/expressions/heart.gif" border="0"><img src="i/expressions/rose.gif" border="0">
 

dresapp

New member
Well im not a mom but im a cfer and both of my parents worked full time my whole child hood and i turned out fine as did my sister who also has CF. You do what you have to do. I think its more important that you are willing to get up earlier to do you childs treatments and make sure they are getting good care and what they need. There is no need to feel guilty kids adjust. I know i did and im thankful for my parents and all the hard work they did! It gets easier as your child gets older and is in school and can handle their own treatments. Good luck
 

Emily65Roses

New member
Same here. Not a mom. But my mom had me in nursery school when I was.. uhh.. young (can't remember the age lol). I loved it there. Played with the other kids. And I still had mom time. I didn't feel ignored or what have you, I had mom time and kids my age time. It was a good balance. And working is, in the end, necessary and beneficial to your child, so don't feel bad about it. <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

anonymous

New member
Thank you both for your encouragement....she loves the kids she plays with and always has a good time, I just worry about her health! She was much healthier before I had to put her in day care....up until the age of three she was with a babysitter and without any other kids. I LOVE the fact that she is with other kids now, but it is hard because she is getting sick more often. Even though I know that is good for her immune system, I still worry. I guess that is part of being a mom <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

EmilysMom

New member
Emily was with Gramma and cousin Greg until she was 2 and Gramma "went away" suddenly. She didn't quite understand that and how do you explain death to a 2 year old? After gramma died, I tried to find day care for Emily and they all TOTALLY freaked out when I mentioned CF. One actually hung up on me! She went into an early intervention program in our school system and through them I found a WONDERFUL nursery school for her for ther next couple of years. It was the best thing I could have done for her (and me!) I had the opportunity to go back to work and Emily loved being with the other kids. She still sees some of those friends once in a while and when I run into her old teachers,they always ask about her. Don't feel guilty about having a life outside of CF too. It shouldn't run your entire life...it should just be a part of your life that's different than other families (except ours of course...LOL)
 

anonymous

New member
I know the guilt you feel. I have been fortunate enough to stay home with my kids for the last 8 months or so soon after we found out about my 2 year old's CF. Though our circumstances were a little different. My husband carries the benefits and had a job transfer so I had to quit my job anyway. We've endured more debt though and the constant worry about finances takes some of the freedom out of being home. I plan on going back to work because I don't feel my worries about finances is fair to the kids. My son will soon be three and will be out of the young stages where the kids put everything in their mouths, he will understand a little more about washing hands, etc. Besides, he could use some play time with kids his age. We do what we have to do as Mom's and as long as you are getting the treatments in and some good quality Mom time that is what matters. I know it is exhausting! It won't always be so hard though and I think kids really appreciate other kid time too. Just educate the daycare on handwashing etc. Good Luck!

SB
 

anonymous

New member
Hi! I know how you are feeling.

My daughter Kaelie has CF. She is 2 and also in day care. Her father and I live apart and I work full time. It's draining! Much like yourself, I often feel guitly. I often wonder if I am doing the right thing by having my daugher in day care as since she has been in, she has been much sicker. However, day care has given her self esteem and a group of friends. She loves being there! In the morning, all I have to say is "Kaelie, time to go to school and see our friends!" and she runs to the door to put her snow suit on.

Be strong. While I have always dreamed of being a stay at home mom, that is not an option for this family. Bills have to be paid, and if I am not working, how will I afford to look after my daughter?

Kaelie's CF team said that her being in day care is porbably a good thing, even though if may not seem that way as she is often sick. Her doctors said that it will help her build up immunity for when it comes time to go to school.

Stay strong<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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