Destiny4Always
New member
Hi there, some off you may have read my post which i started in the teends section, because my teen is the one i am concerned with but marci suggested i come here incase more people will see it and be able to help.
I will appologise now for any rambling and if i dont make sense, i am so anxious i cant seem to function properly.
My daughter who is now 14, was born 2 weeks premature, was hospitalised at 6 weeks old for a bronchial infection, and again at 6 months for a ghastro virus. I have been questioning her chest sounding different since the day she was born,wondering if she was asthmatic, which they eventually diagnosed a few years ago, inhalers have not made a difference to her coughing, and more recently she has missed so much school due to dizzy spells or shaking spells and feeling faint, along with stomach pain...a pediatritian had a look and after speaking with her twice, but it down to stress related issues. ( which apparently were an issue even at 9/10yrs old)
anyway in nov 2009 she took what we thought was a viral bug, doctor told us to wait, no a/b's but did change her inhaler, 3 weeks later back to him again, he gave her a/bs as she was still coughing badly, and 3 weeks after that gave her a 2nd course of a/bs which brought us to xmas time, she still wasnt right, and coughing, then on xmas even she took really bad, another virus we thought, so waited it out, painkillers etc and taking it easy, spoilt her xmas as she was so very lethargic she spent the whole time in bed, which isnt like her even if ill...she was pastey white and in alot of pain...dr's said it was just from coughing and give it time to clear, eventually i'd had enough waiting and we went back...low and behold she was sent for an xray and it showed she had pneumonia in her right lung, the bottom part of the lung having collapsed and shrivelled up they said, They kept asking if it was possible she had inhaled a peanut...we didnt think so.
They gave her more a/b's stronger this time, and she has now had a weeks worth, she has seen someone at the hospital who took a health history and blood was taken which ive just found out today that it came back ok for anemia, negative for glandular fever, she had inflamation but they couldnt grow cultures from the swabs taken from her throat. ( i have no idea what any of this means whether its good or bad) they doctor asked there was any CF in the family history, there isnt, and up till he mentioned it i would never in a million years have considered it as far as i was aware CF was something u were born with and were diagnosed with it right away. I was so worried i got on here and other sites to have a look at what CF is and what it can do...and i had no idea!! and the bit that made me feel really bad was that most of the symptoms i read off CF are what rhianne has experienced in the past 14 years.
Now i am left with a 6 week wait, which is how long they said to wait and they will send me an appointment to do another xray. the doctors dont seem to be very forthcoming on telling us everything is ok, and even today i felt when he asked " WHAT DID THEY TELL U AT THE HOSPITAL" it was because he didnt wanat to mention stuff incase we hadnt been told. so of course i get even more worried.
Is this a typical case off how folk find out in later life? should i wait the 6 weeks,(which i dont think i can - i am so worried) i just want to know one way or the other...am i just jumping the gun and getting overly worried for nothing? or should i be taking charge and telling them i want something done sooner which can tell me one way or another if this is CF. I dont want them to think i am just an overly protective mother, but i feel the sooner we know for the best, the better.
I sit trying not to overthink it, i try to deny the fact its happening and already i feel i have lost touch with reality at the moment, because its continually there in the back off my mind and when i do just get my mind off it, all i need to do is take one look at rhianne my daughter and her pale complexion and the dark circles under her eyes and all my worries and cocerns come flooding back again
I would really appreciate peoples oppinion.
I will appologise now for any rambling and if i dont make sense, i am so anxious i cant seem to function properly.
My daughter who is now 14, was born 2 weeks premature, was hospitalised at 6 weeks old for a bronchial infection, and again at 6 months for a ghastro virus. I have been questioning her chest sounding different since the day she was born,wondering if she was asthmatic, which they eventually diagnosed a few years ago, inhalers have not made a difference to her coughing, and more recently she has missed so much school due to dizzy spells or shaking spells and feeling faint, along with stomach pain...a pediatritian had a look and after speaking with her twice, but it down to stress related issues. ( which apparently were an issue even at 9/10yrs old)
anyway in nov 2009 she took what we thought was a viral bug, doctor told us to wait, no a/b's but did change her inhaler, 3 weeks later back to him again, he gave her a/bs as she was still coughing badly, and 3 weeks after that gave her a 2nd course of a/bs which brought us to xmas time, she still wasnt right, and coughing, then on xmas even she took really bad, another virus we thought, so waited it out, painkillers etc and taking it easy, spoilt her xmas as she was so very lethargic she spent the whole time in bed, which isnt like her even if ill...she was pastey white and in alot of pain...dr's said it was just from coughing and give it time to clear, eventually i'd had enough waiting and we went back...low and behold she was sent for an xray and it showed she had pneumonia in her right lung, the bottom part of the lung having collapsed and shrivelled up they said, They kept asking if it was possible she had inhaled a peanut...we didnt think so.
They gave her more a/b's stronger this time, and she has now had a weeks worth, she has seen someone at the hospital who took a health history and blood was taken which ive just found out today that it came back ok for anemia, negative for glandular fever, she had inflamation but they couldnt grow cultures from the swabs taken from her throat. ( i have no idea what any of this means whether its good or bad) they doctor asked there was any CF in the family history, there isnt, and up till he mentioned it i would never in a million years have considered it as far as i was aware CF was something u were born with and were diagnosed with it right away. I was so worried i got on here and other sites to have a look at what CF is and what it can do...and i had no idea!! and the bit that made me feel really bad was that most of the symptoms i read off CF are what rhianne has experienced in the past 14 years.
Now i am left with a 6 week wait, which is how long they said to wait and they will send me an appointment to do another xray. the doctors dont seem to be very forthcoming on telling us everything is ok, and even today i felt when he asked " WHAT DID THEY TELL U AT THE HOSPITAL" it was because he didnt wanat to mention stuff incase we hadnt been told. so of course i get even more worried.
Is this a typical case off how folk find out in later life? should i wait the 6 weeks,(which i dont think i can - i am so worried) i just want to know one way or the other...am i just jumping the gun and getting overly worried for nothing? or should i be taking charge and telling them i want something done sooner which can tell me one way or another if this is CF. I dont want them to think i am just an overly protective mother, but i feel the sooner we know for the best, the better.
I sit trying not to overthink it, i try to deny the fact its happening and already i feel i have lost touch with reality at the moment, because its continually there in the back off my mind and when i do just get my mind off it, all i need to do is take one look at rhianne my daughter and her pale complexion and the dark circles under her eyes and all my worries and cocerns come flooding back again
I would really appreciate peoples oppinion.