I hope I am posting this in the right spot. I have a 26 month old son who weighs 23 pounds, 10 oz and he is 32 1/5 inches long. He has had very little weight gain or height gain since April. At todays pediatrician appointment the Dr. said that she would like to run some tests to see if he has Cystic Fibrosis or something else (or nothing at all). I have noticed on a few occasions that my son emits an odor similar to that of maple syrup and I was wondering if anyone knew of any connection between that and Cystic Fibrosis. I think she is worried because of my sons size as well as his frequent bowel movements. He goes on average of about 13 times a day. All I know is that right now I am very worried and scared and I am not sure what I should do or think. I read on a few other websites the symptoms of CF and the only ones he seems to have are the ones I indicated above, but I am still scared.
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Worried about my son
- Thread starter anonymous
- Start date
I hope I am posting this in the right spot. I have a 26 month old son who weighs 23 pounds, 10 oz and he is 32 1/5 inches long. He has had very little weight gain or height gain since April. At todays pediatrician appointment the Dr. said that she would like to run some tests to see if he has Cystic Fibrosis or something else (or nothing at all). I have noticed on a few occasions that my son emits an odor similar to that of maple syrup and I was wondering if anyone knew of any connection between that and Cystic Fibrosis. I think she is worried because of my sons size as well as his frequent bowel movements. He goes on average of about 13 times a day. All I know is that right now I am very worried and scared and I am not sure what I should do or think. I read on a few other websites the symptoms of CF and the only ones he seems to have are the ones I indicated above, but I am still scared.
My son was diagnosed at 28 months. He was in the 5% for weight and height. He weighed 24 pounds. His symptoms were small size, huge budda belly, ate huge amounts of food and had about 8 bowels movements per day. He had absolutely no respiratory problems. He had only been on antibiotics once in his first two years for an ear infection. He was diagnosed by a GI doc. We first did the standard Gene test (25 muations) came back with one mutation. Then we had a sweat test which was positive. He is 5 now and doing great. 60% for weight. Hopefully you child does not have CF but I thought I would share our story.
Take Care, Lisa mom to 9 yr no/cf, 5 yr w/cf and 3 week no/cf.
Take Care, Lisa mom to 9 yr no/cf, 5 yr w/cf and 3 week no/cf.
My son was diagnosed at 28 months. He was in the 5% for weight and height. He weighed 24 pounds. His symptoms were small size, huge budda belly, ate huge amounts of food and had about 8 bowels movements per day. He had absolutely no respiratory problems. He had only been on antibiotics once in his first two years for an ear infection. He was diagnosed by a GI doc. We first did the standard Gene test (25 muations) came back with one mutation. Then we had a sweat test which was positive. He is 5 now and doing great. 60% for weight. Hopefully you child does not have CF but I thought I would share our story.
Take Care, Lisa mom to 9 yr no/cf, 5 yr w/cf and 3 week no/cf.
Take Care, Lisa mom to 9 yr no/cf, 5 yr w/cf and 3 week no/cf.
The maply syrup odor is from his skin. Sometimes when I hold him close, I nuzzle his back or his belly and he smells like maple syrup. He is a tiny little guy, but otherwise healthy and he seems ok, he is just small. He has never had a problem with mucus or his lungs or anything like that. No greasy bowel movements and his bowel movements have decreased since we stopped giving him so much juice. He doesn't eat hardly anything. Usually in 1 day he will have maybe 5 goldfish crackers and 1 pickle on his own and the rest of the food he eats we have to make him eat. He has 0 appetite. I am scared, but I know that God knows and that makes me feel better.
The maply syrup odor is from his skin. Sometimes when I hold him close, I nuzzle his back or his belly and he smells like maple syrup. He is a tiny little guy, but otherwise healthy and he seems ok, he is just small. He has never had a problem with mucus or his lungs or anything like that. No greasy bowel movements and his bowel movements have decreased since we stopped giving him so much juice. He doesn't eat hardly anything. Usually in 1 day he will have maybe 5 goldfish crackers and 1 pickle on his own and the rest of the food he eats we have to make him eat. He has 0 appetite. I am scared, but I know that God knows and that makes me feel better.