littlehelen
New member
what are your views on gastrostomys? i think its called that when you get fed over night via a tube into the stomach?
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would anyone be able to help me?
- Thread starter littlehelen
- Start date
What questions do you have, my son has had one for the last five years. He got it when he was five years old. We use it at night to give him extra calories. It is connected to a pump that pumps formula like Two Cal over about seven hours. There are many different ways this can be done. We also used it to take vitamins and other meds that tasted bad. Worked really good for that when he was little. The surgery can be done a few ways too. I will let your doctor explain the procedure. Overall, I like having the ability to push more calories while he is asleep, Massey has complained at times, but that seems to be when the balloon has slightly deflated and fluid is leaking around the buttom. Milk-o-Mag seems to work great for the irritation. Hope this helps, if you have any other questions feel free to ask.
littlehelen
New member
anonymous
thanks that has helped me alot cause im stuck on whether or not to go ahead with it or not even though i will benefit from it think im more worried anout the surgery side of it and whether or not you will be able to see it, as im a very sel contious person. i went through this when i had my port-a-cath but since i have had that im happy with it and glad that i had it done <img src="i/expressions/face-icon-small-smile.gif" border="0">
thanks for the help <img src="i/expressions/face-icon-small-smile.gif" border="0">
helen
thanks that has helped me alot cause im stuck on whether or not to go ahead with it or not even though i will benefit from it think im more worried anout the surgery side of it and whether or not you will be able to see it, as im a very sel contious person. i went through this when i had my port-a-cath but since i have had that im happy with it and glad that i had it done <img src="i/expressions/face-icon-small-smile.gif" border="0">
thanks for the help <img src="i/expressions/face-icon-small-smile.gif" border="0">
helen
Helen,
My boys both have g-tubes (two years now). they are both very private too and have never told anyone. It has helped with their weight especially when they are sick. I'd recommend it.
I have a dumb question for the anon. about the milk of magnesia. My son's tube leaks sometimes too. Do you drink the M.o.m or put it on the irritation?
Thanks Jane
My boys both have g-tubes (two years now). they are both very private too and have never told anyone. It has helped with their weight especially when they are sick. I'd recommend it.
I have a dumb question for the anon. about the milk of magnesia. My son's tube leaks sometimes too. Do you drink the M.o.m or put it on the irritation?
Thanks Jane
dying2live
New member
Helen, when I was 16 I was told I needed one and I had no say in it. I was terrified of the surgery and fought them on it so instead the told me I could learn to put one down my nose every night into my stomach. Each morning I could remove it and be completely normal. As hard of a decision as it was I chose that rout. For six years, six times a week I passed a tiny tube down my nose and into my stomach. I gained and maintained weight but I also had several soar throats and I still had to do it even when sick and had a cold. I don't regret my choice though. I am 29 now and haven't done a tube feeding in eight years. I drink two Scandishakes, once before bed and once first thing in the morning instead. The amount of calories in the two shakes equal the amount of calories I was getting in the tub feeding.
Katie
Katie
Sorry, i don't mean to offend anyone and this is probably a DUMB question but her goes.
I was wondering why? would an adult cf'er need a G-tube. Why can't you just swallow the conent's you need rather than G-tube or even putting a tube in through your nose into your stomach.
Sorry, i just don't understand. Can someone help answer my question.
Thanks Eli(not logged in)
I was wondering why? would an adult cf'er need a G-tube. Why can't you just swallow the conent's you need rather than G-tube or even putting a tube in through your nose into your stomach.
Sorry, i just don't understand. Can someone help answer my question.
Thanks Eli(not logged in)
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>
Sorry, i don't mean to offend anyone and this is probably a DUMB question but her goes.
I was wondering why? would an adult cf'er need a G-tube. Why can't you just swallow the conent's you need rather than G-tube or even putting a tube in through your nose into your stomach.
Sorry, i just don't understand. Can someone help answer my question.
Thanks Eli(not logged in)</end quote></div>
If a CFers appetite isnt there that we know that eating enough calories wont happen. To drink enough of a shake to get enough calories is questionable also. With a G tube is administered over time giving your body a chance to handle it & I am assuming in larger quantities (correct me if I wrong those that have one) of calories then what we could do on our own!
Sorry, i don't mean to offend anyone and this is probably a DUMB question but her goes.
I was wondering why? would an adult cf'er need a G-tube. Why can't you just swallow the conent's you need rather than G-tube or even putting a tube in through your nose into your stomach.
Sorry, i just don't understand. Can someone help answer my question.
Thanks Eli(not logged in)</end quote></div>
If a CFers appetite isnt there that we know that eating enough calories wont happen. To drink enough of a shake to get enough calories is questionable also. With a G tube is administered over time giving your body a chance to handle it & I am assuming in larger quantities (correct me if I wrong those that have one) of calories then what we could do on our own!