You Tube

J

jfarel

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=dQMPe3C1x4U
">http://www.youtube.com/watch?v=dQMPe3C1x4U
</a>
Here's the link. It's incredibly negative to start out, but exciting and thrilling to see this kids recovery 5 years later. Maybe you've already seen it. I thought it was neat. Lots of other cf videos on Youtube anyone is interested.

John
 
J

jfarel

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=dQMPe3C1x4U
">http://www.youtube.com/watch?v=dQMPe3C1x4U
</a>
Here's the link. It's incredibly negative to start out, but exciting and thrilling to see this kids recovery 5 years later. Maybe you've already seen it. I thought it was neat. Lots of other cf videos on Youtube anyone is interested.

John
 
J

jfarel

New member
<a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=dQMPe3C1x4U
">http://www.youtube.com/watch?v=dQMPe3C1x4U
</a>
Here's the link. It's incredibly negative to start out, but exciting and thrilling to see this kids recovery 5 years later. Maybe you've already seen it. I thought it was neat. Lots of other cf videos on Youtube anyone is interested.

John
 
J

Jem

New member
Thank's John for posting this. After watching this video clip I can say that Jesse has already made a difference in my life. I will carry with me his strength, his courage and his very strong conviction to make a difference in this world.<img src="i/expressions/heart.gif" border="0">
 
J

Jem

New member
Thank's John for posting this. After watching this video clip I can say that Jesse has already made a difference in my life. I will carry with me his strength, his courage and his very strong conviction to make a difference in this world.<img src="i/expressions/heart.gif" border="0">
 
J

Jem

New member
Thank's John for posting this. After watching this video clip I can say that Jesse has already made a difference in my life. I will carry with me his strength, his courage and his very strong conviction to make a difference in this world.<img src="i/expressions/heart.gif" border="0">
 
K

kribensis

New member
hey he was touching.
cf is genetic so hes not out of it like he said. and a lung transplant is the way he thinks hes getting out of the disses, i really dont think so. i guess the fact that it went good for him is actually a good thing and maby thats all hes going to have to do. but i really think he still has to talk with his cf docs becuse in the future his cf might get wourse and i really would hate to see that happen to him.
I actually am sorry if i sound a bit harss but then agin i think he should get his facts straight it affects people in all diffrent ways the disses. it affects my lungs and my gi tract which is why i had to go and do a liver transplant and in the future might have to get a lung transplant. and now that we understand this disses many people with cf are looking at a life span of about 40-50 years not the 14 that he said.
 
K

kribensis

New member
hey he was touching.
cf is genetic so hes not out of it like he said. and a lung transplant is the way he thinks hes getting out of the disses, i really dont think so. i guess the fact that it went good for him is actually a good thing and maby thats all hes going to have to do. but i really think he still has to talk with his cf docs becuse in the future his cf might get wourse and i really would hate to see that happen to him.
I actually am sorry if i sound a bit harss but then agin i think he should get his facts straight it affects people in all diffrent ways the disses. it affects my lungs and my gi tract which is why i had to go and do a liver transplant and in the future might have to get a lung transplant. and now that we understand this disses many people with cf are looking at a life span of about 40-50 years not the 14 that he said.
 
K

kribensis

New member
hey he was touching.
cf is genetic so hes not out of it like he said. and a lung transplant is the way he thinks hes getting out of the disses, i really dont think so. i guess the fact that it went good for him is actually a good thing and maby thats all hes going to have to do. but i really think he still has to talk with his cf docs becuse in the future his cf might get wourse and i really would hate to see that happen to him.
I actually am sorry if i sound a bit harss but then agin i think he should get his facts straight it affects people in all diffrent ways the disses. it affects my lungs and my gi tract which is why i had to go and do a liver transplant and in the future might have to get a lung transplant. and now that we understand this disses many people with cf are looking at a life span of about 40-50 years not the 14 that he said.
 
C

chantelfox

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kribensis</b></i>

I actually am sorry if i sound a bit harss but then agin i think he should get his facts straight it affects people in all diffrent ways the disses. it affects my lungs and my gi tract which is why i had to go and do a liver transplant and in the future might have to get a lung transplant. and now that we understand this disses many people with cf are looking at a life span of about 40-50 years not the 14 that he said.</end quote></div>

Umm...to which facts are you referring? He was telling the story about his life and what he went through. Which I am sure many kids with CF still go through at his age. Just because the median survival is 35 years, doesn't by any means mean that all people with CF see that age. By "disses" do you mean diseases???


John~ Thanks for sharing... Very inspiring....I had to fight the tears!
 
C

chantelfox

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kribensis</b></i>

I actually am sorry if i sound a bit harss but then agin i think he should get his facts straight it affects people in all diffrent ways the disses. it affects my lungs and my gi tract which is why i had to go and do a liver transplant and in the future might have to get a lung transplant. and now that we understand this disses many people with cf are looking at a life span of about 40-50 years not the 14 that he said.</end quote></div>

Umm...to which facts are you referring? He was telling the story about his life and what he went through. Which I am sure many kids with CF still go through at his age. Just because the median survival is 35 years, doesn't by any means mean that all people with CF see that age. By "disses" do you mean diseases???


John~ Thanks for sharing... Very inspiring....I had to fight the tears!
 
C

chantelfox

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kribensis</b></i>

I actually am sorry if i sound a bit harss but then agin i think he should get his facts straight it affects people in all diffrent ways the disses. it affects my lungs and my gi tract which is why i had to go and do a liver transplant and in the future might have to get a lung transplant. and now that we understand this disses many people with cf are looking at a life span of about 40-50 years not the 14 that he said.</end quote></div>

Umm...to which facts are you referring? He was telling the story about his life and what he went through. Which I am sure many kids with CF still go through at his age. Just because the median survival is 35 years, doesn't by any means mean that all people with CF see that age. By "disses" do you mean diseases???


John~ Thanks for sharing... Very inspiring....I had to fight the tears!
 
M

mum2kj

New member
He is a real sweety, lol.
What an inspiring young man<img src="i/expressions/face-icon-small-smile.gif" border="0">

As a mum it scares the hell out of me though, I dread to think my daughter will go through all of that pain one day.
But seeing how he has recovered and is getting on with his life is awsome and gives me hope!!
 
M

mum2kj

New member
He is a real sweety, lol.
What an inspiring young man<img src="i/expressions/face-icon-small-smile.gif" border="0">

As a mum it scares the hell out of me though, I dread to think my daughter will go through all of that pain one day.
But seeing how he has recovered and is getting on with his life is awsome and gives me hope!!
 
M

mum2kj

New member
He is a real sweety, lol.
What an inspiring young man<img src="i/expressions/face-icon-small-smile.gif" border="0">

As a mum it scares the hell out of me though, I dread to think my daughter will go through all of that pain one day.
But seeing how he has recovered and is getting on with his life is awsome and gives me hope!!
 
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