young mums 4 year old daughter diagnosed

[mouliness]

<img src="i/expressions/brokenheart.gif" border="0">
Hi im a 25 year old mum who's 4 year old daughter as recently being diagnosed with cf, myself and partner had no idea we were carriers of the gene,I was 7 and 1/2 months pregnant when we found out and it and it killed us after it had time to sink in. Its very stressful at times trying to get my daughter to eat her dinner after she has had her creon and for her to lie there and let uso her physio, This makes use become very emotional and we find things very hard.

So if there is anyone that might have some helpfull hints i open to surgestions.

 

[mouliness]

<img src="i/expressions/brokenheart.gif" border="0">
Hi im a 25 year old mum who's 4 year old daughter as recently being diagnosed with cf, myself and partner had no idea we were carriers of the gene,I was 7 and 1/2 months pregnant when we found out and it and it killed us after it had time to sink in. Its very stressful at times trying to get my daughter to eat her dinner after she has had her creon and for her to lie there and let uso her physio, This makes use become very emotional and we find things very hard.

So if there is anyone that might have some helpfull hints i open to surgestions.

 

[mouliness]

<img src="i/expressions/brokenheart.gif" border="0">
Hi im a 25 year old mum who's 4 year old daughter as recently being diagnosed with cf, myself and partner had no idea we were carriers of the gene,I was 7 and 1/2 months pregnant when we found out and it and it killed us after it had time to sink in. Its very stressful at times trying to get my daughter to eat her dinner after she has had her creon and for her to lie there and let uso her physio, This makes use become very emotional and we find things very hard.

So if there is anyone that might have some helpfull hints i open to surgestions.

 

[Jane]

So many of us here have been through similar heartbreaking times when our kids were diagnosed. It is devistating and not easy dealing day-to-day.

My heart goes out to you and your partner. Be assured you have found a good place here. We're in this together and are here for each other. I'm sure many moms and dads of newly diagnosed kids will have lots of suggestions for you.

I just wanted to say hi and offer some encouragement.

 

[Jane]

So many of us here have been through similar heartbreaking times when our kids were diagnosed. It is devistating and not easy dealing day-to-day.

My heart goes out to you and your partner. Be assured you have found a good place here. We're in this together and are here for each other. I'm sure many moms and dads of newly diagnosed kids will have lots of suggestions for you.

I just wanted to say hi and offer some encouragement.

 

[Jane]

So many of us here have been through similar heartbreaking times when our kids were diagnosed. It is devistating and not easy dealing day-to-day.

My heart goes out to you and your partner. Be assured you have found a good place here. We're in this together and are here for each other. I'm sure many moms and dads of newly diagnosed kids will have lots of suggestions for you.

I just wanted to say hi and offer some encouragement.

 

[mouliness]

Hi i just wanted to say Thank you for your reply, I have to admitt that i do find things very hard even though i dont like to show it, I find it hard to talk to people and the only person I can talk to is my partner and this isn't always enough I hope that this website will help me make new friends that i can talk to with any issues i may have have in the future.

My daughter has the worse form of c.f and doesn't understand properly about her illness and I don't know what to say to her. The doctors have found one gene but have not identified the other yet which is a pain as all we can do is sit and wait.
Since my daughter was diagnoised with c.f it seems to me that she is falling down hill constently since being diagnoised, now she can't walk as far as she use to as she gets out of breath and has to stop so many times to get her breath back that she will refuse to walk and this upsets me so much that i blame myself, its my fault, if only etc is all that goes through my head everyday.

I surpose at some point i will stop thinking like this, I do try to be strong for the sake of my other children as well as her but the comments some people give me in the local shopping centre if we stop and have something to eat and I have to give her creon thats when it gets to me most and i just want to lose it.

anyone that can give me any advice once again I will be very greatful

 

[mouliness]

Hi i just wanted to say Thank you for your reply, I have to admitt that i do find things very hard even though i dont like to show it, I find it hard to talk to people and the only person I can talk to is my partner and this isn't always enough I hope that this website will help me make new friends that i can talk to with any issues i may have have in the future.

My daughter has the worse form of c.f and doesn't understand properly about her illness and I don't know what to say to her. The doctors have found one gene but have not identified the other yet which is a pain as all we can do is sit and wait.
Since my daughter was diagnoised with c.f it seems to me that she is falling down hill constently since being diagnoised, now she can't walk as far as she use to as she gets out of breath and has to stop so many times to get her breath back that she will refuse to walk and this upsets me so much that i blame myself, its my fault, if only etc is all that goes through my head everyday.

I surpose at some point i will stop thinking like this, I do try to be strong for the sake of my other children as well as her but the comments some people give me in the local shopping centre if we stop and have something to eat and I have to give her creon thats when it gets to me most and i just want to lose it.

anyone that can give me any advice once again I will be very greatful

 

[mouliness]

Hi i just wanted to say Thank you for your reply, I have to admitt that i do find things very hard even though i dont like to show it, I find it hard to talk to people and the only person I can talk to is my partner and this isn't always enough I hope that this website will help me make new friends that i can talk to with any issues i may have have in the future.

My daughter has the worse form of c.f and doesn't understand properly about her illness and I don't know what to say to her. The doctors have found one gene but have not identified the other yet which is a pain as all we can do is sit and wait.
Since my daughter was diagnoised with c.f it seems to me that she is falling down hill constently since being diagnoised, now she can't walk as far as she use to as she gets out of breath and has to stop so many times to get her breath back that she will refuse to walk and this upsets me so much that i blame myself, its my fault, if only etc is all that goes through my head everyday.

I surpose at some point i will stop thinking like this, I do try to be strong for the sake of my other children as well as her but the comments some people give me in the local shopping centre if we stop and have something to eat and I have to give her creon thats when it gets to me most and i just want to lose it.

anyone that can give me any advice once again I will be very greatful

 

[JazzysMom]

I have been waiting to respond because I am not exactly sure what you need to know. Lets start with a ?? from me. You were 7 1/2 months pregnant, but she wasnt dx until 4 years old? IF this is true then your daughter is probably wonder why all of a sudden all this stuff is happening. I guess the biggest thing I need to stress is to take one day at a time. I know its emotional/tough when your little one is fighting you on things that are suppose to help her stay healthy. Remember that kids will be kids & when dealing with a CFer we have to do things more often then an average child that they arent impressed with. The more stressed you appear the more she will pick up on that. IF you can do everything for her as tho its normal, routine etc & there is no choice she might not fight as much. Sometimes even a bribe/treat of some sort needs to be used to get the task done. All you can do is your best. In the meantime you have this forum to come to even with the smallest of things to vent, ask or look for!!! Good Luck!

 

[JazzysMom]

I have been waiting to respond because I am not exactly sure what you need to know. Lets start with a ?? from me. You were 7 1/2 months pregnant, but she wasnt dx until 4 years old? IF this is true then your daughter is probably wonder why all of a sudden all this stuff is happening. I guess the biggest thing I need to stress is to take one day at a time. I know its emotional/tough when your little one is fighting you on things that are suppose to help her stay healthy. Remember that kids will be kids & when dealing with a CFer we have to do things more often then an average child that they arent impressed with. The more stressed you appear the more she will pick up on that. IF you can do everything for her as tho its normal, routine etc & there is no choice she might not fight as much. Sometimes even a bribe/treat of some sort needs to be used to get the task done. All you can do is your best. In the meantime you have this forum to come to even with the smallest of things to vent, ask or look for!!! Good Luck!

 

[JazzysMom]

I have been waiting to respond because I am not exactly sure what you need to know. Lets start with a ?? from me. You were 7 1/2 months pregnant, but she wasnt dx until 4 years old? IF this is true then your daughter is probably wonder why all of a sudden all this stuff is happening. I guess the biggest thing I need to stress is to take one day at a time. I know its emotional/tough when your little one is fighting you on things that are suppose to help her stay healthy. Remember that kids will be kids & when dealing with a CFer we have to do things more often then an average child that they arent impressed with. The more stressed you appear the more she will pick up on that. IF you can do everything for her as tho its normal, routine etc & there is no choice she might not fight as much. Sometimes even a bribe/treat of some sort needs to be used to get the task done. All you can do is your best. In the meantime you have this forum to come to even with the smallest of things to vent, ask or look for!!! Good Luck!

 

[mouliness]

sorry i must not of made myself clear enough I was 7 1/2 months pregnant when my four year old daughter got diagnoised with c.f

 

[mouliness]

sorry i must not of made myself clear enough I was 7 1/2 months pregnant when my four year old daughter got diagnoised with c.f

 

[mouliness]

sorry i must not of made myself clear enough I was 7 1/2 months pregnant when my four year old daughter got diagnoised with c.f

 

[mouliness]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mouliness</b></i>

sorry i must not of made myself clear enough I was 7 1/2 months pregnant when my four year old daughter got diagnoised with c.f</end quote></div>

Thank you for your comments they are all greatly appreciated.

 

[mouliness]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mouliness</b></i>

sorry i must not of made myself clear enough I was 7 1/2 months pregnant when my four year old daughter got diagnoised with c.f</end quote></div>

Thank you for your comments they are all greatly appreciated.

 

[mouliness]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mouliness</b></i>

sorry i must not of made myself clear enough I was 7 1/2 months pregnant when my four year old daughter got diagnoised with c.f</end quote></div>

Thank you for your comments they are all greatly appreciated.

 

[becky2]

first of all find someone else to talk to and remember that she is not your only child. My Childrens were 4months and 18 months. They are now 18 and 19.My son which was 4 months was diagnosed first failure to thrive. They done 7 sweat test on him before they got him to sweat. He was on I.V. and would not sweat.

 

[becky2]

first of all find someone else to talk to and remember that she is not your only child. My Childrens were 4months and 18 months. They are now 18 and 19.My son which was 4 months was diagnosed first failure to thrive. They done 7 sweat test on him before they got him to sweat. He was on I.V. and would not sweat.