PlumPerfect
New member
Brandon has always had eating issues and I have worked really hard at keeping his weight up and supplementing due to texture/food aversions. They even had threatened a feeding tube, which i refused, so I have been able to keep his weight up enough to prevent that but it still hasn't been as much as they would prefer. A few weeks ago his came home from a hospitalization and his stools continued to be off, I changed his Creon 1200 from 5 caps., to 6. This helped a lot!
At clinic today I told them that I had to raise it once again and they were very displeased at the amount. apparently who ever calculated the 5 dose was wrong and 6 is far too much. I was told for his weight and age he should be in the 2500-3000 lipase, he was taking 6000! they had discussed pancriacarb, either with the creon or on its own, but last minute decided to try this new zenpep.
I am looking for any feed back on zen pep or pancriacarb and what any one takes besides Creon when Creon didn't work..
At clinic today I told them that I had to raise it once again and they were very displeased at the amount. apparently who ever calculated the 5 dose was wrong and 6 is far too much. I was told for his weight and age he should be in the 2500-3000 lipase, he was taking 6000! they had discussed pancriacarb, either with the creon or on its own, but last minute decided to try this new zenpep.
I am looking for any feed back on zen pep or pancriacarb and what any one takes besides Creon when Creon didn't work..