kaylinsmom
Member
Hi,
It's me again. I am truly very thankful for you guys! Okay, we are going back to Kaylins pulmo on the 14th and I am going to ask him about ambry. She had a genetic test done at mayo and they found 1 mutation. But, as you all know, that just raised red flags for me! She has all of the resp. issues, which have been diagnosed as severe asthma. She has gi issues which we did the fecal test and it came back normal. She is currently just the past 2 days, having diahrea and vomitting with fever. Her poop is oily and it has been teal blue, green and brown with specks of blue before. I guess my question is what else should I ask the doctor about? She has had a sinus ct and a stomach xray. The ct was normal and her stomach picture showed she had "stuff" backed up in her. They put her on miralax and prevacid which def. seemed to help somewhat. This was all done in June. Thanks in advance! Erin
Another thing, she sweats so much at night. Is that normal? Her sweat tests were 30 and 44 so she does taste a little salty.
It's me again. I am truly very thankful for you guys! Okay, we are going back to Kaylins pulmo on the 14th and I am going to ask him about ambry. She had a genetic test done at mayo and they found 1 mutation. But, as you all know, that just raised red flags for me! She has all of the resp. issues, which have been diagnosed as severe asthma. She has gi issues which we did the fecal test and it came back normal. She is currently just the past 2 days, having diahrea and vomitting with fever. Her poop is oily and it has been teal blue, green and brown with specks of blue before. I guess my question is what else should I ask the doctor about? She has had a sinus ct and a stomach xray. The ct was normal and her stomach picture showed she had "stuff" backed up in her. They put her on miralax and prevacid which def. seemed to help somewhat. This was all done in June. Thanks in advance! Erin
Another thing, she sweats so much at night. Is that normal? Her sweat tests were 30 and 44 so she does taste a little salty.