ellarine23
New member
Hello,<br>
<br>
I have been doing some research on CF the
past day or two in response to some news my partner and I received.
I was found to be a carrier of CF, and I knew it ran in my
family, but the surprise was that my boyfriend was also found to be
a carrier. While I am grateful that I have a 3 in 4 chance
everything will be ok, I am finding that I want to be prepared for
the 25% possibility that the child will have CF. I have an
appointment Friday (tomorrow) with a genetics counselor, and they
want me to undergo CVS, chorionic villi sampling. I was
curious if anyone had undergone that, what their experience was
like, and how accurate they found the results to be. I am
really concerned about the risks regarding that procedure
(miscarriage, birth defects, infection, etc).<br>
<br>
Also, I am hoping to get other people's
experience, strength, and hope regarding raising children with CF,
what it is like day in and day out, and what some of the things
I've read about on this website mean, various forms of measuring
health, lung function, etc. Anything anyone has to say would
be welcome. I'm scared stiff, to be honest, and trying to be
realistic and positive, and would be appreciative of some
information on a personal level of what it's really like to raise
children who have CF. Thanks for your time.
<br>
I have been doing some research on CF the
past day or two in response to some news my partner and I received.
I was found to be a carrier of CF, and I knew it ran in my
family, but the surprise was that my boyfriend was also found to be
a carrier. While I am grateful that I have a 3 in 4 chance
everything will be ok, I am finding that I want to be prepared for
the 25% possibility that the child will have CF. I have an
appointment Friday (tomorrow) with a genetics counselor, and they
want me to undergo CVS, chorionic villi sampling. I was
curious if anyone had undergone that, what their experience was
like, and how accurate they found the results to be. I am
really concerned about the risks regarding that procedure
(miscarriage, birth defects, infection, etc).<br>
<br>
Also, I am hoping to get other people's
experience, strength, and hope regarding raising children with CF,
what it is like day in and day out, and what some of the things
I've read about on this website mean, various forms of measuring
health, lung function, etc. Anything anyone has to say would
be welcome. I'm scared stiff, to be honest, and trying to be
realistic and positive, and would be appreciative of some
information on a personal level of what it's really like to raise
children who have CF. Thanks for your time.