lovemyboys
New member
Hi I am a mom of a 12 yr old boy who when he was born he kept acting like he was chocking, so they ran a tube down his throat and i guess they pumped his stomach on the second day. They said it was from him being born face up. When he was 3 months old he started running a temp around 105 and had swollen lymphnodes and the side of his neck. They did a spinal tap and put him in hospital. They really didn't have a diagnosis. This continued about twice a month with high fever and big lyphnodes until he was 5. I changed pediatricians because nothing was ever really done. The new pediatrician jumped on it and ran many test. He had a sweat test done at the local hospital the turned out positive with a number of 102. His x ray at the hospital showed pulmonary hyperinflation. His lab work showed low rbc, low hematocrit, high mchc, low platelets,lymphs and monocytes. he also had a high sed rate of 26. I know this is alot of info but i just want to cover all basis. He also had low chloride and uric acid show up on his blood work.
He never really had much breathing problems, but always had a lot of stomach problems, with loose foul smelling stool, with mucus and alot of gas. She sent him to childrens hospital. they did another sweat test, it was inconclusive and then one that came out negative. They never told me the number. This was in july of 2000. His respiratory culture showed moderate growth of staphyloccus aureus. They told me when they first saw him,even before the test was run that they did not think he was a typical cf patient and did not think he had it. He was in the lower 5th percentile on his weight. His pediatrician had diagnosed him with failure to thrive. He had an elevated iga and igg level. The doctor at the hospital thought it was his tonsils and adenoids. He released him to an ent and they removed them. He started doing really good. No fevers or swollen lyphs. His pediatrician seemed to think that he was o.k. He still continued to have stomach issues, gastro doctor did biopsy and found some signs of past ulcerative areas in his colon.
Many years have passed and He has still continued not to grow,gets sick when he eats, He weighs 63 lbs. and is only 52 in. And he is 12 yrs. old. He is not maturing and is having problems breathing after running. I am just very concerned and have scheduled him an appointment with a new pediatrician today. Should he have another sweat test? He was never genetically tested. I had another son in the year 2000 and he has had many episodes of croup and has been hospitalized with pnemonia. He has passed mucus from his rectum, but they have never tested him.
Any feedback on how to get the doctor to test them for my peace of mind??
He never really had much breathing problems, but always had a lot of stomach problems, with loose foul smelling stool, with mucus and alot of gas. She sent him to childrens hospital. they did another sweat test, it was inconclusive and then one that came out negative. They never told me the number. This was in july of 2000. His respiratory culture showed moderate growth of staphyloccus aureus. They told me when they first saw him,even before the test was run that they did not think he was a typical cf patient and did not think he had it. He was in the lower 5th percentile on his weight. His pediatrician had diagnosed him with failure to thrive. He had an elevated iga and igg level. The doctor at the hospital thought it was his tonsils and adenoids. He released him to an ent and they removed them. He started doing really good. No fevers or swollen lyphs. His pediatrician seemed to think that he was o.k. He still continued to have stomach issues, gastro doctor did biopsy and found some signs of past ulcerative areas in his colon.
Many years have passed and He has still continued not to grow,gets sick when he eats, He weighs 63 lbs. and is only 52 in. And he is 12 yrs. old. He is not maturing and is having problems breathing after running. I am just very concerned and have scheduled him an appointment with a new pediatrician today. Should he have another sweat test? He was never genetically tested. I had another son in the year 2000 and he has had many episodes of croup and has been hospitalized with pnemonia. He has passed mucus from his rectum, but they have never tested him.
Any feedback on how to get the doctor to test them for my peace of mind??