Questions...

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yecca7818

Guest
My boyfriend and I are thinging about maybe getting married and having kids. He has CF, but we don't know if he's sterile or not. If I get pregnant at some point, when would be the absolute earliest that I could have the baby tested for CF? Also, does anyone know how far the medical advances have gotten with the dna testing? Would there be a possibility to fix the chromosomes when the baby is still within the first month of conception? Have we even gotten that advanced yet? Please someone answer. This is really wieghing on my mind!!!
 
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yecca7818

Guest
My boyfriend and I are thinging about maybe getting married and having kids. He has CF, but we don't know if he's sterile or not. If I get pregnant at some point, when would be the absolute earliest that I could have the baby tested for CF? Also, does anyone know how far the medical advances have gotten with the dna testing? Would there be a possibility to fix the chromosomes when the baby is still within the first month of conception? Have we even gotten that advanced yet? Please someone answer. This is really wieghing on my mind!!!
 
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yecca7818

Guest
My boyfriend and I are thinging about maybe getting married and having kids. He has CF, but we don't know if he's sterile or not. If I get pregnant at some point, when would be the absolute earliest that I could have the baby tested for CF? Also, does anyone know how far the medical advances have gotten with the dna testing? Would there be a possibility to fix the chromosomes when the baby is still within the first month of conception? Have we even gotten that advanced yet? Please someone answer. This is really wieghing on my mind!!!
 

Scarlett81

New member
aw He's lucky to have someone who loves him as much as you do.
As far as avoiding cf, or at least knowing if your child would have it, what you should do is have yourself tested now, before you are pregnant to see if you carry the Cf gene. Since he has Cf, he is a carrier of the Cf gene for sure. If he has a child with someone who is also a carrier (even if that person doesn't have cf), then their child would have Cf. If you are not a carrier, then you don't have to worry. All it is, is a simple blood test to see if you are a carrier or not. His Cf doctors can help arrange this for you. Most Cf clinics have genetic counselors and are great at helping couples with all this stuff.
My hubby and I wanted to have a baby, but we had decided that if he was a carrier, we wouldn't do it. I didn't want to bring another person with cf into the world knowingly. That was our personal choice-but it worked for us b/c we were also happy with adopting too. Others have decided to go for pregnancy anyway and take their chances. I don't judge anyone for their choice, that was our choice though. I wouldn't suggest taking your chances and seeing if the baby has cf or not later-get tested before pregnancy and see what you are dealing with. You have to be fully aware of what goes into rasing a child with cf. Its very much a full tine job. Obviously a child with cf is as precious as any other and you won't view it any differently, but I'm just saying you should know fully what you are dealing wiht.
The flip side is, you could get tested and find out you aren't a carrier and then be care free without worry for your whole pregnancy!
Once you conceive and that egg is implanted in your uterus, there are no procedures to fix cf. Thats it. The earliest you can test for Cf in the womb is around 20 weeks of pregnancy I think.
Also-I'm not sure if you are aware of this but I'm assuming you are or you woulnd't be here asking-you do know that the majority of males with cf have fertility issues. The "tubes' that deliver the sperm outside of the body, called Vas Deferens, are missing in men with Cf. Don't know the statistics of how many, but I think its about 90%+. So that means that (again, the majority) of men with Cf can not have children without medical/procedural help. They have to collect the sperm from the man through the testicles and help you conceive through IVF. There are couples that have used this to have children. Julie on this site for one, she's a mother of triplets and her hubby has Cf. I'd talk to her and anyone else who has been through that.
So just know all that you are getting into. You can have children, but this is a long road that requires alot of planning and help with doctors.
Best wishes to you both!
 

Scarlett81

New member
aw He's lucky to have someone who loves him as much as you do.
As far as avoiding cf, or at least knowing if your child would have it, what you should do is have yourself tested now, before you are pregnant to see if you carry the Cf gene. Since he has Cf, he is a carrier of the Cf gene for sure. If he has a child with someone who is also a carrier (even if that person doesn't have cf), then their child would have Cf. If you are not a carrier, then you don't have to worry. All it is, is a simple blood test to see if you are a carrier or not. His Cf doctors can help arrange this for you. Most Cf clinics have genetic counselors and are great at helping couples with all this stuff.
My hubby and I wanted to have a baby, but we had decided that if he was a carrier, we wouldn't do it. I didn't want to bring another person with cf into the world knowingly. That was our personal choice-but it worked for us b/c we were also happy with adopting too. Others have decided to go for pregnancy anyway and take their chances. I don't judge anyone for their choice, that was our choice though. I wouldn't suggest taking your chances and seeing if the baby has cf or not later-get tested before pregnancy and see what you are dealing with. You have to be fully aware of what goes into rasing a child with cf. Its very much a full tine job. Obviously a child with cf is as precious as any other and you won't view it any differently, but I'm just saying you should know fully what you are dealing wiht.
The flip side is, you could get tested and find out you aren't a carrier and then be care free without worry for your whole pregnancy!
Once you conceive and that egg is implanted in your uterus, there are no procedures to fix cf. Thats it. The earliest you can test for Cf in the womb is around 20 weeks of pregnancy I think.
Also-I'm not sure if you are aware of this but I'm assuming you are or you woulnd't be here asking-you do know that the majority of males with cf have fertility issues. The "tubes' that deliver the sperm outside of the body, called Vas Deferens, are missing in men with Cf. Don't know the statistics of how many, but I think its about 90%+. So that means that (again, the majority) of men with Cf can not have children without medical/procedural help. They have to collect the sperm from the man through the testicles and help you conceive through IVF. There are couples that have used this to have children. Julie on this site for one, she's a mother of triplets and her hubby has Cf. I'd talk to her and anyone else who has been through that.
So just know all that you are getting into. You can have children, but this is a long road that requires alot of planning and help with doctors.
Best wishes to you both!
 

Scarlett81

New member
aw He's lucky to have someone who loves him as much as you do.
As far as avoiding cf, or at least knowing if your child would have it, what you should do is have yourself tested now, before you are pregnant to see if you carry the Cf gene. Since he has Cf, he is a carrier of the Cf gene for sure. If he has a child with someone who is also a carrier (even if that person doesn't have cf), then their child would have Cf. If you are not a carrier, then you don't have to worry. All it is, is a simple blood test to see if you are a carrier or not. His Cf doctors can help arrange this for you. Most Cf clinics have genetic counselors and are great at helping couples with all this stuff.
My hubby and I wanted to have a baby, but we had decided that if he was a carrier, we wouldn't do it. I didn't want to bring another person with cf into the world knowingly. That was our personal choice-but it worked for us b/c we were also happy with adopting too. Others have decided to go for pregnancy anyway and take their chances. I don't judge anyone for their choice, that was our choice though. I wouldn't suggest taking your chances and seeing if the baby has cf or not later-get tested before pregnancy and see what you are dealing with. You have to be fully aware of what goes into rasing a child with cf. Its very much a full tine job. Obviously a child with cf is as precious as any other and you won't view it any differently, but I'm just saying you should know fully what you are dealing wiht.
The flip side is, you could get tested and find out you aren't a carrier and then be care free without worry for your whole pregnancy!
Once you conceive and that egg is implanted in your uterus, there are no procedures to fix cf. Thats it. The earliest you can test for Cf in the womb is around 20 weeks of pregnancy I think.
Also-I'm not sure if you are aware of this but I'm assuming you are or you woulnd't be here asking-you do know that the majority of males with cf have fertility issues. The "tubes' that deliver the sperm outside of the body, called Vas Deferens, are missing in men with Cf. Don't know the statistics of how many, but I think its about 90%+. So that means that (again, the majority) of men with Cf can not have children without medical/procedural help. They have to collect the sperm from the man through the testicles and help you conceive through IVF. There are couples that have used this to have children. Julie on this site for one, she's a mother of triplets and her hubby has Cf. I'd talk to her and anyone else who has been through that.
So just know all that you are getting into. You can have children, but this is a long road that requires alot of planning and help with doctors.
Best wishes to you both!
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>yecca7818</b></i>
Would there be a possibility to fix the chromosomes when the baby is still within the first month of conception? Have we even gotten that advanced yet?!</end quote></div>

no, otherwise we wouldn't have CF babies being born every day.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>yecca7818</b></i>
Would there be a possibility to fix the chromosomes when the baby is still within the first month of conception? Have we even gotten that advanced yet?!</end quote></div>

no, otherwise we wouldn't have CF babies being born every day.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>yecca7818</b></i>
Would there be a possibility to fix the chromosomes when the baby is still within the first month of conception? Have we even gotten that advanced yet?!</end quote></div>

no, otherwise we wouldn't have CF babies being born every day.
 

julie

New member
Come on amy, play nice.

Yecca, welcome to the site.

Before you two try getting pregnant naturally (which is like a 2-3% chance, but go for it, practice makes perfect <img src="i/expressions/face-icon-small-smile.gif" border="0">), I would recommend having a genetic test on yourself. The company I would recommend is Ambry genetics, they can test for about 1,300 of the known CF mutations. They are actually a vital part of this board and you can email them directly with your questions, or post on the link about ambry genetics and Steve K. will answer for you. I think they are under adults or families. That way, you will know if you are a carrier and can plan around that.

Are you aware of the probabilities associated with CF based on your carrier/non-carrier status and your boyfriends CF status? If not, I can give you a link with an illustration if you are interested.

As far as testing and repairing the gene inutero or even immediately after birth, NO we aren't there yet. Maybe someday, they are doing more testing on gene therapy now. But not yet.

I'm the one Christian was referring to who has the triplets via IVF, if you have any questions, ask away!
 

julie

New member
Come on amy, play nice.

Yecca, welcome to the site.

Before you two try getting pregnant naturally (which is like a 2-3% chance, but go for it, practice makes perfect <img src="i/expressions/face-icon-small-smile.gif" border="0">), I would recommend having a genetic test on yourself. The company I would recommend is Ambry genetics, they can test for about 1,300 of the known CF mutations. They are actually a vital part of this board and you can email them directly with your questions, or post on the link about ambry genetics and Steve K. will answer for you. I think they are under adults or families. That way, you will know if you are a carrier and can plan around that.

Are you aware of the probabilities associated with CF based on your carrier/non-carrier status and your boyfriends CF status? If not, I can give you a link with an illustration if you are interested.

As far as testing and repairing the gene inutero or even immediately after birth, NO we aren't there yet. Maybe someday, they are doing more testing on gene therapy now. But not yet.

I'm the one Christian was referring to who has the triplets via IVF, if you have any questions, ask away!
 

julie

New member
Come on amy, play nice.

Yecca, welcome to the site.

Before you two try getting pregnant naturally (which is like a 2-3% chance, but go for it, practice makes perfect <img src="i/expressions/face-icon-small-smile.gif" border="0">), I would recommend having a genetic test on yourself. The company I would recommend is Ambry genetics, they can test for about 1,300 of the known CF mutations. They are actually a vital part of this board and you can email them directly with your questions, or post on the link about ambry genetics and Steve K. will answer for you. I think they are under adults or families. That way, you will know if you are a carrier and can plan around that.

Are you aware of the probabilities associated with CF based on your carrier/non-carrier status and your boyfriends CF status? If not, I can give you a link with an illustration if you are interested.

As far as testing and repairing the gene inutero or even immediately after birth, NO we aren't there yet. Maybe someday, they are doing more testing on gene therapy now. But not yet.

I'm the one Christian was referring to who has the triplets via IVF, if you have any questions, ask away!
 
Y

yecca7818

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>yecca7818</b></i>

Would there be a possibility to fix the chromosomes when the baby is still within the first month of conception? Have we even gotten that advanced yet?!</end quote></div>



no, otherwise we wouldn't have CF babies being born every day.</end quote></div>

Yeah, I guess that was a kinda dumb question... I just have a lot of thought running through my head, and thought I'd let some out...
 
Y

yecca7818

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>yecca7818</b></i>

Would there be a possibility to fix the chromosomes when the baby is still within the first month of conception? Have we even gotten that advanced yet?!</end quote></div>



no, otherwise we wouldn't have CF babies being born every day.</end quote></div>

Yeah, I guess that was a kinda dumb question... I just have a lot of thought running through my head, and thought I'd let some out...
 
Y

yecca7818

Guest
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>yecca7818</b></i>

Would there be a possibility to fix the chromosomes when the baby is still within the first month of conception? Have we even gotten that advanced yet?!</end quote></div>



no, otherwise we wouldn't have CF babies being born every day.</end quote></div>

Yeah, I guess that was a kinda dumb question... I just have a lot of thought running through my head, and thought I'd let some out...
 

candi1976

New member
Hey everyone, just wanted to say that this is my second month into trying to conceive and another BIG FAT NEGATIVE <img src="i/expressions/face-icon-small-sad.gif" border="0"> I know it has only been two months but its just frustrating. I have heard of using mucinex instead of robitussin.... does that seem to work better and what kind of regimen do you ladies do?..Are you on it all the time or just around the time you should possibily conceive.... Well talk to you all later , glad all you mommys are doing well....





30F w/cf and type 1 diabetes
on insulin pump since July 06
 

candi1976

New member
Hey everyone, just wanted to say that this is my second month into trying to conceive and another BIG FAT NEGATIVE <img src="i/expressions/face-icon-small-sad.gif" border="0"> I know it has only been two months but its just frustrating. I have heard of using mucinex instead of robitussin.... does that seem to work better and what kind of regimen do you ladies do?..Are you on it all the time or just around the time you should possibily conceive.... Well talk to you all later , glad all you mommys are doing well....





30F w/cf and type 1 diabetes
on insulin pump since July 06
 

candi1976

New member
Hey everyone, just wanted to say that this is my second month into trying to conceive and another BIG FAT NEGATIVE <img src="i/expressions/face-icon-small-sad.gif" border="0"> I know it has only been two months but its just frustrating. I have heard of using mucinex instead of robitussin.... does that seem to work better and what kind of regimen do you ladies do?..Are you on it all the time or just around the time you should possibily conceive.... Well talk to you all later , glad all you mommys are doing well....





30F w/cf and type 1 diabetes
on insulin pump since July 06
 

thefrogprincess

New member
Scarlett: you aren't totally correct. If a person with CF has a child with a carrier they baby will not have CF for sure, although there is a higher chance of it. Plus there is always IVF if both are carriers. There are ways to have non-CF babies.
 

thefrogprincess

New member
Scarlett: you aren't totally correct. If a person with CF has a child with a carrier they baby will not have CF for sure, although there is a higher chance of it. Plus there is always IVF if both are carriers. There are ways to have non-CF babies.
 
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