Treatments w/oxygen

SIcklyhatED

New member
so maybe I'm a total noob and am behind the times, but I've recently discovered doing aerosol treatments hooked up to an oxygen tank <img src="i/expressions/face-icon-small-smile.gif" border="0">. The idea just popped into my head after a hospital stay in December and I think it's fantastic. My dad's been bringing home oxygen tanks for me (he owns a medical supply company, whoot) and it really helps with my treatments.
1. they go by waaaaaaaay faster. My TOBI usually takes 30-40 minutes on a normal machine but with oxygen (I do 10L a minute) it took only 13 today. Dornase takes about 5 minutes, hypertonic anywhere between 2-5, literally.

Anyways, just an idea. Of course maybe some on here already do this. I've just never heard of it. You will need a prescription for the oxygen though but it's worthy the inquiry, trust me.
 

SIcklyhatED

New member
so maybe I'm a total noob and am behind the times, but I've recently discovered doing aerosol treatments hooked up to an oxygen tank <img src="i/expressions/face-icon-small-smile.gif" border="0">. The idea just popped into my head after a hospital stay in December and I think it's fantastic. My dad's been bringing home oxygen tanks for me (he owns a medical supply company, whoot) and it really helps with my treatments.
1. they go by waaaaaaaay faster. My TOBI usually takes 30-40 minutes on a normal machine but with oxygen (I do 10L a minute) it took only 13 today. Dornase takes about 5 minutes, hypertonic anywhere between 2-5, literally.

Anyways, just an idea. Of course maybe some on here already do this. I've just never heard of it. You will need a prescription for the oxygen though but it's worthy the inquiry, trust me.
 

SIcklyhatED

New member
so maybe I'm a total noob and am behind the times, but I've recently discovered doing aerosol treatments hooked up to an oxygen tank <img src="i/expressions/face-icon-small-smile.gif" border="0">. The idea just popped into my head after a hospital stay in December and I think it's fantastic. My dad's been bringing home oxygen tanks for me (he owns a medical supply company, whoot) and it really helps with my treatments.
<br />1. they go by waaaaaaaay faster. My TOBI usually takes 30-40 minutes on a normal machine but with oxygen (I do 10L a minute) it took only 13 today. Dornase takes about 5 minutes, hypertonic anywhere between 2-5, literally.
<br />
<br />Anyways, just an idea. Of course maybe some on here already do this. I've just never heard of it. You will need a prescription for the oxygen though but it's worthy the inquiry, trust me.
 

theLostMiler

New member
Actually 10L is a bit too high, you should only want to do between 6-8 L. (I dont know how correct I am, that is just what 90% of my RT's have told me, I've noticed a couple do it at 10 L but then the med droplets are too fine and dont stick in the lungs you'll just breathe them back out)

I asked my doc about why hospital visits the treatments are so much faster and how I could achieve it at home, and she said its b/c of the high pressure build up in the pipes and there was no way to achieve that at home.


But I used o2 tanks for a couple weeks when both my old pari nebs broke and I was waiting for a replacement. It is faster, but when the home oxygen company found out, they were not happy with me, though they didnt explain why (I didnt know if it was the amount of o2 tanks I was going through or what). And I did ask if I could use my oxygen concentrator but you can't b/c it does not have a high enough psi.

I was going through tanks like toilet paper though b/c even the big ones only last 3 or so hours at 3L.

Unfortunately b/c insurances suck, they wouldnt pay for someone to get o2 tanks just for treatments. The only reason I had o2 tanks was b/c I actually had proof I needed it for exhurtion and sleeping. So I just dont know how feasibile it is, but I would like to know why my home oxygen company acted concerned when I told them what I was doing. But its annoying b/c to me its a good benefit, oxygen during your treatment and no machine that is getting tired, just a regulator... but sadly the life of a cf'er just cant be that simple, easy and "two birds with one stone" like... <img src="i/expressions/face-icon-small-wink.gif" border="0">

I do suggest getting a nebulizer compressor that has a psi adjustor. Something like invacare mobilaire or there is a pulmoaide version as well. Once you can up the psi (I feel like pari products run at like 5--10 psi it feels like lol). But ever since I got my mobilaire my treatments are speedy again, and I love the machine, so durable compared to the pari products I have used, which are great for people like asthma, but for a cf'er just not quite hardy enough.
 

theLostMiler

New member
Actually 10L is a bit too high, you should only want to do between 6-8 L. (I dont know how correct I am, that is just what 90% of my RT's have told me, I've noticed a couple do it at 10 L but then the med droplets are too fine and dont stick in the lungs you'll just breathe them back out)

I asked my doc about why hospital visits the treatments are so much faster and how I could achieve it at home, and she said its b/c of the high pressure build up in the pipes and there was no way to achieve that at home.


But I used o2 tanks for a couple weeks when both my old pari nebs broke and I was waiting for a replacement. It is faster, but when the home oxygen company found out, they were not happy with me, though they didnt explain why (I didnt know if it was the amount of o2 tanks I was going through or what). And I did ask if I could use my oxygen concentrator but you can't b/c it does not have a high enough psi.

I was going through tanks like toilet paper though b/c even the big ones only last 3 or so hours at 3L.

Unfortunately b/c insurances suck, they wouldnt pay for someone to get o2 tanks just for treatments. The only reason I had o2 tanks was b/c I actually had proof I needed it for exhurtion and sleeping. So I just dont know how feasibile it is, but I would like to know why my home oxygen company acted concerned when I told them what I was doing. But its annoying b/c to me its a good benefit, oxygen during your treatment and no machine that is getting tired, just a regulator... but sadly the life of a cf'er just cant be that simple, easy and "two birds with one stone" like... <img src="i/expressions/face-icon-small-wink.gif" border="0">

I do suggest getting a nebulizer compressor that has a psi adjustor. Something like invacare mobilaire or there is a pulmoaide version as well. Once you can up the psi (I feel like pari products run at like 5--10 psi it feels like lol). But ever since I got my mobilaire my treatments are speedy again, and I love the machine, so durable compared to the pari products I have used, which are great for people like asthma, but for a cf'er just not quite hardy enough.
 

theLostMiler

New member
Actually 10L is a bit too high, you should only want to do between 6-8 L. (I dont know how correct I am, that is just what 90% of my RT's have told me, I've noticed a couple do it at 10 L but then the med droplets are too fine and dont stick in the lungs you'll just breathe them back out)
<br />
<br />I asked my doc about why hospital visits the treatments are so much faster and how I could achieve it at home, and she said its b/c of the high pressure build up in the pipes and there was no way to achieve that at home.
<br />
<br />
<br />But I used o2 tanks for a couple weeks when both my old pari nebs broke and I was waiting for a replacement. It is faster, but when the home oxygen company found out, they were not happy with me, though they didnt explain why (I didnt know if it was the amount of o2 tanks I was going through or what). And I did ask if I could use my oxygen concentrator but you can't b/c it does not have a high enough psi.
<br />
<br />I was going through tanks like toilet paper though b/c even the big ones only last 3 or so hours at 3L.
<br />
<br />Unfortunately b/c insurances suck, they wouldnt pay for someone to get o2 tanks just for treatments. The only reason I had o2 tanks was b/c I actually had proof I needed it for exhurtion and sleeping. So I just dont know how feasibile it is, but I would like to know why my home oxygen company acted concerned when I told them what I was doing. But its annoying b/c to me its a good benefit, oxygen during your treatment and no machine that is getting tired, just a regulator... but sadly the life of a cf'er just cant be that simple, easy and "two birds with one stone" like... <img src="i/expressions/face-icon-small-wink.gif" border="0">
<br />
<br />I do suggest getting a nebulizer compressor that has a psi adjustor. Something like invacare mobilaire or there is a pulmoaide version as well. Once you can up the psi (I feel like pari products run at like 5--10 psi it feels like lol). But ever since I got my mobilaire my treatments are speedy again, and I love the machine, so durable compared to the pari products I have used, which are great for people like asthma, but for a cf'er just not quite hardy enough.
<br />
<br />
<br />
 

SIcklyhatED

New member
Hmm... Interesting about 10L being too high. My dad suggested that, as he's an RT. Oh dad... Lol. I've noticed that when I do a longer treatment my room gets kinda foggy; my mom was saying that most of my meds must be floating around my room. Guess I'll have to experiment with this a bit more.
It's unfortunate that it's been difficult for you to get the authorization to use tanks <img src="i/expressions/face-icon-small-sad.gif" border="0">. I remember asking my father why you need a prescription for air, literally, and even he wasn't entirely sure. Im always looking for more efficient ways to do treatments so if anyone has a really awesome neb machine that they know of let me know, for when the day comes my o2 supply gets cut off.
 

SIcklyhatED

New member
Hmm... Interesting about 10L being too high. My dad suggested that, as he's an RT. Oh dad... Lol. I've noticed that when I do a longer treatment my room gets kinda foggy; my mom was saying that most of my meds must be floating around my room. Guess I'll have to experiment with this a bit more.
It's unfortunate that it's been difficult for you to get the authorization to use tanks <img src="i/expressions/face-icon-small-sad.gif" border="0">. I remember asking my father why you need a prescription for air, literally, and even he wasn't entirely sure. Im always looking for more efficient ways to do treatments so if anyone has a really awesome neb machine that they know of let me know, for when the day comes my o2 supply gets cut off.
 

SIcklyhatED

New member
Hmm... Interesting about 10L being too high. My dad suggested that, as he's an RT. Oh dad... Lol. I've noticed that when I do a longer treatment my room gets kinda foggy; my mom was saying that most of my meds must be floating around my room. Guess I'll have to experiment with this a bit more.
<br />It's unfortunate that it's been difficult for you to get the authorization to use tanks <img src="i/expressions/face-icon-small-sad.gif" border="0">. I remember asking my father why you need a prescription for air, literally, and even he wasn't entirely sure. Im always looking for more efficient ways to do treatments so if anyone has a really awesome neb machine that they know of let me know, for when the day comes my o2 supply gets cut off.
 
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