Webcast: Rare lung diseases patient education day --saturday april 22nd

jricci

Super Moderator
There will be a great Webcast on Saturday, April 22, 2017 for the CF community.

Important information will be presented on new treatments for CF that are coming soon, health insurance options, assistance programs and strategies for living with CF.

We hope you can join us for the whole Webcast or join us for 1 hour. Click the link below to register.

REGISTER NOW AT:

https://attendee.gotowebinar.com/register/6993341835513746691

YOU ARE INVITED TO ATTEND A FREE WEB-CAST EVENT

SATURDAY, APRIL 22, 2017



REGISTER NOW AT:
https://attendee.gotowebinar.com/register/6993341835513746691

PROGRAM
9:45-10:00

Welcome from the ATS
– Mr. Courtney White
Welcome from Mt. Sinai Beth Israel
– Patricia Walker, MD and Maria Berdella, MD

10:00-10:35
Update on chILD Syndrome
– Elizabeth K. Fiorino, MD

10:35-11:05
Health Insurance Options in UncertainTimes
– Beth Sufian, JD

11:05-11:35
Update on Primary Ciliary Dyskinesia
– Adam Shapiro, MD

11:35-12:05
Making the Most of your Clinic Visitsand Accessing Help
– Amy Purdy, LMSW

12:05-12:30
Lunch

12:30-1:05
Cystic Fibrosis – New Treatments are Within Reach
– Jennifer Taylor-Cousar, MD, MSCS

1:05-1:35
My Secrets to Success - Living a GreatLife with a Chronic Condition
– Piper Beatty Welsh, JD

1:35-2:00
Questions & Answers

SPEAKERS

ELIZABETH K. FIORINO, MD
Attending Physician
Division of Pulmonary Medicine
Cohen Children’s Medical Center of New York

BETH SUFIAN, JD
Sufian & Passamano, L.L.P.
Director of the CF Legal Information Hotline
Director of the CF Social Security Project

ADAM SHAPIRO, MD
Assistant Professor Pediatric Respirology
Montreal Children’s Hospital
McGill University Health Centre

AMY PURDY, LMSW
Social Worker
Mt. Sinai Beth Israel Cystic Fibrosis Center

JENNIFER TAYLOR-COUSAR, MD, MSCS
Associate Professor of Medicine & Pediatrics
University Colorado
Director of Clinical Research, Adult CF Program
National Jewish Health

PIPER BEATTY WELSH, JD
National Strategic Collaborations Liaison
CF Foundation
 
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