WorriedMommy
New member
Hi everyone...I am new to this website (and to CF) and had some
questions...<br>
<br>
My daughter Sarah is 3 wks old. We were contacted for CF
testing when her newborn screen came back with 1 CF gene. So
far we have done 2 sets of sweat tests. The first sweat test
had results of 6 and 29 (they did 2 tests at the same time to
verify results). Because the results differed dramatically
they wanted to do the sweat test again. They did, this time
with 32 and 33 results. The literature we were given about CF
said that 40-60 was borderline, 60 + was positive for CF. But
the doctor was concerned with the 32/33 results and ordered full
blood DNA tests (to test for all 1000+ CF mutations). Did
anyone else's daughter or son get diagnosed with CF with 30
something sweat test numbers. Am I right to be worried, or is
the doctor just being on the safe side to do additional testing?
If she is diagnosed with CF, does a 30 something number mean
that her CF will be less severe?<br>
<br>
Sarah was born weighing 9 lbs 6 ozs (a lot I know) and she
weighs 10 lbs 6 ozs now...so her weight gain is great. I hear
her kind of wheezing sometimes when she breathes, but this might
just be me being paranoid. Can you have CF and have good
weight gain? Her stools look normal to me...<br>
<br>
I just want to prepare myself if she is showing signs or maybe
relieve some anxiety (from parents who know the
signs/symptoms) since I have 4-6 weeks to wait for the test
results. Sorry for the long post, but I am a worried
mommy.<br>
<br>
Barbara<br>
Mother to 2 (Abigail 3 yrs old, not CF tested///Sarah 3 wks old, CF
carrier/maybe CF)
questions...<br>
<br>
My daughter Sarah is 3 wks old. We were contacted for CF
testing when her newborn screen came back with 1 CF gene. So
far we have done 2 sets of sweat tests. The first sweat test
had results of 6 and 29 (they did 2 tests at the same time to
verify results). Because the results differed dramatically
they wanted to do the sweat test again. They did, this time
with 32 and 33 results. The literature we were given about CF
said that 40-60 was borderline, 60 + was positive for CF. But
the doctor was concerned with the 32/33 results and ordered full
blood DNA tests (to test for all 1000+ CF mutations). Did
anyone else's daughter or son get diagnosed with CF with 30
something sweat test numbers. Am I right to be worried, or is
the doctor just being on the safe side to do additional testing?
If she is diagnosed with CF, does a 30 something number mean
that her CF will be less severe?<br>
<br>
Sarah was born weighing 9 lbs 6 ozs (a lot I know) and she
weighs 10 lbs 6 ozs now...so her weight gain is great. I hear
her kind of wheezing sometimes when she breathes, but this might
just be me being paranoid. Can you have CF and have good
weight gain? Her stools look normal to me...<br>
<br>
I just want to prepare myself if she is showing signs or maybe
relieve some anxiety (from parents who know the
signs/symptoms) since I have 4-6 weeks to wait for the test
results. Sorry for the long post, but I am a worried
mommy.<br>
<br>
Barbara<br>
Mother to 2 (Abigail 3 yrs old, not CF tested///Sarah 3 wks old, CF
carrier/maybe CF)