Recent content by JORDYSMOM

Mel was a good friend to all who came here. She is missed. Stacey

We love you, Jane, and we are still praying for you and your family. <3 Stacey

I wanted to fly out for the day, but I'm still so sick, so I can't. Cheryl and Jeanne please hug Jane for me, and tell her I'm there in spirit. Stacey

My heart broke for Jane when I heard the news. As do most people with CF, Jesse accomplished so much during his time on this earth. http://www.shepherdfuneralhome.com/obituaries.html Jane has been such a comfort to me over the years, and I am praying for peace for her, Bill and Josh. Peter...

I have a friend who just had a tx at Duke, and she had Cepacia. Stacey

Rami will be missed. :( I really hate cf too.

Very happy for you.

Ok, thanks all. I will get him into an ID doc as soon as possible. Stacey

Thanks for all your input, but I just found out this information was given to me by mistake. I posted a new thread asking for information on my son's actual culture results. Stacey

Glad he's doing so well. I miss our chats. Jordan is struggling right now. I'm sad, and scared. Hoping someone on the site can give me some insight.

I originally posted a thread asking about another bacteria that I was told my son had cultured. They got it wrong! Grrrr I know people make mistakes, but it's pretty important to give me the correct culture results. I had them fax it to me, and they even have his middle initial wrong on the...

Thanks Bill. How long ago did you culture this? Did you have symptoms related to it? I'm concerned as to why my son's doctor wants to put him on 3 meds for a year. It seems pretty severe. He didn't name the meds yet. He says he wants to do a repeat culture first, but it seems to me that he...

My son just cultured this bug, and I need any information I can find about the treatment. His doctor says there are three medications that he will need to take for a year to try to eradicate this bacteria. Has anyone cultured it? Has anyone who's cultured it been able to get rid of it? What...

You didn't mention any meds, but I hope you are on something for the reflux. I know that even with meds mine sometimes gets way out of control. Restricting my diet helps some. You may be forced to consider the nissen surgery. I considered it for some time, but decided against it for me. We...

I agree with Jane. This site saved my sanity. I found hope here, and that is just priceless. Stacey