Recent content by Ready2Dance

  1. R

    New Lungs

    That's my transplant date too!! Except I just celebrated 4 years ;). Hope things are going well. What center are you at?
  2. R

    prednisone

    I'm like Amber, only 5mg once a day for me <img src="i/expressions/face-icon-small-smile.gif" border="0"> I'm pretty sure that's the standard dose post transplant. I've heard of some people going off prednisone all together, but Cleveland uses it as one of my immunesuppresant drugs. Anyway...
  3. R

    What can't you do after a transplant?

    Cleveland gave me a rather small list. There's the obvious - no grapefruit, avoid sick people - but there's also some weirder ones. One was no unprocessed cheese or undercooked meats (Had to be at least medium well steak) since you have an increased risk of food born illness. I was told I was...
  4. R

    What can't you do after a transplant?

    Cleveland gave me a rather small list. There's the obvious - no grapefruit, avoid sick people - but there's also some weirder ones. One was no unprocessed cheese or undercooked meats (Had to be at least medium well steak) since you have an increased risk of food born illness. I was told I was...
  5. R

    wondering if i am almost there for a transplant

    With your lung function dropping like that, I don't think it would be a bad idea to start entertaining the idea of transplant. Yes, my lung function was 24% when I was transplanted and I had to do IV antibiotics about 3 out of every 4 weeks of the month, and I couldn't do much physically (took...
  6. R

    wondering if i am almost there for a transplant

    With your lung function dropping like that, I don't think it would be a bad idea to start entertaining the idea of transplant. Yes, my lung function was 24% when I was transplanted and I had to do IV antibiotics about 3 out of every 4 weeks of the month, and I couldn't do much physically (took...
  7. R

    mycelex troche

    I didn't take that drug specifically, but I did take something similar. I can't remember the name of it, but I do remember it was an awful liquid. After some time, they switched me to a different anti-fungal (sporonox) until I developed some fungus in one of my cultures, so they then switched...
  8. R

    mycelex troche

    I didn't take that drug specifically, but I did take something similar. I can't remember the name of it, but I do remember it was an awful liquid. After some time, they switched me to a different anti-fungal (sporonox) until I developed some fungus in one of my cultures, so they then switched...
  9. R

    mycelex troche

    I didn't take that drug specifically, but I did take something similar. I can't remember the name of it, but I do remember it was an awful liquid. After some time, they switched me to a different anti-fungal (sporonox) until I developed some fungus in one of my cultures, so they then switched...
  10. R

    Transplant, what can I expect?

    Sorry to hear that you're facing this decision. I went through all of that 3 years ago and was transplanted on Feb 13, 2009. Here's my blog that starts with the pre-transplant evaluation and goes through transplant to the present day <img src="i/expressions/face-icon-small-smile.gif"...
  11. R

    Transplant, what can I expect?

    Sorry to hear that you're facing this decision. I went through all of that 3 years ago and was transplanted on Feb 13, 2009. Here's my blog that starts with the pre-transplant evaluation and goes through transplant to the present day <img src="i/expressions/face-icon-small-smile.gif"...
  12. R

    Transplant, what can I expect?

    Sorry to hear that you're facing this decision. I went through all of that 3 years ago and was transplanted on Feb 13, 2009. Here's my blog that starts with the pre-transplant evaluation and goes through transplant to the present day <img src="i/expressions/face-icon-small-smile.gif"...
  13. R

    how far do you go?

    I have nothing new to add... I follow the diet restrictions as close as I can. I do drink, but got permission from my center to only drink on occasion. I maybe have 1-2 drinks a month but follow my liver function through my bloodwork closely. I never wear a mask anymore but did for the first...
  14. R

    how far do you go?

    I have nothing new to add... I follow the diet restrictions as close as I can. I do drink, but got permission from my center to only drink on occasion. I maybe have 1-2 drinks a month but follow my liver function through my bloodwork closely. I never wear a mask anymore but did for the first...
  15. R

    how far do you go?

    I have nothing new to add... I follow the diet restrictions as close as I can. I do drink, but got permission from my center to only drink on occasion. I maybe have 1-2 drinks a month but follow my liver function through my bloodwork closely. I never wear a mask anymore but did for the first...
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