Do you enjoy hospital stays?

mamaScarlett

New member
I'm with Bill. It depends so much on the nursing staff and the relationship the nurses have with the cf team. If there isn't alot of communication its a very frustrating time.<br><br>I don't mind the hospital for a few days actually. Esp if I feel like its really warranted that I'm there, and that I'm using that time to heal. But after 4-5 days I miss my daughter too much and any good that the hospital is doing gets outweighed by the stress of being separated from her and I have to go home.<br>
 

mamaScarlett

New member
I'm with Bill. It depends so much on the nursing staff and the relationship the nurses have with the cf team. If there isn't alot of communication its a very frustrating time.<br><br>I don't mind the hospital for a few days actually. Esp if I feel like its really warranted that I'm there, and that I'm using that time to heal. But after 4-5 days I miss my daughter too much and any good that the hospital is doing gets outweighed by the stress of being separated from her and I have to go home.<br>
 

Ratatosk

Administrator
Staff member
DS DID enjoy having to use overnight disposable diapers during his last stay two years ago. With all the IV fluids being pushed, a PICC and an IV, it was chaos trying to get him into the bathroom on time as he usually waits until the last minute. He liked being able to play Wii and not interupt his gaming with a pee break. We're thinking his college years are going to be WILD! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Ratatosk

Administrator
Staff member
DS DID enjoy having to use overnight disposable diapers during his last stay two years ago. With all the IV fluids being pushed, a PICC and an IV, it was chaos trying to get him into the bathroom on time as he usually waits until the last minute. He liked being able to play Wii and not interupt his gaming with a pee break. We're thinking his college years are going to be WILD! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

Ratatosk

Administrator
Staff member
DS DID enjoy having to use overnight disposable diapers during his last stay two years ago. With all the IV fluids being pushed, a PICC and an IV, it was chaos trying to get him into the bathroom on time as he usually waits until the last minute. He liked being able to play Wii and not interupt his gaming with a pee break. We're thinking his college years are going to be WILD! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

SIcklyhatED

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>azdesertrat</b></i>

I too have had a love/hate relationship with hospitals. The staff(s) have been fantastic, very few 'clinkers'. I never minded the vitals & med changes. I'm a very light sleeper but I usually go right back to sleep or kept watching late night TV afterwards. I like that EVERYONE always makes sure that getting me well is their most important concern. I'm very blessed; when I went in for 'clean-outs' I always went to Good Samaritan Hospital in PHX AZ. That has got to be one of the finest institutions on the planet. When I go in for transplant related issues I go to University of AZ. Not as good but still a fantastic hospital. In both cases, the nurses are amazing. Good nurses will make/break a hospital. Thank you to any nurse that may read this; my wife & I love you all. Nurses make my life so much more pleasant & have saved my miserable carcass on more than one occasion! Inevitably, after a week or 2 I'm ready to split. I'll beg my DR's to 'post my bail'. One can only stand so much you know...</end quote></div>

 aaahh!! You live in AZ?? I'm in Tucson <img src="i/expressions/face-icon-small-smile.gif" border="0">, so Tucson Medical Center for me. I know the CF clinic is at UoA and I personally don't like them; never have. 98% of the nurses I've had at TMC have been fabulous and they really do make a difference. If I'm ever not able to go to TMC or any other hospital in Tucson I'll try to get into Good Samaritan Hospital then <img src="i/expressions/face-icon-small-smile.gif" border="0">.  If you don't mind me asking where are you located in AZ?
 

SIcklyhatED

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>azdesertrat</b></i>

I too have had a love/hate relationship with hospitals. The staff(s) have been fantastic, very few 'clinkers'. I never minded the vitals & med changes. I'm a very light sleeper but I usually go right back to sleep or kept watching late night TV afterwards. I like that EVERYONE always makes sure that getting me well is their most important concern. I'm very blessed; when I went in for 'clean-outs' I always went to Good Samaritan Hospital in PHX AZ. That has got to be one of the finest institutions on the planet. When I go in for transplant related issues I go to University of AZ. Not as good but still a fantastic hospital. In both cases, the nurses are amazing. Good nurses will make/break a hospital. Thank you to any nurse that may read this; my wife & I love you all. Nurses make my life so much more pleasant & have saved my miserable carcass on more than one occasion! Inevitably, after a week or 2 I'm ready to split. I'll beg my DR's to 'post my bail'. One can only stand so much you know...</end quote>

aaahh!! You live in AZ?? I'm in Tucson <img src="i/expressions/face-icon-small-smile.gif" border="0">, so Tucson Medical Center for me. I know the CF clinic is at UoA and I personally don't like them; never have. 98% of the nurses I've had at TMC have been fabulous and they really do make a difference.If I'm ever not able to go to TMC or any other hospital in TucsonI'll try to get into Good Samaritan Hospital then <img src="i/expressions/face-icon-small-smile.gif" border="0">. If you don't mind me asking where are you located in AZ?
 

SIcklyhatED

New member
<p><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>azdesertrat</b></i>

I too have had a love/hate relationship with hospitals. The staff(s) have been fantastic, very few 'clinkers'. I never minded the vitals & med changes. I'm a very light sleeper but I usually go right back to sleep or kept watching late night TV afterwards. I like that EVERYONE always makes sure that getting me well is their most important concern. I'm very blessed; when I went in for 'clean-outs' I always went to Good Samaritan Hospital in PHX AZ. That has got to be one of the finest institutions on the planet. When I go in for transplant related issues I go to University of AZ. Not as good but still a fantastic hospital. In both cases, the nurses are amazing. Good nurses will make/break a hospital. Thank you to any nurse that may read this; my wife & I love you all. Nurses make my life so much more pleasant & have saved my miserable carcass on more than one occasion! Inevitably, after a week or 2 I'm ready to split. I'll beg my DR's to 'post my bail'. One can only stand so much you know...</end quote>

<p><p>aaahh!! You live in AZ?? I'm in Tucson <img src="i/expressions/face-icon-small-smile.gif" border="0">, so Tucson Medical Center for me. I know the CF clinic is at UoA and I personally don't like them; never have. 98% of the nurses I've had at TMC have been fabulous and they really do make a difference.<p><p>If I'm ever not able to go to TMC or any other hospital in TucsonI'll try to get into Good Samaritan Hospital then <img src="i/expressions/face-icon-small-smile.gif" border="0">. <p><p>If you don't mind me asking where are you located in AZ?
 

Twistofchaos

New member
Usually get hit on by one nurse or another, so in that sense I don't mind hospital stays much.
Though I think they do it on purpose, might even be written in my patient log. As I tend to make it a sport to not tell nurses anything, I find they will use any trick to confuse me and make me talk, they're a species that can learn and adapt their strategies. So beware!
They almost certainly outnumber us, and have ways to communicate with each other we have yet to understand.
However it's not hopeless, as many of them are female, there is usually envy and hate, noticeable tension amongst the nursing staff, this weakness can be exploited, for example first we observe their behaviour and inner-collective communication for days, weeks if we must. Then by observing their shifts we try to discover patterns to decipher their schedulation, taking in account all the gossip of the whole hospital to factor in unexpected pregnancies, vacations and mishaps that will create chaos in our system. We can also go look at the nursing-board down the hallway to see who's shift is next. Then by knowing their schedule we can make a reasonably accurate prediction of the level of communication from one nursing shift to the next, and when our timing is right, though not everyone will make it, when it all comes together, like solving a Rubik's cube with one million squares, it can be done, we can defeat them! And we will look upon ourselves, and through sacrifice we will be proud to have changed the course of history and the lives and hearts of billions!
So yeah hospital stays aren't too bad.
 

Twistofchaos

New member
Usually get hit on by one nurse or another, so in that sense I don't mind hospital stays much.
Though I think they do it on purpose, might even be written in my patient log. As I tend to make it a sport to not tell nurses anything, I find they will use any trick to confuse me and make me talk, they're a species that can learn and adapt their strategies. So beware!
They almost certainly outnumber us, and have ways to communicate with each other we have yet to understand.
However it's not hopeless, as many of them are female, there is usually envy and hate, noticeable tension amongst the nursing staff, this weakness can be exploited, for example first we observe their behaviour and inner-collective communication for days, weeks if we must. Then by observing their shifts we try to discover patterns to decipher their schedulation, taking in account all the gossip of the whole hospital to factor in unexpected pregnancies, vacations and mishaps that will create chaos in our system. We can also go look at the nursing-board down the hallway to see who's shift is next. Then by knowing their schedule we can make a reasonably accurate prediction of the level of communication from one nursing shift to the next, and when our timing is right, though not everyone will make it, when it all comes together, like solving a Rubik's cube with one million squares, it can be done, we can defeat them! And we will look upon ourselves, and through sacrifice we will be proud to have changed the course of history and the lives and hearts of billions!
So yeah hospital stays aren't too bad.
 

Twistofchaos

New member
Usually get hit on by one nurse or another, so in that sense I don't mind hospital stays much.
<br />Though I think they do it on purpose, might even be written in my patient log. As I tend to make it a sport to not tell nurses anything, I find they will use any trick to confuse me and make me talk, they're a species that can learn and adapt their strategies. So beware!
<br />They almost certainly outnumber us, and have ways to communicate with each other we have yet to understand.
<br />However it's not hopeless, as many of them are female, there is usually envy and hate, noticeable tension amongst the nursing staff, this weakness can be exploited, for example first we observe their behaviour and inner-collective communication for days, weeks if we must. Then by observing their shifts we try to discover patterns to decipher their schedulation, taking in account all the gossip of the whole hospital to factor in unexpected pregnancies, vacations and mishaps that will create chaos in our system. We can also go look at the nursing-board down the hallway to see who's shift is next. Then by knowing their schedule we can make a reasonably accurate prediction of the level of communication from one nursing shift to the next, and when our timing is right, though not everyone will make it, when it all comes together, like solving a Rubik's cube with one million squares, it can be done, we can defeat them! And we will look upon ourselves, and through sacrifice we will be proud to have changed the course of history and the lives and hearts of billions!
<br />So yeah hospital stays aren't too bad.
 

IVWinchester79

New member
<br>I love them. None of my problems reach me when I'm in the hospital. Everyone just wants me to concentrate on getting well. It was great especially when I was a kid. The nurses were great, I got presents, lots of toys, birthday parties, great food, and family visits. And best of all no school! Ever since I changed doctors I now go to a different hospital. I still like it, just less than before. The nurses are mostly still cool, food's okay, family visits are still awesome. I gotta say I like PICC lines way more than ports. Plus now a group of my friends get into a group and come visit me which is fun! The only few downsides are that they seem to want blood every night. I barely sleep at night because someone always seems to be coming in and out to give me meds or draw blood or do vitals. Since my veins don't like cooperating, it takes about one to four sticks to get it. That's why I always stayed up a lot at night and slept it off during the day. No one seemed to bother me as much in the day. But when I do sleep at night, I just wake up when someone comes and go to sleep when they leave. And every time I'm there, I have to cough something up for the labs, which I have trouble with a lot, so sometimes I get a bronchoscopy. Since I have CFRD, the many blood sugar checks suck, especially the ones at three in the morning. And waiting downstairs for X-rays takes forever. Plus the many treatments I get each day suck mainly because I get the vest and CPT a lot more in the hospital than at home. But mostly I'm cool being there. Sometimes I kind of hope I'll stay when I'm sick, mainly so I can just get away from everybody. Wrong, but it's how I get my alone time. Lol.
 

IVWinchester79

New member
<br>I love them. None of my problems reach me when I'm in the hospital. Everyone just wants me to concentrate on getting well.It was great especially when I was a kid. The nurses were great, I got presents, lots of toys, birthday parties, great food, and family visits. And best of all no school! Ever since I changed doctors I now go to a different hospital. I still like it, just less than before. The nurses are mostly still cool, food's okay, family visits are still awesome. I gotta say I like PICC lines way more than ports. Plus now a group of my friends get into a group and come visit me which is fun! The only few downsides are that they seem to want blood every night. I barely sleep at night because someone always seems to be coming in and out to give me meds or draw blood or do vitals. Since my veins don't like cooperating, it takes about one to four sticks to get it. That's why I always stayed up a lot at night and slept it off during the day. No one seemed to bother me as much in the day. But when I do sleep at night, I just wake up when someone comes and go to sleep when they leave. And every time I'm there, I have to cough something up for the labs, which I have trouble with a lot, so sometimes I get a bronchoscopy. Since I have CFRD, the many blood sugar checks suck, especially the ones at three in the morning. And waiting downstairs for X-rays takes forever. Plus the many treatments I get each day suck mainly because I get the vest and CPT a lot more in the hospital than at home. But mostly I'm cool being there. Sometimes I kind of hope I'll stay when I'm sick, mainly so I can just get away from everybody. Wrong, but it's how I get my alone time. Lol.
 

IVWinchester79

New member
<p><br>I love them. None of my problems reach me when I'm in the hospital. Everyone just wants me to concentrate on getting well.<p><p>It was great especially when I was a kid. The nurses were great, I got presents, lots of toys, birthday parties, great food, and family visits. And best of all no school! Ever since I changed doctors I now go to a different hospital. I still like it, just less than before. The nurses are mostly still cool, food's okay, family visits are still awesome. I gotta say I like PICC lines way more than ports. Plus now a group of my friends get into a group and come visit me which is fun! The only few downsides are that they seem to want blood every night. I barely sleep at night because someone always seems to be coming in and out to give me meds or draw blood or do vitals. Since my veins don't like cooperating, it takes about one to four sticks to get it. That's why I always stayed up a lot at night and slept it off during the day. No one seemed to bother me as much in the day. But when I do sleep at night, I just wake up when someone comes and go to sleep when they leave. And every time I'm there, I have to cough something up for the labs, which I have trouble with a lot, so sometimes I get a bronchoscopy. Since I have CFRD, the many blood sugar checks suck, especially the ones at three in the morning. And waiting downstairs for X-rays takes forever. Plus the many treatments I get each day suck mainly because I get the vest and CPT a lot more in the hospital than at home. But mostly I'm cool being there. Sometimes I kind of hope I'll stay when I'm sick, mainly so I can just get away from everybody. Wrong, but it's how I get my alone time. Lol.
 

robbiekay

New member
<p style="margin: 0.0px 0.0px 0.0px 0.0px; font: 12.0px Helvetica"><p style="margin: 0.0px 0.0px 0.0px 0.0px; font: 14.0px Helvetica"><span style="letter-spacing: 0.0px">So any tricks for staying healthy and out of the hospital?  Our son is turning 21 on sat. <img src="i/expressions/face-icon-small-smile.gif" border="0">  He has been hospitalized about every 2- 3 months as long as I can remember.  to me this seems high, compared to other post by cfers.  He does have cfrd, cirhosis of the liver, sinitouse and digestive issues. Not every hospital stay is due to an excerbation,  useurally somthing else will bring him in, but once in, they always treat him as an excerbation,  I think it has somthing to do with insurance.  He does his treatments, does not excerise hardly but is pretty active.  His pft's hang around 75+  and he recovers quickly once he does go in .  Which seems like he does not mind, too much, (he deals with it very well).  Hand washing has always been a regular practice in our house and I am a pretty good house keeper. I am not trying to be the cop mom, but I am concernd and  just think he would be better off if he could ruduce  the numbr of admissions. Does any one have any suggestions for staying home and keeping healthy longer. when I have asked his Dr's about this they just tell me that he is a high maintence guy, and every cf patient is different.(NO kidding, right <img src="i/expressions/face-icon-small-smile.gif" border="0">) I still feel like we are missing somthing. every 2-3month seems like an awfull lot. I would like to find this mssing key before he is totally independant of me. 
 

robbiekay

New member
<p style="margin: 0.0px 0.0px 0.0px 0.0px; font: 12.0px Helvetica"><p style="margin: 0.0px 0.0px 0.0px 0.0px; font: 14.0px Helvetica"><span style="letter-spacing: 0.0px">So any tricks for staying healthy and out of the hospital? Our son is turning 21 on sat. <img src="i/expressions/face-icon-small-smile.gif" border="0"> He has been hospitalized about every 2- 3 months as long as I can remember. to me this seems high, compared to other post by cfers. He does have cfrd, cirhosis of the liver, sinitouse and digestive issues. Not every hospital stay is due to an excerbation, useurally somthing else will bring him in, but once in, they always treat him as an excerbation, I think it has somthing to do with insurance. He does his treatments, does not excerise hardly but is pretty active. His pft's hang around 75+ and he recovers quickly once he does go in . Which seems like he does not mind, too much, (he deals with it very well). Hand washing has always been a regular practice in our house and I am a pretty good house keeper. I am not trying to be the cop mom, but I am concernd and just think he would be better off if he could ruduce the numbr of admissions. Does any one have any suggestions for staying home and keeping healthy longer. when I have asked his Dr's about this they just tell me that he is a high maintence guy, and every cf patient is different.(NO kidding, right <img src="i/expressions/face-icon-small-smile.gif" border="0">) I still feel like we are missing somthing. every 2-3month seems like an awfull lot. I would like to find this mssing key before he is totally independant of me.
 

robbiekay

New member
<p style="margin: 0.0px 0.0px 0.0px 0.0px; font: 12.0px Helvetica"><p style="margin: 0.0px 0.0px 0.0px 0.0px; font: 14.0px Helvetica"><span style="letter-spacing: 0.0px">So any tricks for staying healthy and out of the hospital? Our son is turning 21 on sat. <img src="i/expressions/face-icon-small-smile.gif" border="0"> He has been hospitalized about every 2- 3 months as long as I can remember. to me this seems high, compared to other post by cfers. He does have cfrd, cirhosis of the liver, sinitouse and digestive issues. Not every hospital stay is due to an excerbation, useurally somthing else will bring him in, but once in, they always treat him as an excerbation, I think it has somthing to do with insurance. He does his treatments, does not excerise hardly but is pretty active. His pft's hang around 75+ and he recovers quickly once he does go in . Which seems like he does not mind, too much, (he deals with it very well). Hand washing has always been a regular practice in our house and I am a pretty good house keeper. I am not trying to be the cop mom, but I am concernd and just think he would be better off if he could ruduce the numbr of admissions. Does any one have any suggestions for staying home and keeping healthy longer. when I have asked his Dr's about this they just tell me that he is a high maintence guy, and every cf patient is different.(NO kidding, right <img src="i/expressions/face-icon-small-smile.gif" border="0">) I still feel like we are missing somthing. every 2-3month seems like an awfull lot. I would like to find this mssing key before he is totally independant of me.<p>
 
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