I so totally get this! My son has CF and spends huge amounts of energy trying to hide it. As he was growing up, we as a family didn't discuss his CF very often, but family and extended family all knew about it. Me, as mom, did not handle it well; it sits in my throat like a hairball. It can come up any time and turn me into a ball of tears. He just got out of the hospital from his 1st time ever "tune-up". He got psychiatric help at hospital ~ a book was recommended for all of us to read. It has helped me and my son.
It is worth a read ~ SOS Help For Emotions Managing Anxiety, Anger & Depression by Lynn Clark, Ph.D
what I thought was mainly for him (16yrs old), helped me a lot too (52 yrs old)! Give it a try, it certainly can't hurt and it gives every day things an honest perspective that we, who are so closely wrapped up in it, cannot always see. Thinking of you!