Who are you in a nut shell

just4fun

New member
My name is Christine
I am 37
I live in St. Louis Missouri
I was diagnosed at birth after my small bowel perforated :(
I am the mom of 2 cats and 1 puppy
My best friend is my husband <img src="i/expressions/heart.gif" border="0">
I am a neonatal intensive care nurse (NICU)
I love to do counted cross-stitch, read for fun and cook
I am a shoe & purse junkie ;)
As of this year my PFTs fell to the 20's, which I am trying to accept :(
I have CFRD, a port, blood clots, lots of battle scars and tattoos to balance my scars ;)
 
who are you

Well, the name's Morgan.

I'm a guy. Yea, I have a chicks name.
I'm 20. 21 on July 8th!
Diagnosed at 3 months old. DeltaF508 FTW!
I keep my FEV's between 89-93%.
No one else in my Family on either side has CF. Lucky me, right?
I've had about 10 sinus surgeries when I was younger and a fundoplication(sp?)when I was 3 y/o.
5'7 , 120. Yea, I'm small. But hey, who isn't with this? lol
Single & Straight, but support Gay Marriage 10000000%. Love is Love, no matter the Gender.
I live and breathe music.
I play Guitar, Bass, Drums, Produce & sing in the shower.
Guns N' Roses = Best Band Ever.
I listen to everything except country. Just can't get into the same ole' baritone singing with the same ole' chords in EVERY song.
I HATE RACIST, HOMOPHOBIC & JUDGEMENTAL PEOPLE! If you are any of those, please, don't bother talking to me. IT's 2010, quit being IGNORANT ASSHOLES.
I like piercings and tattoos.
I have my nose pierced and 1/2" gauges in my ears.
I have a pentagram star on my face and a Cystic Fibrosis piece on my right hand with tons more to come.
I have an obsession with sunglasses....I own wayyyyy too many.
I'm not religious in any way. I find no peace in thinking there is an' invisible man in the sky with all these great powers yet he still lets people suffer with conditions like CF.
BUT! I respect all beliefs and I will not knock or press my beliefs on you as long as you do the same for me
I believe in just being the best person possible and treating others as you would want to be treated.
I'm allergic to about every animal in existence.
I believe knowledge is power. So I know a lot about a bunch of random stuff...lol
I cuss entirely too much...but I try to tone it down on things like this, hahaha.
I'm on Facebook all the time...so add me!
While CF has made my life a long and difficult journey, I wouldn't go back and trade it for anything because it's made me the person I am today.
 
M

Mikeinfla

Guest
Hello
I am mike
in florida(that was a given right?)
I am 36

I have not been tested or diagnosed as cf, BUT
I have extremely thick mucus that leads me to get
infections.
I have had 3 or 4 or 5(really dont want to remember) pneumothorax's
Part of my right lung removed due to a non healing one!
I have actually acquired a taste for acetylcysteine/albuterol mix(I know everyone else runs when
I start up the neb)

I am tired of not having a diagnosis, I have been having trouble breathing for the past 5 or 7 years. I have been told I have everything from alpha 1 to copd for some reason none of those seem to fit. Of course I don't have insurance and I have to buy all my meds and with the tally some where up near 7 or so it get's expensive. My only saving grace has been that when I had insurance I got the Vest and O2 gen. The vest has saved me from many infections I am sure.
Next time I am in the er I am demanding a sweat test(was just there last month and last week) Really kinda hoping I don't have to go back! Everytime I have brought up CF with a doc they say "NO way can YOU have that you would have known by NOW!" I think there was always a subtext of you would be dead by now without treatment for that long. I was never one for doing things by the books so it would figure.
 

Bjoern89

New member
who are you

Originally posted by: CaptainMorgan90X

Guns N' Roses = Best Band Ever.



I somehow knew that when I saw your picture ;-)
 

KatelynRae

New member
My name is Katelyn
I am pure woman
I am 21
I live in British Columbia, Canada
I am 5'4 1/2 and 120 lbs
I was diagnosed with CF at 3 months old, and like many others was labeled as failure to thrive
My PFT's vary, but normally around 92%
I have had 2 sinus pollup removals
I have the creditentials to be an event planner but have 0 experience
I recently did a kick... butt speach to a not-for profit organization and landed myself a CF vest. Vests are not funded by the government in Canada
Sunshine is a friend of mine
I am a great singer, but only in the shower
I enjoy sports - and have been playing soccer since 8
I have a younger brother who is a carrier of CF
I have a great boyfriend!
I am gluten & dairy free for the most part, I cheat however
One day I WILL own a bulldog

Thats all folks!
 

KLeigh

New member
My name is Kathryn
I'm 25
I live in North Carolina, but born & raised in Dallas, TX
I was dx (diagnosed) at 2 years.
I weigh around 116lbs and I am 5'2" (weight has never been a problem with my CF)
My PFT's are in the 60's, give or take a little!
I recently married a man I have known for 6 years!
He is in the Army, which is why we are at Ft. Bragg, NC
We have a yellow lab puppy named Nala (my husband love the Lion King)
She makes me stay active which I believe helps my lung functions!
My husband is CF gene free & we hope to have 2 children (starting soon!)
Peace & Love
 
J

JackRKirby

Guest
My name is Jack
I'm 27
I'm male
I live in rural Rwanda.
I'm from Virginia.
I was diagnosed with CF at 5 months.
I'm 5'6" and weigh 120. I am usually 135.
My PFTs are in the 70s.
I got married September 19th.
My wife and I work in development agriculture, serving rural farmers.
I am a libertarian
My healthcare politics conflict with my CF.
I am an atheist.
I play chess.
I enjoy arguing with my liberal colleges.
 

kemcloney3

New member
My name is Katherine, Kat for short
I am 24 years old
I am definitely a girl but a tomboy
I'm from Kentucky
I'm 5'7 and 115lbs (apparently I am tall)
My pft's suck (30s to 40s)
I don't follow my treatment plan at all (trying to change that)
I'm obsessed with hot chocolate and Mountain Dew freezies
I'm dating a guy that is 5 years younger than me but to me age is just a number
I have one brother who doesn't have cf and isn't a carrier
I'm currently in school to become an accountant
I'm a firm believer that a nice long soak in the bathtub can cure just about anything
I have a yorkie named Bentley. She is 2.8 lbs
I'm obsessed with my iphone
I love to read and am learning to cook
 

grammalemon

New member
My name is Jen
I'm a girl
I'm 38
I live in Ohio
I was diagnosed at 9 weeks with failure to thrive
I weigh around 120 and I'm 5'1'
My PFTs are in the high 70's at the moment
I recently got a medport and just got off two back to back courses of IVs
I have a thing for my family
I am happily married
I like to spend time with my family, read, scrapbook, sing, write, laugh
 

Walters03

New member
who are you in a nut shell

My name is Sherri
I'm a girl
I'm 30
I live in SD
I was dx (diagnosed) atbirth (since my sister already had CF and passed on from it)
I weigh around 110 lbs, and I'm 4'11
My PFT's stink
I recently started working a part-time job
I have a thing for cats
I have a thing for pasta
I'm married (without children)
I like dogs not cats
I like joking around and having a good time.
I'm fun to be around.
 

KingJames

Member
My name is James.
-I'm a Male (AKA Dude, Bro, Homey).
-I'm 25 (Soon to be 26).
-I'm single.
-I live in Washington, D.C. (Born and raised).
-I was first diagnosed with CF by my parents, who recognized the signs (See more below).
-I'm 5'10", and 180 lbs.
-I have been active my entire life, and I am currently increasing my workout loads/activities.
-I am finally getting serious about college, and my future career(s) (I am majoring in/studying Atmospheric Science, Astrophysics, and Aerospace Engineering).
-I have three dogs (Two JRTs, and an Alaskan Husky), and a cat (My second cat, and I've had pets my whole life).
-I love cold weather, and snow (I'm heading to Alaska when I finally get the chance).
-I also love the ocean, and anything pertaining towards it (I've done everything from coral reef sailing expeditions in the Florida Keys, to SCUBA diving and surfing in Hawaii).
-I am fortunately very healthy, and I was only hospitalized once for a "Tune-up" in 2nd Grade.
-I haven't been for a routine check-up in five years, and I am presently in the process of finding a good adult CF Pulmonary specialist (My good Dr., who my family knew for a long time, left and went back to Berkeley, CA, and the subsequent physicians were horrible).
-I have a deep and profound belief in God.
-I hail from a Military family, with every generation having served (I love the Military).
-My father is retired from multiple jobs, including as a USN Captain of 30 years, while my mom still works as a Special Education Teacher (My mother organized and ran CF Foundation activities as the Chairman across the Metro D.C. region for most of the 1980s, and early 1990s).
-I have one younger sister, an older half-sister and brother, and two non-blood related sisters (My younger sister was the very first individual in the world to have successfully had her diagnosis rendered through the amniocentesis procedure (She does not have CF, fortunately).


Note: I had an older sister who died from CF at the age of eight, back in 1983. My parents had a great deal of experience regarding CF, from having raised her, and so they subsequently were able to diagnose me soon after birth (Even before the medical testing could positively ID it).

Oh, and yeah, for some reason the nutritionists were always psyched to see me whenever they had the chance during a check-up. I've never had problem gaining or keeping on weight, and in fact, I'm actually trying to burn off some fat! I can lose weight rather quickly when I don't have enough protein, though. I lost 25 lbs. within a week one time, due to a situation that didn't allow for me to eat my own food.

If there's anything else you'd like to know, feel free to hit me up! ;-)
 

lilkidNicky

New member
My name is Nick
I'm a male
I'm 26 y/o
I live in Hastings, New Zealand
I am allergic to mushrooms
I am 5'6
I work part time at E.K.C Holiday programs 5-4x a year
I love to write songs/listen to music/sing
I'm single [and looking]
I owned many cats as a kid.
I follow cricket, basketball and soccer.
I am a Christian
I'm a BIG fan of the Backstreet Boys [hence the avatar]
 

FitForCF

New member
I'm Phil and I'm 41 years old, but don't call me grangpa!
I was born in Boston, moved to Maryland at age 21. Lived there for 14 1/2 years before moving to South Carolina. I like to be warm.
I have 3 adopted kids and recently divorced.
I'm 5' 10 1/2" and 165 lbs.
I had to leave my job three years ago and went on long term disability. I was a Project Manager for a construction company and concrete dust and CF just dont mix!
I'm a life long writer and have been writing a lot these past two years, mostly write movie screenplays. This past summer I got back into acting and have been on four different movies and on the show 30 Rock. I want to be the first person with CF to accept a major acting award!!

I was able to increase my PFT's almost 20% by doing P90X workout. Now I'm a coach.

<a target=_blank class=ftalternatingbarlinklarge href="http://beachbodycoach.com/FITFORCF
">http://beachbodycoach.com/FITFORCF
</a>
That's me for the most part.
 

00transam

New member
My name is Kiley
I am a 38 yr old male(yep male named Kiley)
I live on Illinois/Iowa border(Quad Cities)
My FEV1 is 42%
I work full time and run an autoshop
I workout incessantly weights and cardio(way too hard RT says)
Engaged to Karen 29
Have 2 cats and dog at home.
Am a workaholic
I am madly in love
I am 5'7" and 162 lbs
I love salty foods and soda
LOVE EVERY SECOND OF LIFE!!
I am very sarcastic and will never grow up
Am new here and looking for info/cf friends
 

angelrn00

New member
Hello! My name is Angel.
I am 34.
I am married to Brian, 35, who has cf.
Brian was diagnosed around age 5 due to gi complications.
we have been together for 8yrs.
I have a 16 yr old daughter, Brian and I tried ivf, but were unsuccessful.
I am a nurse.
Brian has recently had a pretty big change in his lung function and we are both having a hard time with it.
I found this website when looking for an online support group of spouses of ppl with cf.
 

StillFighting

New member
Hello,

My name is Ana
I live in Montreal, Quebec, Canada
I am 42 years old. Diagnosed at age 35.
I adopted my daughter Emma from China in 2004.
I have been married for 16 years to my loving husband, Pat.
I am a chartered accountant and work in an international accounting firm.

Life can be good if you just look carefully.
 

kiwilady

Member
Hello, my name is Eileen, and this bird comes from New Zealand. Had a late diagnosis at 37, however had numerous chest infections before testing positive with CF. Have had 4 nasal polyp ops, sinuses now treated with Neil med rinses most days. I have lost a younger bro and older sister to CF. We were children of the 50's, 1952 was a good year!! Both of my parents have left this wonderful world.I have a dear Son in his mid 30's and a darling grandson who will be 6 in Aug. Being a Nana is wonderful! I have a supportive partner, and 3 chookies, Molly, Holly and Dolly. They are little egg-machines. Things that occupy my days are, mosaic art, [always have a project on the go], gardening, reading, suduko, tennis, [glued to the telly when the grand-slam matches are in progress] walking, cycling, and staying in touch with family and friends. Oh and I do love music and movies. Love too, the sounds of children laughing, rain on the roof and the birds singing. I enjoy laughter, good food and red wine. All good for the soul..... Overall health at the mo is stable, my lung function fluctuates with every active infection. Am able to return to my baseline after IV treatment. I grow B/cepacia and staph Aureus on my old lungs. Hemophilus Influ. plagues me on occasion. Being an insulin dependent diabetic, hasn't posed too many dramas in my life. Hope to respond to the boards more often in the future.
 

SIcklyhatED

New member
Name: Sara
Age: 18
Location: Arizona
DX at birth, meconium ileus (eeew)
Lung function baseline: usually mid 90's, but sucking horrible this past year... high 70's low 80's
Height: 5'1
Weight: 119 (boooooo)
I looooove to cook
I'm half Ecuadorian
I refuse to let CF my part of my identity. No, I don't want to be part of "the club"
I have 2 lovely older sisters
I can be sarcastic, and in a mean way. sorry.
I plan to study to be a Physical Therapy Assistant this october at Pima Medical Institute
I think anyone actually reading this deserves a cookie.
 
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