Who are you in a nut shell


New member
maybe it's just me but I feel like there are some new people posting more often that I don't know too well. If you don't mind would you please respond with some SIMPLE info about yourself. I know this has sort of been done before but it's been a while so in the spirit of getting to know each other.... For anyone new.. My name is Debbie I'm a girl I'm 27 I live in CA I was dx (diagnosed) at 9.5 weeks ~failure to thrive I weigh around 95 lbs, and I'm 5'1 My PFT's stink I recently stopped working I have a thing for shoes I have a thing for bacon I'm single I like dogs not cats I like ice cream I'm super sarcastic and thats all I got I guess.....


New member
who are you

My name is Shannon
I'm a girl
I'm 29
I live in IN
I was dx (diagnosed) at 6 weeks - failure t0 thrive
I weigh around 105bs and I am 5'2"
My PFT's are in the 70s
I am a mom to 3 (2 born out of my own womb)
I recently stopped working to be a stay-at-home-mom
I was a bilingual education teacher
I have a thing for shoes
I am somewhat of a hippie
I'm married
I like to read in the bathtub
I like to sing in the car
I like to laugh - if you make me laugh, we will be friends


New member
who are you

My name is Lauren
I'm a girl
I'm 28
I live in Philadelphia, PA USA
I was diagnosed at 2 due to recurring pneumonia 3x before the age of 2
I am pregnant and weigh 129.5lbs. currently.
I usually weigh 127lbs and am 5'3"
My FVC is 75% and my FEV1 is 66%
I work full time and have a BFA in Industrial Design
I'm a bit of a control freak
I get high on multi tasking
I've moved every 4 years of my life. I've been to 7 clinics.
I'm married since 2003.
I am pancreatic insufficient and have never had a sinus surgery.
I have one brother who does not have cf. His carrier status in unknown.
There was no prior history of cf in my family.
My mutations are G551D and DF508.
I like a good sense of humor.
I love to travel. My favorite place was Italy.
I love gelato and caramel covered marshmallows.
My favorite meal is Turkey, gravy, mashed potatoes and cranberry sauce.
I like sunny warm winter days the best.


New member
who are you

Name: Lauren
Age: 26
Location: San Diego
Marital Status: married to Brad since 7/5/03
CF severity: moderate lung damage FEV1 ~2.1L
Occupation: environmental scientist; professional freelance writer
Current health: lousy
Hobbies: reading, writing and 'rithmatic
Proudest moment: graduating from college
Personal quote: "You never know how much you can face until you turn around and see that it's now behind you."
Type of nutshell: pistachio


New member
I'm a girl I'm 26 I was diagnosed when I was 9 or 10 months old, failure to thrive.
I wiegh 137pds Im 5ft tall My FEV1 is 85% I work full time
I like to be neatIm marriedno children I also like to travel,
I love to laugh, my husband is good at getting me to laugh I have a kitty kat


New member
who are you

Well, I'm just a "mom", but I'll go ahead and introduce myself...

Mom to Ethan (3 years old, I diagnosed him soon after birth, but didn't get his final diagnosis until he was 3 1/2 months old)

Also mom to Kenzie (F508 carrier)

Been married almost 8 years

Been a stay at home mom for awhile (about 7 years) but have worked part-time off and on...going to school now to be a nurse

Volunteer (and Co-Chairperson) for CFF/Great Strides

I also live in Indiana (Wanderlost...where in Indiana are you from?)

COLTS, Notre Dame, IU fan

My daughter's a cheerleader, so in between taking care of the kids and house and studying, I watch her practice and compete.


New member
who are you

My name is Chris
I'm a guy
I'm 34
I live in CA
I was dx (diagnosed) at 9 Mo with failure to thrive
I weigh around 150 lbs, and I'm 5'6
My PFT's great
I am a Project Manager
I love Hockey
I have a thing for my wife
I like dogs and cats
I like Angel Food cake and Italian Food


New member
who are you

My name is Chris
I'm a girl
I'm 25
I live in Vancouver, B.C. Canada
I was dx at birth (meconium ileus)
I weigh around 135 and am 5'6
My PFT's are "In Progress"
I'm a fashion designer and artist, but I went to college for classical voice performance
I have a thing for guinea pigs
I just started taking pottery classes
I've been married for 8 months now
I've been to Ireland, Sweden, France, Australia, and Mexico, all isolated incidents. Aus was my favourite by far!
I love all animals
I like sushi, fondue and smoked salmon
I'm very sensitive with an uncontrollable, sometimes inappropriate sense of humour.


who are you

My name is Christy
I'm a girl (I would hope so with a name like Christy)
I'm 36
I live in NC
I was diagnosed at 4 years old after recurring malabsorption problems
I weigh around 110 lbs, give or take 5 lbs from fluid (depends on how my kidneys are functioning)
I am 5'5", but I think I am shrinking because of osteoporosis
I love to exercise
I have been as low as 87 lbs pre-tx, and hopefully will never weigh that again
I have CFRD, irritable bowel syndrome, and chronic sinusitus among other things
I had a lung transplant 11/12/01
I received a lobe from my mom and one from my uncle
I was the 4th living-related lobar tx done at Duke
I am an RN, but have not worked as a nurse in over 8 years
I am married to a wonderful man named Jason
Our first anniversary is Feb 14th of this year
I have a beautiful 11 year old daughter who is CF free!!
I have a 4 month old toy poodle named Balin
My husband always says I'm enigmatic, but I don't know what that means
I am very bubbly.. probably sometimes annoyingly so
I like to hum.. I do it all day
I love to travel.. Italy and Maine are my two fav places that I've been
I love myspace.. it's addicting
My daughter is my hero.. she is the most courageous person I know.


New member
who are you in a nut shell

My name is Diane
Im 41 ( will be 42 next week)
I'm divorced about 9 years now
was diagnosed with cf at age 3 ( failure to thrive)
was diagnosed with diabetes at 15
was diagnosed with b.cepacia around 31 or 32
I am 5'4 - 120 lbs.
I am on disability, but also have a part time job as a housekeeper ....shhhhhhhhh
I live alone with my pets
I have 5 iguanas, 2 cats,1 skink, and a ton of fish. Oh yeah and an outside stray that i take care of.
I am into muscle cars ( racing and building)
Built my first motor at age 34. Still have the car, but been thru about 3 motors since then....lol
Im in a car club and compete in shows (won 34 trophies) and also do judging at our car club shows.
Used to be a lead singer in a band
my fev1 is in the 40's somewhere
I've had 3 embolizations and 1 sinus surgery
I'm a very open and honest person and very outgoing


New member
who are you

My name is Allie
I'm a woman
My husband Ry had CF
He was diagnosed at 2 months due to failure to thrive
His mutations were W1282x and Df508
I am a widow, Ry passed away in May of 2005
We had one child, a daughter, she's 6 now
I am a teacher
I have a dog and a rabbit
I enjoy writing
I'm Jewish
I'm generally a softer, emotional person, especially when I have to talk in real life versus writing.


New member
who are you

Good Thread... I don't know why Imogene doesn't incorporate this type info into the profiles and permit you to display it, IF you wanted to.

I'm David
50 yrs old in two weeks (Feb 2007 for those of you reading this thread in a couple of years)
Dx at 14 - who knows, friend of mon's one day said " You know, that boy just ain't right!
Grew up in Phila (Roxborough), moved to upstate NY (Millbrook) now in Mesa, AZ
I am a Database Administator.
I have mild lung and pancreatic problems, more sterile than a hospital OR.
I am a DF508, but not sure if it is single double, whatever? But my favorite mutant is a ninja turtle.
I have a min-pin who is awesome!
I have two grandkids (no biological children - wonder why?) Notice, the dog came before the kids an grandkids....???? It in no way implys order of priority.
I own a place in Show Low AZ that is awesome! (see the link, click on it.)
I have been 'certified' as a log home builder so I hope to build my own log home one day, on my place in show low. I'm gutting and rebuilding the interior of the mobile this year, just for practice.
I have no sense of humor whatsoever, oh wait, no - that's my wife. I have an international sense of humor - I'll make fun of anybody, don't care!
I enjoy Sammy Adams -
I work out a couple times a week, not real consitent, take spinning class and lift weights (spinning class = stationary bikes with a task master yelling at you)
I'm fat. that's why i'm taking the spinning classes. Stop snikering kbn!
I'm certainly not as informed about CF as most of you. I do the most minimal elements of treatment as I can - hate going to clinic, forget to take my enzyms (jeeszes after 30+ years.... tsk tsk tsk.... It's alzheimers now, baby - New Excuse! )

I have the deepest respect for all of you that have CF and for those who are caring for children or partners with CF. By far, you are the finest and most caring people I've ever had the privilage to 'know'. Thanks for your input, information, ideas.

Cheers to you all!


New member
who are you

My name is Liz. Sometimes people call me Lizard.
I am a girl with tomboyish traits.
I'm 25 years young.
I live in Canada.
I was dx (diagnosed) at 6 weeks of age - failure to thrive.
Right now I weigh about 106, and stand at almost 5'6. When I'm healthy, I weigh 130.
My PFT's could be better. They are sitting in the 60's.
I haven't been working for a year, but wish to go back sometime soon.
I also love shoes like Debbie, and own about 38 pairs.
I love food of all kinds, red wine, taking pictures of myself and playing around with photoshop, being a myspace and msn addict!
I'm single, and loving it at the moment.
I have three cats.
I'm super sarcastic, and tend to have a very dry and dirty sense of humor.
I also have anxiety and OCD - it makes people in my life crazy to hang out with me.
I'm not sure that I will want a transplant when it comes time for one.
I have double delta f508.
I love creative writing and blogging.
I'm a very open minded person, and try my hardest not to judge at all.
I tend to hate confrontation.
I am a happy person for the most part.
I have a mohawk.


who are you

I don't have CF either, but here it goes:

I am Tammy.
I am almost 38 years old (I mean young).
I won't share my weight
I have two daughters with CF, mutations are delF508 and 1898+1G>A
I have a nephew with CF whose health really isn't great (I have one sister, and it is her son that has CF)
My girls are both wonderful, FEV1 in the 90s and in about the 50% for weight.
Older daughter has only been hospitalized once with lung issues, and that was about 8 months ago.
My husband and I have been married 11 years.
We have a Shihtzu named Zoe and a guinea pig named Princess.
We love to travel. (husband and I just returned from Mexico on Saturday)
My family loves mexican and italian food!
I am passionate about cystic fibrosis, and could talk for hours educating someone about what I know, if they are willing to listen...
I volunteer for the CFF board of directors in the St. Louis area (actually just returned from a meeting...)
I have always been what my friends would call the motherly type. I am very calm and down to earth.
I hold the upmost respect for all of you on this site. You have all been through so much in your own way, and appreciate the fact that you share your thoughts so those of us, such as myself, with CF children can learn from you. Thank you for sharing.


New member
who are you

My name is Lisa.
I am 30.
I am italian and my husband is irish .
I love dogs.
I am mother to Tommy Luke 8 months with Double df508 dx in utero.
Also mom to Jayna 8 yrs.old no cf.
Tommy loves the backyardigans on nick jr.
Tommy has a mickey button that we only use for his meds.
He is 17lbs and growing quite tall at 27 inches.
I live in Philadelphia Pa
I've been married for 3 years.
I was a hairstylists until my precious miracle came along ,now I am a stay at home mommy and i love it!


New member
who are you

My name is Sue
I am a girl (although there is that song, A Boy named Sue)
I weigh 115 and am 5'3
I was diagnosed at 5 from ear infections and a bad cough
I live in Chicago, IL
My PFTs are not very good, working too much I think
I am a 5th grade teacher, first year
I have a thing for purses and jelly beans
I love dogs and have had pugs my whole life
I am also very sarcastic and seem to be getting more as I get older

I like this


New member
who are you

I'm Valerie.
I'm a girl.
I'm 25 years old.
Height: 5'4" Weight:115
I was diagnosed w/CF at 1 yr when I was hospitalized for pneumonia.
I was diagnosed w/ CFRD last year.
I was really rebellious as a teenager and I didn't start taking care of my health until a few years ago when I had major hemoptysis.
I was raised in Cleveland, OH.
I have a BFA in Creative Writing from the University of Maine at Farmington.
I have a second Bachelor's in English from Walsh University.
I am getting my MFA in creative writing currently at Kent State.
I really like school, apparently.
I'm a vegan.
My favorite foods are pretzels and tofurkey.
I love cooking, knitting, making stuff with my hands from scratch.
I have a welsh corgi called Mrs. Dalloway.
I have a husband called various things, but mostly I call him Matt.
I read obsessively which makes me feel like I have no real life.
Actually, it's true: I have no real life.
I love road trips.
I wish I liked exercise more, but I get really bored with it.
I'm pretty good at Scrabble.


New member
who are you

my name is joni...
i live in new york...
i am one of 5 daughters...
i was a hippie growing up in the sixties...
i am 55 years old...
i was diagnosed when i was 44 years old...
i was married to my first husband for almost 10 yrs...
i have 2 sons from that marriage...
i am married to my second (and last husband) for 17 yrs...we have been together for 21 yrs. and have 2 sons together... I became a grandmother 14 mos. ago!! (can you guess, another boy!)
i don't work anymore...
my pft.s are around 55 to 61 range...
i love food..hence not posting my weight...

i enjoy cooking (not the clean-up though)...
my husband and i owned a pizzeria for 10 yrs... i enjoy coming to this site, hearing your stories and learning new information...
i love God/Jesus...
i love being a wife (most of the time)...
i love being a mom (most of the time)...
i love being a grandma, all of the time...
i love my family and friends (most of them, most of the time)...
and i love myself...


New member
who are you

Hmm..great topic.

I am Jenn, 35 years old
Dx'd at 33 ish because of a multitude of problems, suspected earlier by my PCP
Live in NY...Hey David, did you say you lived in Millbrook NY? I live near there!!!
I am 5'7" and 148 lbs (yep, a chubbie one, but hey, used to weigh 277 lbs until my pancreas bit the big one LOL- glad I had pounds to spare!!)
Have DM
Was a nurse until about 4 yrs ago, okay still a nurse cosidering I use my skills daily- worked in alot of different fields, favorite was. Prior to nursing studies, I was in the chem engineer field...Ha, who would've thought I would have turned to nursing????
My PFT's are currently unknown- live on a vent, were about 16% prior to the vent (have myopathy issues that affect my diaphragm)
Favorite foods: A good cheesy pizza with mushrooms, Ben and Jerry's just about any flavor, eclairs, home made chinese food
Food I hate: canned peas!!! Also, some of those canned supplements they give you in the hospital...Yuk!!!!

I love to read, enjoy my kids (they are teens, someday I think they turn back into humans LOL), love the internet, watching 80's movies (just love it when a person uses a car phone the size of a cement block, makes me think how much technology has changed), love to research anything that makes me curious, I enjoy tormenting new interns while in the hosptial (heeheehee payback!)

I am as easy going as they come, but god have mercy on the person who pushes too many of my buttons!!

I try to live life as much as possible...we are here for a finite period of time, might as well make the best of it regardless of what people say (some of my relatives treat me like I am dead already...really really angers me!!)

I find that attitude makes a difference...a good temper tantrum certainly is cleansing at times too!

I love humor, laughter makes my soul lighter, makes my problems seem less severe than they are at the time. Love to laugh too.

Okay, that's me in a nutshell....Hugs to all


New member
who are you in a nut shell

My name is Cory
I'm a male
I'm 31
I live in Pennsylvania, U.S.
I am nocf
I weigh around 230lbs, and am 5ft10
I was laid off about 2 years ago
I volunteer at <a target=_blank class=ftalternatingbarlinklarge href="http://www.nhco.org">North Hills Community Outreach</a>
I have a thing for pizza
I have a thing for Snickers
I'm single and plan to stay that way.
I owned many cats as a kid.
I follow soccer.
I'm a good acquaintance of an olympic gymnastics alternate from 1996, and will see her tomorrow.
I have spina bifida
I am atheist
I am on deviantART
I met a CFer on deviantART and have learned much from her.