why cant pediatritans do throat cultures??

anonymous

New member
Just curious why ped's doctors cant do throat cultures.. thats really the only reason i take caleb to his cf doctor..



Melissa mom to dylan 8 no cf and caleb 5wcf
 

anonymous

New member
Just curious why ped's doctors cant do throat cultures.. thats really the only reason i take caleb to his cf doctor..



Melissa mom to dylan 8 no cf and caleb 5wcf
 

anonymous

New member
Just curious why ped's doctors cant do throat cultures.. thats really the only reason i take caleb to his cf doctor..



Melissa mom to dylan 8 no cf and caleb 5wcf
 

anonymous

New member
My guess is the culture should be done at a lab that knows how to run CF specific bacteria. If the lab doesn't culture the throat swab correctly, the result will not be accurate. My daughter's regular ped has done and can do a throat culture on her so i don't need to drive so far to the CF clinic. Then they have a tranport person that drives to the lab to drop off the culture where they typically run the CF throat cultures. I hope this makes sense, so i think it more about the people at the lab knowing what they are doing than you ped.

HTH
Rebecca(mom to Sammy 8 no CF and Maggie alomst 4 with CF)
 

anonymous

New member
My guess is the culture should be done at a lab that knows how to run CF specific bacteria. If the lab doesn't culture the throat swab correctly, the result will not be accurate. My daughter's regular ped has done and can do a throat culture on her so i don't need to drive so far to the CF clinic. Then they have a tranport person that drives to the lab to drop off the culture where they typically run the CF throat cultures. I hope this makes sense, so i think it more about the people at the lab knowing what they are doing than you ped.

HTH
Rebecca(mom to Sammy 8 no CF and Maggie alomst 4 with CF)
 

anonymous

New member
My guess is the culture should be done at a lab that knows how to run CF specific bacteria. If the lab doesn't culture the throat swab correctly, the result will not be accurate. My daughter's regular ped has done and can do a throat culture on her so i don't need to drive so far to the CF clinic. Then they have a tranport person that drives to the lab to drop off the culture where they typically run the CF throat cultures. I hope this makes sense, so i think it more about the people at the lab knowing what they are doing than you ped.

HTH
Rebecca(mom to Sammy 8 no CF and Maggie alomst 4 with CF)
 

Ratatosk

Administrator
Staff member
Our ped doctor can do them, but has to give special instructions, so they're handled/tested properly. When we went to the nonaccreditted CF clinic, a couple of times comments were made about the pulmonologist being upset because the cultures weren't done properly.
 

Ratatosk

Administrator
Staff member
Our ped doctor can do them, but has to give special instructions, so they're handled/tested properly. When we went to the nonaccreditted CF clinic, a couple of times comments were made about the pulmonologist being upset because the cultures weren't done properly.
 

Ratatosk

Administrator
Staff member
Our ped doctor can do them, but has to give special instructions, so they're handled/tested properly. When we went to the nonaccreditted CF clinic, a couple of times comments were made about the pulmonologist being upset because the cultures weren't done properly.
 
2

2perfectboys

Guest
I think peds should be able to, they just don't want the hassel. The first time I asked my son's ped about sending it when he has strep hesaid he did not know what to do. They do the rapid strep in their office and if it's negative they always send it to our childrens hospital to see if it cultures strep, so I told his to just write "CF Panel" and/or "Respiratory Culture" and it should get tested for PA and other things, so he said he would try it, and they did process it correctly. Sometimes I think u just have to push doctors, I just got him to do it this summer, and my son is 9. I've finally learned u r the customer, u pay for services, and if they can't accomodate a legitimate request, then there is always someone who can.
Melissa, I'm curious why u say that the culture is the only reason u take caleb to the CF doc. Don't u think it there is other reasons to be seen there? Don't they do PFTs everytime, and our center is always interested every 3 months in his growth. But I agreee somewhat, sometimes, it seems every three months is a bit freguent and unecessary unless they are sick and to keep current on the cultures. I have thought about doing every 4 months, but have not done that yet
 
2

2perfectboys

Guest
I think peds should be able to, they just don't want the hassel. The first time I asked my son's ped about sending it when he has strep hesaid he did not know what to do. They do the rapid strep in their office and if it's negative they always send it to our childrens hospital to see if it cultures strep, so I told his to just write "CF Panel" and/or "Respiratory Culture" and it should get tested for PA and other things, so he said he would try it, and they did process it correctly. Sometimes I think u just have to push doctors, I just got him to do it this summer, and my son is 9. I've finally learned u r the customer, u pay for services, and if they can't accomodate a legitimate request, then there is always someone who can.
Melissa, I'm curious why u say that the culture is the only reason u take caleb to the CF doc. Don't u think it there is other reasons to be seen there? Don't they do PFTs everytime, and our center is always interested every 3 months in his growth. But I agreee somewhat, sometimes, it seems every three months is a bit freguent and unecessary unless they are sick and to keep current on the cultures. I have thought about doing every 4 months, but have not done that yet
 
2

2perfectboys

Guest
I think peds should be able to, they just don't want the hassel. The first time I asked my son's ped about sending it when he has strep hesaid he did not know what to do. They do the rapid strep in their office and if it's negative they always send it to our childrens hospital to see if it cultures strep, so I told his to just write "CF Panel" and/or "Respiratory Culture" and it should get tested for PA and other things, so he said he would try it, and they did process it correctly. Sometimes I think u just have to push doctors, I just got him to do it this summer, and my son is 9. I've finally learned u r the customer, u pay for services, and if they can't accomodate a legitimate request, then there is always someone who can.
Melissa, I'm curious why u say that the culture is the only reason u take caleb to the CF doc. Don't u think it there is other reasons to be seen there? Don't they do PFTs everytime, and our center is always interested every 3 months in his growth. But I agreee somewhat, sometimes, it seems every three months is a bit freguent and unecessary unless they are sick and to keep current on the cultures. I have thought about doing every 4 months, but have not done that yet
 
T

tammykrumrey

Guest
I, too, wonder why cultures would be the only reason you would go to clinic. I really look forward to speaking with our CF doctor and staff and finding out some new things that are being tried that would possibly benefit my girls. And PFT's will be done soon, I think we started around the age of 5. And they can show a change in lungs that may not be detected just by listening to them.

Although if you live far away from your clinic, I can see where it would seem to be a pain every three months. We only have a one hour trip each way to clinic.

This is just a stretch here, but I wonder if your clinic is doing a great job if they are making you feel that you are not getting more than just a culture. I never leave clinic without feeling like I learned something new and I enjoy getting the positive vibes from our CF team.
 
T

tammykrumrey

Guest
I, too, wonder why cultures would be the only reason you would go to clinic. I really look forward to speaking with our CF doctor and staff and finding out some new things that are being tried that would possibly benefit my girls. And PFT's will be done soon, I think we started around the age of 5. And they can show a change in lungs that may not be detected just by listening to them.

Although if you live far away from your clinic, I can see where it would seem to be a pain every three months. We only have a one hour trip each way to clinic.

This is just a stretch here, but I wonder if your clinic is doing a great job if they are making you feel that you are not getting more than just a culture. I never leave clinic without feeling like I learned something new and I enjoy getting the positive vibes from our CF team.
 
T

tammykrumrey

Guest
I, too, wonder why cultures would be the only reason you would go to clinic. I really look forward to speaking with our CF doctor and staff and finding out some new things that are being tried that would possibly benefit my girls. And PFT's will be done soon, I think we started around the age of 5. And they can show a change in lungs that may not be detected just by listening to them.

Although if you live far away from your clinic, I can see where it would seem to be a pain every three months. We only have a one hour trip each way to clinic.

This is just a stretch here, but I wonder if your clinic is doing a great job if they are making you feel that you are not getting more than just a culture. I never leave clinic without feeling like I learned something new and I enjoy getting the positive vibes from our CF team.
 

momtocfr

New member
Well I dont really know where to start... Caleb started out at a small cf clinic that was close by (about 35mins) there was very poor communication between his cf doc and his ped doc. it was also a poor run clinic. the doctor always took his time getting there and we usually waited over an hr to see the doctor. I had expressed my concern to his ped doc and she told me that I would be better off taking him to the cf clinic that was about 1.5 hrs away. I love his ped to pieces and value her opinion so I took her advice and transfered him. They have great communication and somewhat agree on decisions but I feel were just a number when we go there. They know there stuff and I have never had a problem with their decisions but I just dont like the vibes we get from there. Caleb hates going there and he is a grump from the time he knows were going til were done! Our appointments take forever and they really dont do anything different from his ped with the exception on the throat culture. We love his ped to pieces. Ca;eb is always eager to go and loves to see her. If i have a problem i can email her or call her anytime. She knows caleb just as well as I do if not better. She is also the one who ordered his sweat test when he was a baby. Maybe its just that were treated so great from ped. no one can compare. I just know we both dread going to clinic!! My only other option would be to go to another state which I really dont want to do.

I will have to talk to his doctor again and see what happens. Thanks or listening to my little rant. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Melissa mom to dylan 8ncf and caleb 5wcf
 

momtocfr

New member
Well I dont really know where to start... Caleb started out at a small cf clinic that was close by (about 35mins) there was very poor communication between his cf doc and his ped doc. it was also a poor run clinic. the doctor always took his time getting there and we usually waited over an hr to see the doctor. I had expressed my concern to his ped doc and she told me that I would be better off taking him to the cf clinic that was about 1.5 hrs away. I love his ped to pieces and value her opinion so I took her advice and transfered him. They have great communication and somewhat agree on decisions but I feel were just a number when we go there. They know there stuff and I have never had a problem with their decisions but I just dont like the vibes we get from there. Caleb hates going there and he is a grump from the time he knows were going til were done! Our appointments take forever and they really dont do anything different from his ped with the exception on the throat culture. We love his ped to pieces. Ca;eb is always eager to go and loves to see her. If i have a problem i can email her or call her anytime. She knows caleb just as well as I do if not better. She is also the one who ordered his sweat test when he was a baby. Maybe its just that were treated so great from ped. no one can compare. I just know we both dread going to clinic!! My only other option would be to go to another state which I really dont want to do.

I will have to talk to his doctor again and see what happens. Thanks or listening to my little rant. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Melissa mom to dylan 8ncf and caleb 5wcf
 

momtocfr

New member
Well I dont really know where to start... Caleb started out at a small cf clinic that was close by (about 35mins) there was very poor communication between his cf doc and his ped doc. it was also a poor run clinic. the doctor always took his time getting there and we usually waited over an hr to see the doctor. I had expressed my concern to his ped doc and she told me that I would be better off taking him to the cf clinic that was about 1.5 hrs away. I love his ped to pieces and value her opinion so I took her advice and transfered him. They have great communication and somewhat agree on decisions but I feel were just a number when we go there. They know there stuff and I have never had a problem with their decisions but I just dont like the vibes we get from there. Caleb hates going there and he is a grump from the time he knows were going til were done! Our appointments take forever and they really dont do anything different from his ped with the exception on the throat culture. We love his ped to pieces. Ca;eb is always eager to go and loves to see her. If i have a problem i can email her or call her anytime. She knows caleb just as well as I do if not better. She is also the one who ordered his sweat test when he was a baby. Maybe its just that were treated so great from ped. no one can compare. I just know we both dread going to clinic!! My only other option would be to go to another state which I really dont want to do.

I will have to talk to his doctor again and see what happens. Thanks or listening to my little rant. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Melissa mom to dylan 8ncf and caleb 5wcf
 
2

2perfectboys

Guest
Melissa,
I understand a little what your saying, yes sometimes it does feel like a wasted trip. And it is always a long ordeal. I love my son's peditrician to death, but I just don't think he's up on CF and I would tell this to his face, there's no way he can be, if my son and maybe one other child is all he sees with CF. He is not a specialist in this area, so I don't hold it against him, just the same as I would not expect his CF doc to know all the specific ped questions. I have been frustrated more than a few times with our CF clinic and felt like they have brushed us off a few times to the peditirican instead of seeing us, So I do feel closer to the peditrician. BUT, I want that CF doc there to monitor him and when a true CF prob arises, I want to benifit from that established relationship routine we have every 3 months. I think your feeling like a number is common to a lot of us. While there really are not a lot of CF people there are not really that many CF docs. I feel further frustrated by the fact that at our CF clinic, which is a big and respected hospital (Cincinnati) that they are really a pulmonary clinic and his CF doc is also see kids for Asthma and other pulmonary issues. I wish there was truly a CF clinic that only dealt with CF and then prehaps the office time would not be as long and they would be able to make more time to see u when issues arose or u had questions. I know this summer we had an issue and I was told it would be two weeks before they could see us, so I went to our Ped office for help.
 
2

2perfectboys

Guest
Melissa,
I understand a little what your saying, yes sometimes it does feel like a wasted trip. And it is always a long ordeal. I love my son's peditrician to death, but I just don't think he's up on CF and I would tell this to his face, there's no way he can be, if my son and maybe one other child is all he sees with CF. He is not a specialist in this area, so I don't hold it against him, just the same as I would not expect his CF doc to know all the specific ped questions. I have been frustrated more than a few times with our CF clinic and felt like they have brushed us off a few times to the peditirican instead of seeing us, So I do feel closer to the peditrician. BUT, I want that CF doc there to monitor him and when a true CF prob arises, I want to benifit from that established relationship routine we have every 3 months. I think your feeling like a number is common to a lot of us. While there really are not a lot of CF people there are not really that many CF docs. I feel further frustrated by the fact that at our CF clinic, which is a big and respected hospital (Cincinnati) that they are really a pulmonary clinic and his CF doc is also see kids for Asthma and other pulmonary issues. I wish there was truly a CF clinic that only dealt with CF and then prehaps the office time would not be as long and they would be able to make more time to see u when issues arose or u had questions. I know this summer we had an issue and I was told it would be two weeks before they could see us, so I went to our Ped office for help.
 
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