2
2perfectboys
Guest
Melissa,
I understand a little what your saying, yes sometimes it does feel like a wasted trip. And it is always a long ordeal. I love my son's peditrician to death, but I just don't think he's up on CF and I would tell this to his face, there's no way he can be, if my son and maybe one other child is all he sees with CF. He is not a specialist in this area, so I don't hold it against him, just the same as I would not expect his CF doc to know all the specific ped questions. I have been frustrated more than a few times with our CF clinic and felt like they have brushed us off a few times to the peditirican instead of seeing us, So I do feel closer to the peditrician. BUT, I want that CF doc there to monitor him and when a true CF prob arises, I want to benifit from that established relationship routine we have every 3 months. I think your feeling like a number is common to a lot of us. While there really are not a lot of CF people there are not really that many CF docs. I feel further frustrated by the fact that at our CF clinic, which is a big and respected hospital (Cincinnati) that they are really a pulmonary clinic and his CF doc is also see kids for Asthma and other pulmonary issues. I wish there was truly a CF clinic that only dealt with CF and then prehaps the office time would not be as long and they would be able to make more time to see u when issues arose or u had questions. I know this summer we had an issue and I was told it would be two weeks before they could see us, so I went to our Ped office for help.
I understand a little what your saying, yes sometimes it does feel like a wasted trip. And it is always a long ordeal. I love my son's peditrician to death, but I just don't think he's up on CF and I would tell this to his face, there's no way he can be, if my son and maybe one other child is all he sees with CF. He is not a specialist in this area, so I don't hold it against him, just the same as I would not expect his CF doc to know all the specific ped questions. I have been frustrated more than a few times with our CF clinic and felt like they have brushed us off a few times to the peditirican instead of seeing us, So I do feel closer to the peditrician. BUT, I want that CF doc there to monitor him and when a true CF prob arises, I want to benifit from that established relationship routine we have every 3 months. I think your feeling like a number is common to a lot of us. While there really are not a lot of CF people there are not really that many CF docs. I feel further frustrated by the fact that at our CF clinic, which is a big and respected hospital (Cincinnati) that they are really a pulmonary clinic and his CF doc is also see kids for Asthma and other pulmonary issues. I wish there was truly a CF clinic that only dealt with CF and then prehaps the office time would not be as long and they would be able to make more time to see u when issues arose or u had questions. I know this summer we had an issue and I was told it would be two weeks before they could see us, so I went to our Ped office for help.