Recent content by 3LilFightersmom

I have 4 kids, 3 with CF. Recently my older two boys have been having issues with pancreatitis. *** all 3 boys are PS*** So, the two older boys have had additional labs done, etc, dealing with bouts of extreme pain, some malabsorbtion now, etc. Right before Christmas my 4 year old Cf'er started...

My son's liver enzymes are out of whack, and after max does of ursodiol 3xs a day and with the results of the latest ultrasound, the dr just prescribed Phenobarbital. I googled it, and it it's coming up as an anti seizure medication??? Is anyone using this for elevated liver enzymes/ liver...

My son's liver enzymes are out of whack, and after max does of ursodiol 3xs a day and with the results of the latest ultrasound, the dr just prescribed Phenobarbital. I googled it, and it it's coming up as an anti seizure medication??? Is anyone using this for elevated liver enzymes/ liver disease?

<p>My son's liver enzymes are out of whack, and after max does of ursodiol 3xs a day and with the results of the latest ultrasound, the dr just prescribed Phenobarbital. I googled it, and it it's coming up as an anti seizure medication??? Is anyone using this for elevated liver enzymes/ liver...

has this doctor not heard of unidentified mutations??? by the way those sweat test numbers are high borderline.. so, not knowing why he as counting them as complete negative. hello. I would find another clinic fast... you children sound symptomatic to me... and pi... with scarring in their lungs...

has this doctor not heard of unidentified mutations??? by the way those sweat test numbers are high borderline.. so, not knowing why he as counting them as complete negative. hello. I would find another clinic fast... you children sound symptomatic to me... and pi... with scarring in their lungs...

has this doctor not heard of unidentified mutations??? by the way those sweat test numbers are high borderline.. so, not knowing why he as counting them as complete negative. hello. I would find another clinic fast... you children sound symptomatic to me... and pi... with scarring in their lungs...

thanks... appreciate this. we just had our 4th son, who's screening came back negative, waiting on genetics just to be sure... but was wondering what the error margin was.

thanks... appreciate this. we just had our 4th son, who's screening came back negative, waiting on genetics just to be sure... but was wondering what the error margin was.

thanks... appreciate this. we just had our 4th son, who's screening came back negative, waiting on genetics just to be sure... but was wondering what the error margin was.

Was wondering if anyone out there had their child's newborn screen come back negative, to later run genetics or sweat test and confirm diagnosis of cf? Trying to find statistics on this on the web, but no luck.

Was wondering if anyone out there had their child's newborn screen come back negative, to later run genetics or sweat test and confirm diagnosis of cf? Trying to find statistics on this on the web, but no luck.

Was wondering if anyone out there had their child's newborn screen come back negative, to later run genetics or sweat test and confirm diagnosis of cf? Trying to find statistics on this on the web, but no luck.

Got and email from 65redroses.com that Oprah bought the rights to show Eva's documentary here in the U.S. on her new OWN network coming in 2011. Dates still not announced for when it is to be aired, but definitely something to be excited about. 65_RedRoses picked up by Oprah Winfrey's...

Got and email from 65redroses.com that Oprah bought the rights to show Eva's documentary here in the U.S. on her new OWN network coming in 2011. Dates still not announced for when it is to be aired, but definitely something to be excited about. 65_RedRoses picked up by Oprah Winfrey's...