Recent content by creation301

I know this has been discussed before, but can't find the link. Are there any DDf508's on Kalydeco? In clinic the other day our Dr. said he thought it was worth a try for every DD due to the small subset that responded well in the study. He even went as far as to ask if we would like to be that...

I know this has been discussed before, but can't find the link. Are there any DDf508's on Kalydeco? In clinic the other day our Dr. said he thought it was worth a try for every DD due to the small subset that responded well in the study. He even went as far as to ask if we would like to be that...

We have this discussion every summer...are pools really any better than a lake?  I know that pools are treated and lakes obviously are not, with that said, there are still tons of PA and other bigger bacterias found in swimming pools. Just curious.<div><br></div><div>So the question, do you let...

We have this discussion every summer...are pools really any better than a lake? I know that pools are treated and lakes obviously are not, with that said, there are still tons of PA and other bigger bacterias found in swimming pools. Just curious.<br>So the question, do you let your child swim...

We have this discussion every summer...are pools really any better than a lake? I know that pools are treated and lakes obviously are not, with that said, there are still tons of PA and other bigger bacterias found in swimming pools. Just curious.<br>So the question, do you let your child swim...

We have this discussion every summer...are pools really any better than a lake?  I know that pools are treated and lakes obviously are not, with that said, there are still tons of PA and other bigger bacterias found in swimming pools. Just curious.<div><br></div><div>So the question, do you let...

We have this discussion every summer...are pools really any better than a lake? I know that pools are treated and lakes obviously are not, with that said, there are still tons of PA and other bigger bacterias found in swimming pools. Just curious.<br>So the question, do you let your child swim...

We have this discussion every summer...are pools really any better than a lake? I know that pools are treated and lakes obviously are not, with that said, there are still tons of PA and other bigger bacterias found in swimming pools. Just curious.<br>So the question, do you let your child swim...

<div>I know that there are some really healthy active people on CL, so thought you might be the ones to ask.  How do you stay active and survive the heat??  We have had some really hot and intense heat days here for about a week.  I have for the most part made our 5 year old stay and play inside...

I know that there are some really healthy active people on CL, so thought you might be the ones to ask. How do you stay active and survive the heat?? We have had some really hot and intense heat days here for about a week. I have for the most part made our 5 year old stay and play inside WHICH...

I know that there are some really healthy active people on CL, so thought you might be the ones to ask. How do you stay active and survive the heat?? We have had some really hot and intense heat days here for about a week. I have for the most part made our 5 year old stay and play inside WHICH...

We just finished our fundraiser on Friday. It was totally awesome, and far exceeded our plans or expectations. We raised over $12,000 and are super excited. God is good, and it was so good to see that so many people cared about our family and the many others that suffer from this disease...

We just finished our fundraiser on Friday. It was totally awesome, and far exceeded our plans or expectations. We raised over $12,000 and are super excited. God is good, and it was so good to see that so many people cared about our family and the many others that suffer from this disease...

We just finished our fundraiser on Friday. It was totally awesome, and far exceeded our plans or expectations. We raised over $12,000 and are super excited. God is good, and it was so good to see that so many people cared about our family and the many others that suffer from this disease. <br...

Check out our video. There is something deeply therapeutic in making these videos each year. It is a chance to see progress, and feel like we are doing something to change the look of this disease! Here's to hoping and praying for a bright future for CF. Blessings, Tiffany <a target=_blank...