Recent content by EmilysMom

  1. E

    UK: Organs to be taken without consent

    I believe there is a grass roots group somewhere in the US trying to get the same going for the US where it will become an "opt-out" decision. Your organs will be taken unless you have opted out. Much better than the way they do it now. Some many wasted organs now, because people in grief...
  2. E

    UK: Organs to be taken without consent

    I believe there is a grass roots group somewhere in the US trying to get the same going for the US where it will become an "opt-out" decision. Your organs will be taken unless you have opted out. Much better than the way they do it now. Some many wasted organs now, because people in grief...
  3. E

    UK: Organs to be taken without consent

    I believe there is a grass roots group somewhere in the US trying to get the same going for the US where it will become an "opt-out" decision. Your organs will be taken unless you have opted out. Much better than the way they do it now. Some many wasted organs now, because people in grief...
  4. E

    UK: Organs to be taken without consent

    I believe there is a grass roots group somewhere in the US trying to get the same going for the US where it will become an "opt-out" decision. Your organs will be taken unless you have opted out. Much better than the way they do it now. Some many wasted organs now, because people in grief...
  5. E

    UK: Organs to be taken without consent

    I believe there is a grass roots group somewhere in the US trying to get the same going for the US where it will become an "opt-out" decision. Your organs will be taken unless you have opted out. Much better than the way they do it now. Some many wasted organs now, because people in grief...
  6. E

    I'm desperate for hope

    When Emily was born, we were told she had a 50/50 shot of seeing her 18th birthday......well she is 23, a junior in college and engaged to be married, so anything is possible. Hang in there!
  7. E

    I'm desperate for hope

    When Emily was born, we were told she had a 50/50 shot of seeing her 18th birthday......well she is 23, a junior in college and engaged to be married, so anything is possible. Hang in there!
  8. E

    I'm desperate for hope

    When Emily was born, we were told she had a 50/50 shot of seeing her 18th birthday......well she is 23, a junior in college and engaged to be married, so anything is possible. Hang in there!
  9. E

    I'm desperate for hope

    When Emily was born, we were told she had a 50/50 shot of seeing her 18th birthday......well she is 23, a junior in college and engaged to be married, so anything is possible. Hang in there!
  10. E

    I'm desperate for hope

    When Emily was born, we were told she had a 50/50 shot of seeing her 18th birthday......well she is 23, a junior in college and engaged to be married, so anything is possible. Hang in there!
  11. E

    newborn diagnosed

    I wanted to repeat Jazzy's Mom's answer about the necessity of 2 genes being necessary for CF to be diagnosed. One gene from Mom and one gene from Dad. It wasn't very clear in your post whether 2 genes had been identified or not. Like the other two answers, the severity of CF differs with...
  12. E

    newborn diagnosed

    I wanted to repeat Jazzy's Mom's answer about the necessity of 2 genes being necessary for CF to be diagnosed. One gene from Mom and one gene from Dad. It wasn't very clear in your post whether 2 genes had been identified or not. Like the other two answers, the severity of CF differs with...
  13. E

    newborn diagnosed

    I wanted to repeat Jazzy's Mom's answer about the necessity of 2 genes being necessary for CF to be diagnosed. One gene from Mom and one gene from Dad. It wasn't very clear in your post whether 2 genes had been identified or not. Like the other two answers, the severity of CF differs with...
  14. E

    Teacher 'outed' my daughter!

    I have to say I agree with Scarlett81. Bringing the Hippa law into it will only bring more attention to your daughter and if that's what you (or she) is trying to avoid, you are going about that the wrong way. If your daughter is comfortable with it, have her discuss her CF with the class so...
  15. E

    Teacher 'outed' my daughter!

    I have to say I agree with Scarlett81. Bringing the Hippa law into it will only bring more attention to your daughter and if that's what you (or she) is trying to avoid, you are going about that the wrong way. If your daughter is comfortable with it, have her discuss her CF with the class so...
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