Recent content by GG1995

WOO HOO!! Go Seminoles!! Good choice!! The weather here is pretty stable. We seem to have HOT summers. This year wasn't too bad for winter.......only a couple of days in the 20's and 30's and that was in the mornings.....it usually warms up pretty quick. We haven't had any real threats of...

I live in Florida. Where exactly are you thinking of going to college? I live in North Florida (Tallahassee to be exact) and my daughter has CF. We use the CF Center that is located down in Gainesville. I think there is one more CF Center down in Orlando. I am happy with our CF Center in...

Hey Jenny! I read that exact same article when I was researching it before I made my initial post. Great minds think alike! The hand that is shown in the picture must be a mild case because the one case that I have seen in person was WAY more severe than that. Thanks for your response. :)

How old are you? If you don't mind me asking...........Thanks!

Bill, I read that too that it was a sign of different lung problems. I was reading in one of the forums the other day about a girl that was in a meeting and she noticed someone else in the meeting that had similar features to someone with CF. Clubbed fingers was one of the traits that she spoke...

Thank you all for your replies. I was curious too because I didn't know if it happened more with any particular gene or not. I know that there are so many different genes and some affect different body parts in different ways..........so I didn't know if that had something to do with that or...

I have heard and read on this website that one of the signs of CF is that some people have clubbed fingers or distinct looking finger nails. Is this something that developes over time or are people with CF born with it? Does it happen to all people that have CF? Just curious because my daughter...

Congrats on your beautiful baby girl! Our daughter Lexi was born back in May. She had mec. illeus and had surgery at a day old. I remember how happy we were when she pooped too. Haha Thank the Lord she has been on enzymes and we haven't had a problem since. I was surprised how well she did with...

What kind of damage did they find at age 20..........was it something that you had to take medicine for and it went away or is it something that you have to take along with your other CF meds daily? Just curious. Thanks!

Yes He is Jenny!! Yes HE is!!

Sorry I haven't been on in a few weeks. My last post was the one that said "Hi, New Here!" Anywho, I just realized that I haven't told you our names! I would forget my head if it wasn't attached somedays. LOL My name is Dara DH is Jason DS is Trevor and he will be 3 on December 6......he does...

Nice to meet you!

Hi Rebekah! I just ordered and received your book. I can not wait to read it. I also plan on ordering your mother's book as well. I am a mother of a baby girl with CF. Thank you for sharing your story!

What is your secret to getting her to gain weight? We went to the CF clinic yesterday and she had only gained 1 pound in a month.........she had grown 1 1/4 inches though. Her weight is just not keeping up with her length. How much did she weigh at birth?

The CF clinic ordered an ultrasound of her liver yesterday. We will hopefully get in with the GI specialist around the 2nd week of December.