Recent content by hopefullmom

  1. H

    PTC124

    I don't ever find out about anything unless I do research myself and bug our research cordinator to death about what is coming out. I still wouldn't know about this but I have been following it for so long and makeing phone calls is how we are getting involved. You can email me anytime and...
  2. H

    PTC124

    I don't ever find out about anything unless I do research myself and bug our research cordinator to death about what is coming out. I still wouldn't know about this but I have been following it for so long and makeing phone calls is how we are getting involved. You can email me anytime and...
  3. H

    PTC124

    I don't ever find out about anything unless I do research myself and bug our research cordinator to death about what is coming out. I still wouldn't know about this but I have been following it for so long and makeing phone calls is how we are getting involved. You can email me anytime and...
  4. H

    PTC124

    I don't ever find out about anything unless I do research myself and bug our research cordinator to death about what is coming out. I still wouldn't know about this but I have been following it for so long and makeing phone calls is how we are getting involved. You can email me anytime and...
  5. H

    PTC124

    I don't ever find out about anything unless I do research myself and bug our research cordinator to death about what is coming out. I still wouldn't know about this but I have been following it for so long and makeing phone calls is how we are getting involved. You can email me anytime and...
  6. H

    PTC124

    At Ut Tyler Health Center/CF Clinic 1800-877-7777...hope that helps. If you have any other questions you can always call me also at 903-363-7309. What mutations does your daughter have? Maci has DF508 and W1282X.
  7. H

    PTC124

    At Ut Tyler Health Center/CF Clinic 1800-877-7777...hope that helps. If you have any other questions you can always call me also at 903-363-7309. What mutations does your daughter have? Maci has DF508 and W1282X.
  8. H

    PTC124

    At Ut Tyler Health Center/CF Clinic 1800-877-7777...hope that helps. If you have any other questions you can always call me also at 903-363-7309. What mutations does your daughter have? Maci has DF508 and W1282X.
  9. H

    PTC124

    At Ut Tyler Health Center/CF Clinic 1800-877-7777...hope that helps. If you have any other questions you can always call me also at 903-363-7309. What mutations does your daughter have? Maci has DF508 and W1282X.
  10. H

    PTC124

    At Ut Tyler Health Center/CF Clinic 1800-877-7777...hope that helps. If you have any other questions you can always call me also at 903-363-7309. What mutations does your daughter have? Maci has DF508 and W1282X.
  11. H

    PTC124

    We are so excited...Maci which is 7 now should be starting the ptc124 trial within a month. I will keep you all posted on how it is going, praying for great results. It has been a rough year so far!!!
  12. H

    PTC124

    We are so excited...Maci which is 7 now should be starting the ptc124 trial within a month. I will keep you all posted on how it is going, praying for great results. It has been a rough year so far!!!
  13. H

    PTC124

    We are so excited...Maci which is 7 now should be starting the ptc124 trial within a month. I will keep you all posted on how it is going, praying for great results. It has been a rough year so far!!!
  14. H

    PTC124

    We are so excited...Maci which is 7 now should be starting the ptc124 trial within a month. I will keep you all posted on how it is going, praying for great results. It has been a rough year so far!!!
  15. H

    PTC124

    We are so excited...Maci which is 7 now should be starting the ptc124 trial within a month. I will keep you all posted on how it is going, praying for great results. It has been a rough year so far!!!
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