Recent content by john81john

  1. J

    How many hours do you put into treatments and taking care of yourself?

    4,5---5,5 hours daily, with acute infection even more...
  2. J

    How many hours do you put into treatments and taking care of yourself?

    4,5---5,5 hours daily, with acute infection even more...
  3. J

    How many hours do you put into treatments and taking care of yourself?

    4,5---5,5 hours daily, with acute infection even more...
  4. J

    Bad news about denufosol trials :-(

    Hi, page was probably deleted...
  5. J

    Bad news about denufosol trials :-(

    Hi, page was probably deleted...
  6. J

    Bad news about denufosol trials :-(

    Hi, page was probably deleted...
  7. J

    Need a new nebulizer

    Hi, my choice is definitely Pari Eflow (I have european version)... link here... <a target=_blank class=ftalternatingbarlinklarge href="http://www.pari.de/en/products/lower_airways/product/detail/info/eflow_rapid-2.html">http://www.pari.de/en/products...nfo/eflow_rapid-2.html</a>
  8. J

    Need a new nebulizer

    Hi, my choice is definitely Pari Eflow (I have european version)... link here... <a target=_blank class=ftalternatingbarlinklarge href="http://www.pari.de/en/products/lower_airways/product/detail/info/eflow_rapid-2.html">http://www.pari.de/en/products...nfo/eflow_rapid-2.html</a>
  9. J

    Need a new nebulizer

    Hi, my choice is definitely Pari Eflow (I have european version)... link here... <a target=_blank class=ftalternatingbarlinklarge href="http://www.pari.de/en/products/lower_airways/product/detail/info/eflow_rapid-2.html">http://www.pari.de/en/products...nfo/eflow_rapid-2.html</a>
  10. J

    vx770 trial results

    Hi there, I have read through the NEJM G551D article figures... and I found several data very interesting... 1) there were very big improvements in sweat chloride concentrations from baseline to day 28 (people with 150mg or 250 mg drug): 9x very good improvement (40-65 points down), 2x good...
  11. J

    vx770 trial results

    Hi there, I have read through the NEJM G551D article figures... and I found several data very interesting... 1) there were very big improvements in sweat chloride concentrations from baseline to day 28 (people with 150mg or 250 mg drug): 9x very good improvement (40-65 points down), 2x good...
  12. J

    vx770 trial results

    Hi there, I have read through the NEJM G551D article figures... and I found several data very interesting... <br /> <br />1) there were very big improvements in sweat chloride concentrations from baseline to day 28 (people with 150mg or 250 mg drug): 9x very good improvement (40-65 points...
  13. J

    Ataluren-the drug that "fixes" the CF gene

    Ataluren-the drug that Hi, definitely try to participate. I'm in the 770 Phase 3 trial too, same trial as LouLou is in. In my study they are checking and controlling everything, especially first month - blood, pressure, lungs etc... I think 3rd phase is not only about safety , but its more...
  14. J

    Ataluren-the drug that "fixes" the CF gene

    Ataluren-the drug that Hi, definitely try to participate. I'm in the 770 Phase 3 trial too, same trial as LouLou is in. In my study they are checking and controlling everything, especially first month - blood, pressure, lungs etc... I think 3rd phase is not only about safety , but its more...
  15. J

    Ataluren-the drug that "fixes" the CF gene

    Ataluren-the drug that Hi, definitely try to participate. I'm in the 770 Phase 3 trial too, same trial as LouLou is in. In my study they are checking and controlling everything, especially first month - blood, pressure, lungs etc... I think 3rd phase is not only about safety , but its more...
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