Recent content by juliepie

I got new lungs the day before you <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's so good to be able to breathe! Congrats <img src="i/expressions/face-icon-small-smile.gif" border="0">

I got new lungs the day before you <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's so good to be able to breathe! Congrats <img src="i/expressions/face-icon-small-smile.gif" border="0">

I got new lungs the day before you <img src="i/expressions/face-icon-small-smile.gif" border="0"> It's so good to be able to breathe! Congrats <img src="i/expressions/face-icon-small-smile.gif" border="0">

i had pretty good luck with marinol, which was mentioned above. Another one to try is periactin. It's an anti-histimine but is often prescribed for appetite boosts. It worked really well for me, but made me SOOOO tired I would just sleep and eat and sleep. Sorry to say it, but the only...

i had pretty good luck with marinol, which was mentioned above. Another one to try is periactin. It's an anti-histimine but is often prescribed for appetite boosts. It worked really well for me, but made me SOOOO tired I would just sleep and eat and sleep. Sorry to say it, but the only...

i had pretty good luck with marinol, which was mentioned above. Another one to try is periactin. It's an anti-histimine but is often prescribed for appetite boosts. It worked really well for me, but made me SOOOO tired I would just sleep and eat and sleep. Sorry to say it, but the only...

That happened to me once, and it turned out to be the wrong antibiotics. Turns out I had a slow-growing gram-positive AFB that they didn't originally find because they didn't let the culture grow out long enough. Found it a few months later when I REALLY went downhill... took another 8 weeks...

That happened to me once, and it turned out to be the wrong antibiotics. Turns out I had a slow-growing gram-positive AFB that they didn't originally find because they didn't let the culture grow out long enough. Found it a few months later when I REALLY went downhill... took another 8 weeks...

That happened to me once, and it turned out to be the wrong antibiotics. Turns out I had a slow-growing gram-positive AFB that they didn't originally find because they didn't let the culture grow out long enough. Found it a few months later when I REALLY went downhill... took another 8 weeks...

pre-transplant, i was taking oxycodone in contrast to what one of my transplant teams was telling me. my CF doctor finally agreed that I was at the point in my disease progression that it was only 'end-stage care' and that my comfort was the most important thing she could do for me. Yes, the...

pre-transplant, i was taking oxycodone in contrast to what one of my transplant teams was telling me. my CF doctor finally agreed that I was at the point in my disease progression that it was only 'end-stage care' and that my comfort was the most important thing she could do for me. Yes, the...

pre-transplant, i was taking oxycodone in contrast to what one of my transplant teams was telling me. my CF doctor finally agreed that I was at the point in my disease progression that it was only 'end-stage care' and that my comfort was the most important thing she could do for me. Yes, the...

thanks for the pictures! i had my tx on 9/8, a month before you <img src="i/expressions/face-icon-small-smile.gif" border="0"> i wish i had had my camera on me when they called, i didn't get any photos. enjoy breathing! i know i am <img src="i/expressions/face-icon-small-smile.gif" border="0">

thanks for the pictures! i had my tx on 9/8, a month before you <img src="i/expressions/face-icon-small-smile.gif" border="0"> i wish i had had my camera on me when they called, i didn't get any photos. enjoy breathing! i know i am <img src="i/expressions/face-icon-small-smile.gif" border="0">

thanks for the pictures! i had my tx on 9/8, a month before you <img src="i/expressions/face-icon-small-smile.gif" border="0"> i wish i had had my camera on me when they called, i didn't get any photos. enjoy breathing! i know i am <img src="i/expressions/face-icon-small-smile.gif" border="0">