Recent content by kirstynkoffs

  1. K

    Candida

    Hi paulina, candida of the lungs grows because of our poor immune systems allowing the bad bacteria to overgrow the good. This is exacerbated by our constant a/b use. Candida is a fungus and loves sweet acid environments. A little word of warning about the juices though in order to alkalize you...
  2. K

    G551D Australian coming to the US for Ivacaftor (Kalydeco)

    You should contact the prince charles hospital in brisbane i think they have a patient who is purchasing the drug and im fairy sure they are not going to the states for the script. They may have found a dr who will write it up as they are so well connected.
  3. K

    G551D Australian coming to the US for Ivacaftor (Kalydeco)

    You should contact the prince charles hospital in brisbane i think they have a patient who is purchasing the drug and im fairy sure they are not going to the states for the script. They may have found a dr who will write it up as they are so well connected.
  4. K

    How do you nicely avoid things

    Anomie I am sorry but I think you are out of line. Mould is VERY dangerous. While a person/child can grow one type of 'mould' doesn't mean they can't get another. Its like saying oh well they already have PA exposing them to MRSA can't hurt. It's crazy. Mould is not good for anyone let alone a...
  5. K

    How do you nicely avoid things

    Anomie I am sorry but I think you are out of line. Mould is VERY dangerous. While a person/child can grow one type of 'mould' doesn't mean they can't get another. Its like saying oh well they already have PA exposing them to MRSA can't hurt. It's crazy. Mould is not good for anyone let alone a...
  6. K

    Whose with somebody and the parents throw insulting comments at you?

    OK for a start I dont want to start a fight here but this poor girl needs a bit of support here! Her fev1 is 33% of course she feels tired! Obviously this person doesnt get the Cf thing but maybe she feels you could be doing more to help yourself? Do you excercise - something slow and steady to...
  7. K

    Whose with somebody and the parents throw insulting comments at you?

    OK for a start I dont want to start a fight here but this poor girl needs a bit of support here! Her fev1 is 33% of course she feels tired! Obviously this person doesnt get the Cf thing but maybe she feels you could be doing more to help yourself? Do you excercise - something slow and steady to...
  8. K

    What point to worry?

    I was always aware cf'ers needed more salt however until i started at my current clinic i wasnt aware just HOW much. The australian guidelines for adults are between 4000-6000 mg daily, higher with excessive heat or excersion. Though im not sure what this translates to for children, it may be...
  9. K

    What point to worry?

    I was always aware cf'ers needed more salt however until i started at my current clinic i wasnt aware just HOW much. The australian guidelines for adults are between 4000-6000 mg daily, higher with excessive heat or excersion. Though im not sure what this translates to for children, it may be...
  10. K

    What point to worry?

    I was always aware cf'ers needed more salt however until i started at my current clinic i wasnt aware just HOW <br />much. The australian guidelines for adults are between 4000-6000 mg daily, higher with excessive heat or excersion. Though im not sure what this translates to for children, it may...
  11. K

    just spilled an entire vile of TOBI

    Take a deep breath. This is part and parcel of life with CF. Sometimes things happen but this one certainly isn't 'health-threatening'. One dose at the end of a 28 day cycle won't make a difference. Just be assured you ARE doing your best for your little girl and doing a great job. It might seem...
  12. K

    just spilled an entire vile of TOBI

    Take a deep breath. This is part and parcel of life with CF. Sometimes things happen but this one certainly isn't 'health-threatening'. One dose at the end of a 28 day cycle won't make a difference. Just be assured you ARE doing your best for your little girl and doing a great job. It might seem...
  13. K

    just spilled an entire vile of TOBI

    Take a deep breath. This is part and parcel of life with CF. Sometimes things happen but this one certainly isn't 'health-threatening'. One dose at the end of a 28 day cycle won't make a difference. Just be assured you ARE doing your best for your little girl and doing a great job. It might seem...
  14. K

    Positive Experience with TheraNaturals L-Glutathione Plus

    Cf4life has great point. Please be carefull nebbing things that are not medical grade you are putting yourself at risk. Though I understand what it's like to be desperate to do find something ANYTHING to help please consider the risks. Have you tried mucomyst nebs? Best of luck.
  15. K

    Positive Experience with TheraNaturals L-Glutathione Plus

    Cf4life has great point. Please be carefull nebbing things that are not medical grade you are putting yourself at risk. Though I understand what it's like to be desperate to do find something ANYTHING to help please consider the risks. Have you tried mucomyst nebs? Best of luck.
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