Recent content by lostreception

llith i dont think what you described is really quite RLS but kybert that sounds alot more like it. i dont get it every night in fact i never used to just here and there then all of a sudden every night so i went to my doctors after mentioning the symptoms to thm quite a few times they finally...

my 1st deal breaker was a port then i had 20 or so holes in my anticube vein on my arm and said im sick of this, the next deal breaker was transplant but after being on 02 and having alot of hymoptosis im convinced it the better option

no i havent i didnt notice it so much with the pain meds now that im home no more morphone just oxycodone so i need to let them know good news is i think they got all the problem areas this time i felt some bleeding during the emolization and told them where and they took care of it hope this...

So i just got back from my 2nd embolization surgery. the 1st one was back in feb of this year. after this one i have alot of chest pain if i breathe in too much and i dont quite remember that from the 1st one. anyone here have a pulmonary embolization as well and have this pain. im on oxcycodne...

I did for a long long time and didnt relize what it was. i was just diagnosed with RLS restless legs syndrome. when i would go to sleep i would have extra "energy" in my legs and feel the need to move them and shake them to stop the unpleasant sensations i would have in them. i found that the...

<blockquote>Quote<br><hr><i>Originally posted by: <b>bdchevy</b></i><br>Another reason statistics show that CF tx survive longer is... that we get a double lung tx where as in other deseases the recipiant might only get a single lung tx. In their cases.. they only have one fresh new lung free...

hmm im 5'7 and about 120lbs im on 11 mt18s w meals and 7 with snacks im on alot then huh wow

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ill be listed at columbia in nyc most likely i have a meeting next week with them to determine eligibiity

I've heard that the survial rate post TX is much higher for ppl with CF mainly because we are very regimented in our ways and most of us are compliant to the medications needed to be taken post TX Because most othe candidates for TX include smokers w/ emphazema and ppl with other disorders none...

im hoping this is just something non CFRD related but my left hands outermost extremety (my fingertips) are sort of numb since yesterday i was wondering has anyone else with cfrd gotten to the point where there limbs felt numb or tingly like mine do it sort of feel like i slept on it all night...

when i was younger around age 13-14 i was hospitalized about every 6 months. it was around the time of the smoking rooms comming out (by smoking rooms i mean the greenhouses with exhaust fans designed specifically for smokers) the hospital i was in had a glass bridge going between the 2 wings...

not currently but i have been in the past i participated in a pulmozyme study and the tobi study when i was younger 15-16 im 23 now and i hear there is a new TOBI study out (something about powder or something) i might consider that

im a 23 yo m w ith cf i work 40 hrs weekly in a call center as well my pfts are 40 55% well vs not welli find my self in a sitution where i have to choose: go to work and keep ins benefits VS leave work and take better care of myself with the extra time

Well last night i had lied down and felt a rumble in my chest (some blood rushing) this doesnt happen all that often but its getting more frequent i began to caugh and was literally unable to breathe because of the blood coming up there was so much i was pratically drowning. it scares me a bit...