Recent content by MamatoAlexa

  1. M

    Insights from current 661 or 809 trials

    I am still very much in the 809/770 study! The study is not being terminated.
  2. M

    Insights from current 661 or 809 trials

    I am still very much in the 809/770 study! The study is not being terminated.
  3. M

    Bad news from Vertex

    Yes, I am feeling great! I have not felt this good in years!
  4. M

    Bad news from Vertex

    Yes, I am feeling great! I have not felt this good in years!
  5. M

    Bad news from Vertex

    Just wanted to jump in and say I am in Chohort 2 of the 809/770 study, looking at higher doses of 809. I am DDF508. I took 809 or placebo for one month and then added 770 or placebo a month later. I am three weeks into taking the combo. Sadly, next Monday I will take my last dose of meds along...
  6. M

    Bad news from Vertex

    Just wanted to jump in and say I am in Chohort 2 of the 809/770 study, looking at higher doses of 809. I am DDF508. I took 809 or placebo for one month and then added 770 or placebo a month later. I am three weeks into taking the combo. Sadly, next Monday I will take my last dose of meds along...
  7. M

    adults

    I am pretty OCD about germs but this has never crossed my mind. For me this would fall into the "you have to LIVE life" category. I would not worry about it.
  8. M

    adults

    I am pretty OCD about germs but this has never crossed my mind. For me this would fall into the "you have to LIVE life" category. I would not worry about it.
  9. M

    adults

    I am pretty OCD about germs but this has never crossed my mind. For me this would fall into the "you have to LIVE life" category. I would not worry about it.
  10. M

    Tools and Tips for Visiting Disney with CF

    We are huge Disney fans. Our first trip was May 2009. After that trip we became Disney Vacation Club members and have made 3 more trips. Out next trip will be in Novemeber. Oh the wait! I got the GAC on our last trip. It was so much easier not standing in the loooong lines and trying to keep my...
  11. M

    Tools and Tips for Visiting Disney with CF

    We are huge Disney fans. Our first trip was May 2009. After that trip we became Disney Vacation Club members and have made 3 more trips. Out next trip will be in Novemeber. Oh the wait! I got the GAC on our last trip. It was so much easier not standing in the loooong lines and trying to keep my...
  12. M

    Tools and Tips for Visiting Disney with CF

    We are huge Disney fans. Our first trip was May 2009. After that trip we became Disney Vacation Club members and have made 3 more trips. Out next trip will be in Novemeber. Oh the wait! <br />I got the GAC on our last trip. It was so much easier not standing in the loooong lines and trying to...
  13. M

    Incontinence

    Add me to the list of people telling you that you are not alone! I have had two chldren naturally so that only adds to the issues! I also use it as an indicator of needing IV meds. When I break into the big bladder control pads I know it is time for IV abx. Yes, I have set my diginity aside and...
  14. M

    Incontinence

    Add me to the list of people telling you that you are not alone! I have had two chldren naturally so that only adds to the issues! I also use it as an indicator of needing IV meds. When I break into the big bladder control pads I know it is time for IV abx. Yes, I have set my diginity aside and...
  15. M

    Incontinence

    Add me to the list of people telling you that you are not alone! I have had two chldren naturally so that only adds to the issues! I also use it as an indicator of needing IV meds. When I break into the big bladder control pads I know it is time for IV abx. Yes, I have set my diginity aside and...
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