Recent content by myfanwy

Our doctors don't want to put my daughter on Septra. They want to save it for hospital use only. We used inhaled TOBI solution in the past to eradicate successfully Pseudomonas A. I just thought it would be helpful to share clinical proof that TIP is working on Steno.

We've had a rough year dealing with the colonization of a new bug, Stenotrophomonas Maltophilia which is quite med resistant. They did an experiment on my daughter's sputum in a petri dish with TIP(TOBI Pod Inhaler) which is normally used to eradicate Pseudomonas Aeruginosa. and it killed some...

We've just started Hypertonic Saline and are trying to work it into our exercise schedule. Would you go running right after a treatment or right before a treatment? Any suggestions appreciated! Dad to 10 yr old girl Myfanwy with CF

We've just started Hypertonic Saline and are trying to work it into our exercise schedule. Would you go running right after a treatment or right before a treatment? Any suggestions appreciated! Dad to 10 yr old girl Myfanwy with CF

We've just started Hypertonic Saline and are trying to work it into our exercise schedule. Would you go running right after a treatment or right before a treatment? Any suggestions appreciated! Dad to 10 yr old girl Myfanwy with CF

We've just started Hypertonic Saline and are trying to work it into our exercise schedule. Would you go running right after a treatment or right before a treatment? Any suggestions appreciated! Dad to 10 yr old girl Myfanwy with CF

We've just started Hypertonic Saline and are trying to work it into our exercise schedule. Would you go running right after a treatment or right before a treatment? Any suggestions appreciated! Dad to 10 yr old girl Myfanwy with CF

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>pjspiegle</b></i> Do you know why they don't have her on an anti-fungal such as sporonox for the aspergillis? It seems odd to me that they have her on pred without the spornox or fluconazole to treat the aspergillis. Predisone is...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>pjspiegle</b></i> Do you know why they don't have her on an anti-fungal such as sporonox for the aspergillis? It seems odd to me that they have her on pred without the spornox or fluconazole to treat the aspergillis. Predisone is...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>pjspiegle</b></i> Do you know why they don't have her on an anti-fungal such as sporonox for the aspergillis? It seems odd to me that they have her on pred without the spornox or fluconazole to treat the aspergillis. Predisone is...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>pjspiegle</b></i> Do you know why they don't have her on an anti-fungal such as sporonox for the aspergillis? It seems odd to me that they have her on pred without the spornox or fluconazole to treat the aspergillis. Predisone is...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>pjspiegle</b></i> <br />Do you know why they don't have her on an anti-fungal such as sporonox for the aspergillis? It seems odd to me that they have her on pred without the spornox or fluconazole to treat the aspergillis. Predisone...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>pjspiegle</b></i> Let us know what happens and as the prior person said, this is based off of our experience and more information might be helpful for more suggestions or a better one.</end quote></div> A sputum induction isn't...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>pjspiegle</b></i> Let us know what happens and as the prior person said, this is based off of our experience and more information might be helpful for more suggestions or a better one.</end quote></div> A sputum induction isn't...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>pjspiegle</b></i> Let us know what happens and as the prior person said, this is based off of our experience and more information might be helpful for more suggestions or a better one.</end quote></div> A sputum induction isn't...