Recent content by NathanL

We live on the coast in NC, and my wife is a patient at Duke. Both Duke and UNC have good CF centers, although UNC children's hospital is a bit nicer, but Duke has a much larger transplant center, which is something to consider for down the road. We love living in NC. The humidity can be...

Sarah Murnaghan's mother reports on Facebook that Sarah is not doing well. Still on the vent and appears to still be sedated. This is not good news. From experience, my wife and I know that trimmed lungs create much higher risks both short and long term. Praying she improves and does...

I posted this on Facebook a few days ago about Sarah's situation, so it's not necessarily targeted at those on this forum, but hopefully it will still dispel some of the misinformation about what is really happening here. Here are a few of my thoughts about This story as the husband of a...

Been married to my wife for nearly nine years. She is waiting for her second transplant. We have spent over a year living in the hospital. I have never once thought about running away, and she has never doubted that. And, I know I'm not the only person out there who is committed to their CF...

As mentioned above, different transplant centers have different rules, and the two that seem to be across the board are grapefruit and raw fish. Grapefruit can affect prograf levels (pay attention to food and drink labels for anything containing citrus), and those with suppressed immune systems...

1) Is it possible to get another transplant after the first one? I thought that this could only happen once and after these lungs are out grown or worn out or whatever, you were done. I am being told that it is possible to have more than one. It is possible, but very few transplant...

Every TX center is different, but we were told to stay away from cat litter and birds as well. We have a dog and a cat, and were told as long as they're not sleeping right up next to my wife, there shouldn't be any issues. Animals can carry lots of harmful things for TX patients just in their...

lungs were no good, but hoping for another call soon.

Tricia wanted me to post here for her to let you all know that she received a call for transplant this morning at 7am. We are at the hospital, waiting to find out if it is a go. Thanks. Nate