Recent content by VMillSM4L

A dancer! That is fantastic and congratulations on the award. My son wants to start football this year. He has one heck of an arm! Thank you for your tips on the muffins, I honestly hadn't thought about them. We are big on pancakes and eggs. We turn his scandi-shakes into actual ice cream shakes...

Thank You for your prayers and mine are with you and yours, as well. I am sorry to hear about Justin. That is so much medication in such a little time, especially considering the dose regiments. We have been so lucky with our son's immune system, so far. But on the occasions he does catch a...

They are going to consider putting him down to once a day at the next appointment. The more they consider it, the more they think it will be a good idea. I feel more comfortable with the idea now, too. It was strange that the Pulmonology consults were split down the middle as to how his dosage...

UPDATE: We finally got over the "pickiness" with his food. (Thank goodness!) In the beginning of August, my son and I spent a lovely 72 hours at All Children's for a fecal study(BATHROOM) to test his absorption levels due to not gaining weight fast enough. Had to provide food diary from the last...

School started back up on the 19th of August. By the end of the week, wouldn't you know it... his youngest brother comes home with a cold, then all his siblings, including himself dropped like flies. I immediately started calling up all the pediatricians, and the CF team. Strep culture was done...

My son doesn't have too much of a limit on what food he can eat in terms of weight gain. He can eat all day long. He's small stature, and is always on low end of scale. His weight seems to be steady growth though. No "loss". He drinks Scandi Shakes like their going out of style. I had to laugh...

We do the TV control, and have even offered up the xBox as collateral, too. lol. The Xbox works MOST of the time, TV? Half the time, the rest of the time, its "NO!". Maybe I can talk to his Pulmonologist on Tuesday if I can change his schedules to where its not overwhelming for him, like 11...

Hi, I'm new to this forum, and wanted to say hello. :) Also, I have a question for CF parents. I am the stepmother of an 11yr old, with CF (G542x) For the longest time, we never had an issue with any of his treatments or medications, but lately, he's been getting moody and unwilling to take...