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I agree with Heather. I also think pulozyme is a wonderful drug. My son started at 6 months, and has never had any issues with it. He now calls it the "Easy One". That compared to the "Hypertonic Saline 7% known in our house as the "Hot one". I think it's a huge benefit to start them young with...

I agree with Heather. I also think pulozyme is a wonderful drug. My son started at 6 months, and has never had any issues with it. He now calls it the "Easy One". That compared to the "Hypertonic Saline 7% known in our house as the "Hot one". I think it's a huge benefit to start them young with...

Hi there, Well a year ago our insurance company started refusing to pay for our sons dietician, and social worker. We decided back then we would see the social worker once a year, and continue to pay fordietician every time we came to clinic. At our last CF appointment my husband took our son...

Hi there, Well a year ago our insurance company started refusing to pay for our sons dietician, and social worker. We decided back then we would see the social worker once a year, and continue to pay fordietician every time we came to clinic. At our last CF appointment my husband took our son...

I'm 100% that my lil sister MUST be a carrier with allot of classic CF symptoms. She had sweat tests done as a child, but was always negative. She was hospitalized several times as a child for her severe asthma. The poor thing has to use the restroom 15 min after eating a cheeseburger. I firmly...

I'm 100% that my lil sister MUST be a carrier with allot of classic CF symptoms. She had sweat tests done as a child, but was always negative. She was hospitalized several times as a child for her severe asthma. The poor thing has to use the restroom 15 min after eating a cheeseburger. I firmly...

My son will only drink Carnation w/whole milk. Each week I buy 3 boxes of it. I just buy it in the store, but its not the super high cal kind. He loooooves it!! Sarah Mommy to Johnny 4 w/cf bad Bailey 2/no cf

My son will only drink Carnation w/whole milk. Each week I buy 3 boxes of it. I just buy it in the store, but its not the super high cal kind. He loooooves it!! Sarah Mommy to Johnny 4 w/cf bad Bailey 2/no cf

My thoughts and prayers are with your family. Please give us an update soon!! Sarah

My thoughts and prayers are with your family. Please give us an update soon!! Sarah

Ohhh I love this!! Good job to the entire family<img src="i/expressions/face-icon-small-smile.gif" border="0"> Sarah

Ohhh I love this!! Good job to the entire family<img src="i/expressions/face-icon-small-smile.gif" border="0"> Sarah

Wow...Very disappointing to read sarajerome's comments. Strange how some people cast so much judgement on others. That's shocking to me especially coming from a mother that has chronic disease herself. You would want support for your choices, I expect the same in return. Please don't put me on...

Wow...Very disappointing to read sarajerome's comments. Strange how some people cast so much judgement on others. That's shocking to me especially coming from a mother that has chronic disease herself. You would want support for your choices, I expect the same in return. Please don't put me on...

My son had his 1st hospital stay last Spring due to a bowel obstruction. My daughter was 19 months no/cf. My family decided early on that we always had to have a back up plan for just this issue. Plan A: My mother-in-law would keep daughter while we focused ALL our attention on our son. This...

My son had his 1st hospital stay last Spring due to a bowel obstruction. My daughter was 19 months no/cf. My family decided early on that we always had to have a back up plan for just this issue. Plan A: My mother-in-law would keep daughter while we focused ALL our attention on our son. This...

I always, always half empty enzyme shell pills. If I ever commit a crime they will be able to track my steps with enzyme casings<img src="i/expressions/face-icon-small-smile.gif" border="0"> I always have purel & wet ones. Plastic or metal spoon. Then of course a few diapers/wipes for my...

I always, always half empty enzyme shell pills. If I ever commit a crime they will be able to track my steps with enzyme casings<img src="i/expressions/face-icon-small-smile.gif" border="0"> I always have purel & wet ones. Plastic or metal spoon. Then of course a few diapers/wipes for my...

Soooooo glad you got to spend Christmas at home, with your loved ones. My heart goes out to everyone that had to spend it in the hospital<img src="i/expressions/face-icon-small-sad.gif" border="0"> Have a Happy New Year!! Sarah

Soooooo glad you got to spend Christmas at home, with your loved ones. My heart goes out to everyone that had to spend it in the hospital<img src="i/expressions/face-icon-small-sad.gif" border="0"> Have a Happy New Year!! Sarah