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    VOTE and support fellow cyster for marathon

    That's Jillian ,, It will only allow 1 vote per computer ...
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    Kalydeco

    Correct double Df508 had little respond to Kalydeco . But people with a single copy of Df508 are having marked improvement taking Kalydeco ,VX770. I am working on getting it myself.
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    Kalydeco

    Correct double Df508 had little respond to Kalydeco . But people with a single copy of Df508 are having marked improvement taking Kalydeco ,VX770. I am working on getting it myself.
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    Adults: Do You Still Let Your Parents Help You?

    I have been taking care of everything since I was 18..I am now on SS Disability, but I take my self to docs apps alone , I just take it slow and allow my self more time to walk and rest to get there on time,
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    Adults: Do You Still Let Your Parents Help You?

    I have been taking care of everything since I was 18..I am now on SS Disability, but I take my self to docs apps alone , I just take it slow and allow my self more time to walk and rest to get there on time,
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    Denied by Social Security

    I was approved on my first attempt also. I had all my paper work in order . I went in and spent about a hour and half with a SS agent. I also had my Doc write a letter to take with me then He offered 20 years of Med Records.After it got to the point where send My Doc papers to file I was...
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    Denied by Social Security

    I was approved on my first attempt also. I had all my paper work in order . I went in and spent about a hour and half with a SS agent. I also had my Doc write a letter to take with me then He offered 20 years of Med Records.After it got to the point where send My Doc papers to file I was...
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    two weeks on kalydeco!

    Hi Cindylou I just read your Week 3 ! All I can say is AMAZING !!
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    two weeks on kalydeco!

    Hi Cindylou I just read your Week 3 ! All I can say is AMAZING !!
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    Oxygen at night - terrified

    ... I use O2 at night due to mild apnea ..I did the sleep study also.It was a pain for me. I had a tough time going to sleep... My sats ranged from 93 to 96% but had some gaps. I use 1.5 ltrs... I sleep much better. Getting used to the sound of the O2 generator takes time and some of them can...
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    Oxygen at night - terrified

    ... I use O2 at night due to mild apnea ..I did the sleep study also.It was a pain for me. I had a tough time going to sleep... My sats ranged from 93 to 96% but had some gaps. I use 1.5 ltrs... I sleep much better. Getting used to the sound of the O2 generator takes time and some of them can...
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    What song do you relate your CF fight to

    There are many, but since I get angry and something my Father told me once when I was sick and near death I will have to go with " EYE OF THE TIGER " I hear it and my Father in my head every time I get sick..Thanks Poppa !
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    New game

    What ?
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    Pulmozyme with Pari LC?

    Leah Yes, the LC Plus was the preferred neb of the mfg when Pulmozyme first came out. I use the Pari LC Plus's for everything.
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    Pulmozyme with Pari LC?

    Leah Yes, the LC Plus was the preferred neb of the mfg when Pulmozyme first came out. I use the Pari LC Plus's for everything.
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    Jerry Cahill is in for lungs for real this time!

    Good Luck to ya old man ! I know you will do well...No Vaulting for a while though...
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    Jerry Cahill is in for lungs for real this time!

    Good Luck to ya old man ! I know you will do well...No Vaulting for a while though...
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    Clarification

    I was wondering what the cash price would be because I don't have a G551D.
  19. B

    Clarification

    I was wondering what the cash price would be because I don't have a G551D.
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    Clarification

    Does any one have an idea of cost if a person does Not have a G551D ??
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