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Hi Jennifer. I haven't postes much in several months because I have been so busy. I have just read this thread and wow you sound like you are on a roller coster ride like me. My daughter was diagnosed with cf about a year ago at age 12, now the cf docs aren't so sure because she only showed...

Hi Jennifer. I haven't postes much in several months because I have been so busy. I have just read this thread and wow you sound like you are on a roller coster ride like me. My daughter was diagnosed with cf about a year ago at age 12, now the cf docs aren't so sure because she only showed...

Hi Deni. Welcome to the site. I'm so sorry for all of the stress you must be feeling now. Please take comfort in knowing that others have been where you are and understand how you are feeling right now. CF is not always simple to diagnose. I can't say if I think Klaudia had CF but the tests...

Hi Deni. Welcome to the site. I'm so sorry for all of the stress you must be feeling now. Please take comfort in knowing that others have been where you are and understand how you are feeling right now. CF is not always simple to diagnose. I can't say if I think Klaudia had CF but the tests...

Hi Deni. Welcome to the site. I'm so sorry for all of the stress you must be feeling now. Please take comfort in knowing that others have been where you are and understand how you are feeling right now. CF is not always simple to diagnose. I can't say if I think Klaudia had CF but the tests...

Yes, it is an accredited cf center and that is where the sweat test was done. The genetic test was the Ambry full panel, but only showed one mutation. I was convinced she had cf until this last appt. when the cf Dr. said he wasn't so sure. He didn't rule it out, just wants to look at other...

Yes, it is an accredited cf center and that is where the sweat test was done. The genetic test was the Ambry full panel, but only showed one mutation. I was convinced she had cf until this last appt. when the cf Dr. said he wasn't so sure. He didn't rule it out, just wants to look at other...

Yes, it is an accredited cf center and that is where the sweat test was done. The genetic test was the Ambry full panel, but only showed one mutation. I was convinced she had cf until this last appt. when the cf Dr. said he wasn't so sure. He didn't rule it out, just wants to look at other...

My head is spinning with more questions than I can sort out. My 13 year old daughter had a clinic visit with the pulmonologist on Tuesday. She was diagnosed with cf a little over a year ago with sweat tests of 87 and 89. The cf clinic took her in and treated her for several months while...

My head is spinning with more questions than I can sort out. My 13 year old daughter had a clinic visit with the pulmonologist on Tuesday. She was diagnosed with cf a little over a year ago with sweat tests of 87 and 89. The cf clinic took her in and treated her for several months while...

My head is spinning with more questions than I can sort out. My 13 year old daughter had a clinic visit with the pulmonologist on Tuesday. She was diagnosed with cf a little over a year ago with sweat tests of 87 and 89. The cf clinic took her in and treated her for several months while...

This is a question that I have pondered myself. My daughter is on enzymes, vitamins, calcium, zinc, nasonex, singulair, sometimes sudafed for sinus flair ups she does acapella 2x daily and we have a nebulizer with plain albuterol as needed. Also she as an inhaler as needed. Most of her...

This is a question that I have pondered myself. My daughter is on enzymes, vitamins, calcium, zinc, nasonex, singulair, sometimes sudafed for sinus flair ups she does acapella 2x daily and we have a nebulizer with plain albuterol as needed. Also she as an inhaler as needed. Most of her...

This is a question that I have pondered myself. My daughter is on enzymes, vitamins, calcium, zinc, nasonex, singulair, sometimes sudafed for sinus flair ups she does acapella 2x daily and we have a nebulizer with plain albuterol as needed. Also she as an inhaler as needed. Most of her...

My daughter wasn't dx until age 12, up until then it was life as usual for anyone. Since the dx we haven't changed much about what she does. We do avoid smoke and smokers and noone is allowed to smoke in our home. As for pools, sleepovers, etc. we say let her live. Luckily she has mild...

My daughter wasn't dx until age 12, up until then it was life as usual for anyone. Since the dx we haven't changed much about what she does. We do avoid smoke and smokers and noone is allowed to smoke in our home. As for pools, sleepovers, etc. we say let her live. Luckily she has mild...

My daughter wasn't dx until age 12, up until then it was life as usual for anyone. Since the dx we haven't changed much about what she does. We do avoid smoke and smokers and noone is allowed to smoke in our home. As for pools, sleepovers, etc. we say let her live. Luckily she has mild...

You are exactly right about the antibiotics and viruses, I didn't want a drug for something that it could not help. I am doubting the virus diagnosis and mentioning the kid with cf was meant to make the Dr. more thorough. I will probably have to go back since I have started having sinus issues...

You are exactly right about the antibiotics and viruses, I didn't want a drug for something that it could not help. I am doubting the virus diagnosis and mentioning the kid with cf was meant to make the Dr. more thorough. I will probably have to go back since I have started having sinus issues...

You are exactly right about the antibiotics and viruses, I didn't want a drug for something that it could not help. I am doubting the virus diagnosis and mentioning the kid with cf was meant to make the Dr. more thorough. I will probably have to go back since I have started having sinus issues...