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  1. Z

    What is the name of the powder that adds calories to food?

    Can someone tell me how to purchase this stuff? Is it expensive, and do you need a prescription? We are going through a phase of refusing to eat and anything to add calories would be helpful! Thanks, Zoe, Mom to Kate 2wCF
  2. Z

    What is the name of the powder that adds calories to food?

    Can someone tell me how to purchase this stuff? Is it expensive, and do you need a prescription? We are going through a phase of refusing to eat and anything to add calories would be helpful! Thanks, Zoe, Mom to Kate 2wCF
  3. Z

    What is the name of the powder that adds calories to food?

    Can someone tell me how to purchase this stuff? Is it expensive, and do you need a prescription? We are going through a phase of refusing to eat and anything to add calories would be helpful! Thanks, Zoe, Mom to Kate 2wCF
  4. Z

    What is the name of the powder that adds calories to food?

    Can someone tell me how to purchase this stuff? Is it expensive, and do you need a prescription? We are going through a phase of refusing to eat and anything to add calories would be helpful! Thanks, Zoe, Mom to Kate 2wCF
  5. Z

    What is the name of the powder that adds calories to food?

    Can someone tell me how to purchase this stuff? Is it expensive, and do you need a prescription? We are going through a phase of refusing to eat and anything to add calories would be helpful! Thanks, Zoe, Mom to Kate 2wCF
  6. Z

    Question to Parents of children with CF

    OK, now I'm getting concerned. My daughter is a little over 2 and she is not on any nebs at this time. We've been doing CPT since 2 months when she was diagnosed, but no nebs at all. I guess I'll ask about that at our next clinic in Feb. I'm pregnant with our second (no idea about CF in this...
  7. Z

    Question to Parents of children with CF

    OK, now I'm getting concerned. My daughter is a little over 2 and she is not on any nebs at this time. We've been doing CPT since 2 months when she was diagnosed, but no nebs at all. I guess I'll ask about that at our next clinic in Feb. I'm pregnant with our second (no idea about CF in this...
  8. Z

    Question to Parents of children with CF

    OK, now I'm getting concerned. My daughter is a little over 2 and she is not on any nebs at this time. We've been doing CPT since 2 months when she was diagnosed, but no nebs at all. I guess I'll ask about that at our next clinic in Feb. I'm pregnant with our second (no idea about CF in this...
  9. Z

    Question to Parents of children with CF

    OK, now I'm getting concerned. My daughter is a little over 2 and she is not on any nebs at this time. We've been doing CPT since 2 months when she was diagnosed, but no nebs at all. I guess I'll ask about that at our next clinic in Feb. I'm pregnant with our second (no idea about CF in this...
  10. Z

    Question to Parents of children with CF

    OK, now I'm getting concerned. My daughter is a little over 2 and she is not on any nebs at this time. We've been doing CPT since 2 months when she was diagnosed, but no nebs at all. I guess I'll ask about that at our next clinic in Feb. I'm pregnant with our second (no idea about CF in this...
  11. Z

    PTC 124 ?

    Hey Maeve! We see Dr. Cannon too! We think she is just wonderful and have been so happy with the clinic there. Luckily, they have kept Kate very healthy and are very proactive. Zoe, mom to Kate, 2 wCF
  12. Z

    PTC 124 ?

    Hey Maeve! We see Dr. Cannon too! We think she is just wonderful and have been so happy with the clinic there. Luckily, they have kept Kate very healthy and are very proactive. Zoe, mom to Kate, 2 wCF
  13. Z

    PTC 124 ?

    Hey Maeve! We see Dr. Cannon too! We think she is just wonderful and have been so happy with the clinic there. Luckily, they have kept Kate very healthy and are very proactive. Zoe, mom to Kate, 2 wCF
  14. Z

    PTC 124 ?

    Hey Maeve! We see Dr. Cannon too! We think she is just wonderful and have been so happy with the clinic there. Luckily, they have kept Kate very healthy and are very proactive. Zoe, mom to Kate, 2 wCF
  15. Z

    PTC 124 ?

    Hey Maeve! We see Dr. Cannon too! We think she is just wonderful and have been so happy with the clinic there. Luckily, they have kept Kate very healthy and are very proactive. Zoe, mom to Kate, 2 wCF
  16. Z

    PTC 124 ?

    I am excited to hear this news too! We go to St. Louis Children's Hospital (Washington University) and my daughter's doctor said it is looking really good in the trials and that it would essentially be a "cure" for those with the nonsense mutations. I didn't know about the pediatric trials...
  17. Z

    PTC 124 ?

    I am excited to hear this news too! We go to St. Louis Children's Hospital (Washington University) and my daughter's doctor said it is looking really good in the trials and that it would essentially be a "cure" for those with the nonsense mutations. I didn't know about the pediatric trials...
  18. Z

    PTC 124 ?

    I am excited to hear this news too! We go to St. Louis Children's Hospital (Washington University) and my daughter's doctor said it is looking really good in the trials and that it would essentially be a "cure" for those with the nonsense mutations. I didn't know about the pediatric trials...
  19. Z

    PTC 124 ?

    I am excited to hear this news too! We go to St. Louis Children's Hospital (Washington University) and my daughter's doctor said it is looking really good in the trials and that it would essentially be a "cure" for those with the nonsense mutations. I didn't know about the pediatric trials...
  20. Z

    PTC 124 ?

    I am excited to hear this news too! We go to St. Louis Children's Hospital (Washington University) and my daughter's doctor said it is looking really good in the trials and that it would essentially be a "cure" for those with the nonsense mutations. I didn't know about the pediatric trials...
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