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UPDATE!! The CF Foundation Education Committtee has approved three of our pamphlets: Life After the Diagnosis,Caring for Your Infant, and Caring for Your Toddler and Preschooler. They are now printed and ready for mailing. If you would like a hard copy, please send Lisa a note via her website at...

UPDATE!! The CF Foundation Education Committtee has approved three of our pamphlets: Life After the Diagnosis,Caring for Your Infant, and Caring for Your Toddler and Preschooler. They are now printed and ready for mailing. If you would like a hard copy, please send Lisa a note via her website at...

Lots of great thoughts here. I agree thereare things that affect the stats that might not be seen. For example, our center, Seattle Children's Hosp has great docs. Dr. Bonnie Ramsey invented Tobi. They are aggressive and want to slow progression in every way possible. Their FEV is at the top...

Lots of great thoughts here. I agree thereare things that affect the stats that might not be seen. For example, our center, Seattle Children's Hosp has great docs. Dr. Bonnie Ramsey invented Tobi. They are aggressive and want to slow progression in every way possible. Their FEV is at the top...

Lots of great thoughts here. I agree thereare things that affect the stats that might not be seen. For example, our center, Seattle Children's Hosp has great docs. Dr. Bonnie Ramsey invented Tobi. They are aggressive and want to slow progression in every way possible. Their FEV is at the top...

<br>We have two systems.We had the Hill Rom "Vest" for a very long time, both kids shared it. Then it was time to get another one and my daughter tried them all and chose the SmartVest for it's comfort. She did not like the puffiness in the chest area of the Vest and was thinking ahead for when...

<br>We have two systems.We had the Hill Rom "Vest" for a very long time, both kids shared it. Then it was time to get another one and my daughter tried them all and chose the SmartVest for it's comfort. She did not like the puffiness in the chest area of the Vest and was thinking ahead for when...

<br>We have two systems.We had the Hill Rom "Vest" for a very long time, both kids shared it. Then it was time to get another one and my daughter tried them all and chose the SmartVest for it's comfort. She did not like the puffiness in the chest area of the Vest and was thinking ahead for when...

Hi All, I just posted a new blog for a series I am writing about Back to School with Medical Issues. You can read it in the cysticfibrosis.com blogs or you can click on my blog at <A title="http://www.happyheartfamilies.blogspot.com/ " href="http://www.happyheartfamilies.blogspot.com/ "...

Hi All, I just posted a new blog for a series I am writing about Back to School with Medical Issues. You can read it in the cysticfibrosis.com blogs or you can click on my blog at <A title="http://www.happyheartfamilies.blogspot.com/ " href="http://www.happyheartfamilies.blogspot.com/ "...

Hi All, <BR>I just posted a new blog for a series I am writing about Back to School with Medical Issues. <BR><BR>You can read it in the cysticfibrosis.com blogs or you can click on my blog at <A title="http://www.happyheartfamilies.blogspot.com/ "...

Thanks Bill for reiterating your "caviats" and the references to this research paper. Very interesting- we are on Creon. I will keep this in my files if ever needed down the road. I wonder if there has been anything published more recently. Thanks again, Lisa

Thanks Bill for reiterating your "caviats" and the references to this research paper. Very interesting- we are on Creon. I will keep this in my files if ever needed down the road. I wonder if there has been anything published more recently. Thanks again, Lisa

Thanks Bill for reiterating your "caviats" and the references to this research paper. Very interesting- we are on Creon. I will keep this in my files if ever needed down the road. I wonder if there has been anything published more recently. Thanks again, Lisa

<P>Thanks Harriett! I'll PM you. Thx for being my "fact checker." :-) This is pretty complicated stuff! </P> <P> </P> <P>I've been lucky over the years because a health plan worked well for us (the teacher letter that I use- on my site at <A...

<P>Thanks Harriett! I'll PM you. Thx for being my "fact checker." :-) This is pretty complicatedstuff! </P> <P></P> <P>I've been lucky over the years because a health plan workedwell for us (the teacher letter that I use- on my site at <A...

<P><BR>Thanks Harriett! I'll PM you. Thx for being my "fact checker." :-) This is pretty complicatedstuff! </P> <P></P> <P>I've been lucky over the years because a health plan workedwell for us (the teacher letter that I use- on my site at <A...

<P>You're right Harriett, well said. I know someone who got this and ended up having a large part of the colon removed. Not pretty. <img src="i/expressions/face-icon-small-sad.gif" border="0">   </P> <P> </P> <P>And, Bill, I am so glad this is working for you. I will definitely keep your info in...

<P>You're right Harriett, well said.I know someone who got this and ended up having a large part of the colon removed. Not pretty. <img src="i/expressions/face-icon-small-sad.gif" border="0"> </P> <P></P> <P>And, Bill, I am so glad this is working for you. I will definitely keep your info in...

<P>You're right Harriett, well said.I know someone who got this and ended up having a large part of the colon removed. Not pretty. <img src="i/expressions/face-icon-small-sad.gif" border="0"> </P> <P></P> <P>And, Bill, I am so glad this is working for you. I will definitely keep your info in...