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  1. L

    just spilled an entire vile of TOBI

    Thanks Harriett for clarifying the compressor question. That's a great article you referenced. There is so much to keep on top of with CF, isn't there? I am so glad we have a place to go when we get stuck! Hugs, Lisa
  2. L

    just spilled an entire vile of TOBI

    Thanks Harriett for clarifying the compressor question. That's a great article you referenced. There is so much to keep on top of with CF, isn't there? I am so glad we have a place to go when we get stuck! Hugs, Lisa<BR>
  3. L

    just spilled an entire vile of TOBI

    Zoe, You are fine. You are a great mom and human, too! :-) We've done that (just wait till your daughter is doing it herself; accidents happen). Our doc has told us it's ok to miss a treatment- just one- if something happens. As far as the compressor, I'd call your docs office if they are the...
  4. L

    just spilled an entire vile of TOBI

    Zoe, You are fine. You are a great mom and human, too! :-) We've done that (just wait till your daughter is doing it herself; accidents happen). Our doc has told us it's ok to miss a treatment- just one- if something happens. As far as the compressor, I'd call your docs office if they are the...
  5. L

    just spilled an entire vile of TOBI

    Zoe, <br />You are fine. You are a great mom and human, too! :-) We've done that (just wait till your daughter is doing it herself; accidents happen). Our doc has told us it's ok to miss a treatment- just one- if something happens. As far as the compressor, I'd call your docs office if they are...
  6. L

    is anyone having trouble posting here?

    Hi Ennio! How are you? Thx for helping me. :-) Here is where I lost my long post: Topic Title: Weight gain help Topic Summary: BMI for 6 yr. old is low
  7. L

    is anyone having trouble posting here?

    Hi Ennio! How are you? Thx for helping me. :-) Here is where I lost my long post: Topic Title: Weight gain help Topic Summary: BMI for 6 yr. old is low
  8. L

    is anyone having trouble posting here?

    Hi Ennio! How are you? Thx for helping me. :-) Here is where I lost my long post: Topic Title: Weight gain help <br />Topic Summary: BMI for 6 yr. old is low <br />
  9. L

    Marriage and CF

    Hi All, I am working on some new resources to help us (including me!!) navigate the marriage/ couples relationship when we have kids with CF. I've heard it said that having a child with a chronic illness can bring a couple together or tear them apart. For us, it's really done both. And the good...
  10. L

    Marriage and CF

    Hi All, I am working on some new resources to help us (including me!!) navigate the marriage/ couples relationship when we have kids with CF. I've heard it said that having a child with a chronic illness can bring a couple together or tear them apart. For us, it's really done both. And the good...
  11. L

    Marriage and CF

    Hi All, I am working on some new resources to help us (including me!!) navigate the marriage/ couples relationship when we have kids with CF. I've heard it said that having a child with a chronic illness can bring a couple together or tear them apart. For us, it's really done both. And the good...
  12. L

    Marriage and CF

    Hi All, I am working on some new resources to help us (including me!!) navigate the marriage/ couples relationship when we have kids with CF. I've heard it said that having a child with a chronic illness can bring a couple together or tear them apart. For us, it's really done both. And the good...
  13. L

    Marriage and CF

    Hi All, I am working on some new resources to help us (including me!!) navigate the marriage/ couples relationship when we have kids with CF. I've heard it said that having a child with a chronic illness can bring a couple together or tear them apart. For us, it's really done both. And the good...
  14. L

    Marriage and CF

    Hi All, I am working on some new resources to help us (including me!!) navigate the marriage/ couples relationship when we have kids with CF. I've heard it said that having a child with a chronic illness can bring a couple together or tear them apart. For us, it's really done both. And the good...
  15. L

    What is the end of life for a CFer like?

    Wow, ya'll. Thanks for sharing this. It's a hard question to ask, answer and read about. As the mom of 2 kids with CF, I have learned alot, although not easy to read. But I think I will be better able to prepare myself, and them, when (and if) the time comes. Plus I have learned ways to care for...
  16. L

    What is the end of life for a CFer like?

    Wow, ya'll. Thanks for sharing this. It's a hard question to ask, answer and read about. As the mom of 2 kids with CF, I have learned alot, although not easy to read. But I think I will be better able to prepare myself, and them, when (and if) the time comes. Plus I have learned ways to care for...
  17. L

    What is the end of life for a CFer like?

    Wow, ya'll. Thanks for sharing this. It's a hard question to ask, answer and read about. As the mom of 2 kids with CF, I have learned alot, although not easy to read. But I think I will be better able to prepare myself, and them, when (and if) the time comes. Plus I have learned ways to care for...
  18. L

    "Winning with CF" Live Presentations

    Next workshop: Des Moines, IA at Blank Children's Hospital on June 18th. You can PM me for registration information. Hope to see you there! Lisa
  19. L

    "Winning with CF" Live Presentations

    Next workshop: Des Moines, IA at Blank Children's Hospital on June 18th. You can PM me for registration information. Hope to see you there! Lisa
  20. L

    "Winning with CF" Live Presentations

    Next workshop: Des Moines, IA at Blank Children's Hospital on June 18th. You can PM me for registration information. Hope to see you there! Lisa
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