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  1. L

    What do you do to discourage pseudomonas while keeping your child happily "normal"?

    Hi Edan, This is such a tough question and there are opinions about this across the board. But I can give you my ideas about what has worked for us and what I know about healthy child development. So, first of all, as much as we try, we can't avoid our child getting pseud. My son got it at...
  2. L

    Tools and Tips for Visiting Disney with CF

    Thanks Carrie! I couldn't remember for sure. I'll change it on my article. May is a great time to go- less crowds and perfect weather. Cheers!
  3. L

    Tools and Tips for Visiting Disney with CF

    Thanks Carrie! I couldn't remember for sure. I'll change it on my article. May is a great time to go- less crowds and perfect weather. Cheers!
  4. L

    Tools and Tips for Visiting Disney with CF

    Thanks Carrie! I couldn't remember for sure. I'll change it on my article. May is a great time to go- less crowds and perfect weather. Cheers!
  5. L

    Tools and Tips for Visiting Disney with CF

    Hi All, The recent newsletter that included a thread on Disney inspired me to write about Disney and CF- something that's been on my To Do list for about a year! So, here it is. Please add your own tips, too. Enjoy your trip! :-) <b>Tools and Tips for Enjoying Disney World with Cystic...
  6. L

    Tools and Tips for Visiting Disney with CF

    Hi All, The recent newsletter that included a thread on Disney inspired me to write about Disney and CF- something that's been on my To Do list for about a year! So, here it is. Please add your own tips, too. Enjoy your trip! :-) <b>Tools and Tips for Enjoying Disney World with Cystic...
  7. L

    Tools and Tips for Visiting Disney with CF

    Hi All, <br />The recent newsletter that included a thread on Disney inspired me to write about Disney and CF- something that's been on my To Do list for about a year! <br /> <br />So, here it is. Please add your own tips, too. <br /> <br />Enjoy your trip! :-) <br /> <br /><b>Tools and Tips...
  8. L

    CF Author Leah Orr on Lifetime TV with new book Messy Tessy

    Great interview Leah! Best wishes on your goal to reach $1 mil. Take care.
  9. L

    CF Author Leah Orr on Lifetime TV with new book Messy Tessy

    Great interview Leah! Best wishes on your goal to reach $1 mil. Take care.
  10. L

    CF Author Leah Orr on Lifetime TV with new book Messy Tessy

    Great interview Leah! Best wishes on your goal to reach $1 mil. Take care.
  11. L

    New Insurance won't let us use CF pharmacy

    We went through the very same thing and it was so frustrating. It took me months to get all of the prescriptions straightened out. But, it did eventually get worked out and is fine now although, I agree, I hate not supporting the CF Pharmacies. You might be able to get your CF Pharmacy call...
  12. L

    New Insurance won't let us use CF pharmacy

    We went through the very same thing and it was so frustrating. It took me months to get all of the prescriptions straightened out. But, it did eventually get worked out and is fine now although, I agree, I hate not supporting the CF Pharmacies. You might be able to get your CF Pharmacy call...
  13. L

    New Insurance won't let us use CF pharmacy

    We went through the very same thing and it was so frustrating. It took me months to get all of the prescriptions straightened out. But, it did eventually get worked out and is fine now although, I agree, I hate not supporting the CF Pharmacies. <br /> <br />You might be able to get your CF...
  14. L

    Summer Camp and CF

    Hi Blake, Thanks for taking the time to reply. You have alot of great thoughts about this. Funny- my son is going to his first Boy Scout Camp this summer. It's a whole week and I am a little nervous but mostly excited for him. Your comments help me to be more relaxed about it. You are right, he...
  15. L

    Summer Camp and CF

    Hi Blake, Thanks for taking the time to reply. You have alot of great thoughts about this. Funny- my son is going to his first Boy Scout Camp this summer. It's a whole week and I am a little nervous but mostly excited for him. Your comments help me to be more relaxed about it. You are right, he...
  16. L

    Summer Camp and CF

    Hi Blake, <br />Thanks for taking the time to reply. You have alot of great thoughts about this. Funny- my son is going to his first Boy Scout Camp this summer. It's a whole week and I am a little nervous but mostly excited for him. Your comments help me to be more relaxed about it. You are...
  17. L

    Summer camp and CF

    I posted a request for tips on the Teenagers/ Young People forum. I know they will have some good advice for us! I'll copy them here as they reply. Thanks, Blake, for your great ideas. Lisa ********** Hey Lisa, I don't have kids myself but I do have CF, and I attended scout camp yearly when I...
  18. L

    Summer camp and CF

    I posted a request for tips on the Teenagers/ Young People forum. I know they will have some good advice for us! I'll copy them here as they reply. Thanks, Blake, for your great ideas. Lisa ********** Hey Lisa, I don't have kids myself but I do have CF, and I attended scout camp yearly when I...
  19. L

    Summer camp and CF

    I posted a request for tips on the Teenagers/ Young People forum. I know they will have some good advice for us! I'll copy them here as they reply. Thanks, Blake, for your great ideas. Lisa <br /> <br />********** <br /> <br />Hey Lisa, I don't have kids myself but I do have CF, and I attended...
  20. L

    Summer Camp and CF

    Hi All, As I am getting paperwork ready for my two kids with CF to attend a couple of camps, I thought it might be fun to get your tips about what helps you enjoy and take good care of yourself at camp- how do you get your breathing treatments done, manage your meds, and stay healthy? Do you...
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