Search results

  1. N

    Tobi SOB

    For years I did TOBI on and off one month but then I started feeling worse the months I was on. I had them do PFTs before the TOBI month and then at the end and my lung function dropped by the end of the month. I don't think I'm resistant to it (I can still do IV Tobra to an extent) so I just...
  2. N

    Tobi SOB

    For years I did TOBI on and off one month but then I started feeling worse the months I was on. I had them do PFTs before the TOBI month and then at the end and my lung function dropped by the end of the month. I don't think I'm resistant to it (I can still do IV Tobra to an extent) so I just...
  3. N

    Exercise

    With the low lung function I have (less than 30% FEV1) the most I ever really do is walk. SOMETIMES I manage a flight of stairs, but I usually I take elevators. Lately, I've been more motivated to actually go to a park and walk since the weather has been nice. I think as long as you get 30...
  4. N

    Exercise

    With the low lung function I have (less than 30% FEV1) the most I ever really do is walk. SOMETIMES I manage a flight of stairs, but I usually I take elevators. Lately, I've been more motivated to actually go to a park and walk since the weather has been nice. I think as long as you get 30...
  5. N

    Exercise

    With the low lung function I have (less than 30% FEV1) the most I ever really do is walk. SOMETIMES I manage a flight of stairs, but I usually I take elevators. Lately, I've been more motivated to actually go to a park and walk since the weather has been nice. I think as long as you get 30...
  6. N

    Exercise

    With the low lung function I have (less than 30% FEV1) the most I ever really do is walk. SOMETIMES I manage a flight of stairs, but I usually I take elevators. Lately, I've been more motivated to actually go to a park and walk since the weather has been nice. I think as long as you get 30...
  7. N

    Exercise

    With the low lung function I have (less than 30% FEV1) the most I ever really do is walk. SOMETIMES I manage a flight of stairs, but I usually I take elevators. Lately, I've been more motivated to actually go to a park and walk since the weather has been nice. I think as long as you get 30...
  8. N

    pain in legs and headaches

    I don't have leg pain, but sometimes I feel like the skin on my feet and legs crawl at night when I'm trying to get to sleep. Sorry I can't help with that. I get headaches from huge bouts of coughing sometimes. The blood rushes to your head when we cough as hard as we do, so headaches are...
  9. N

    pain in legs and headaches

    I don't have leg pain, but sometimes I feel like the skin on my feet and legs crawl at night when I'm trying to get to sleep. Sorry I can't help with that. I get headaches from huge bouts of coughing sometimes. The blood rushes to your head when we cough as hard as we do, so headaches are...
  10. N

    pain in legs and headaches

    I don't have leg pain, but sometimes I feel like the skin on my feet and legs crawl at night when I'm trying to get to sleep. Sorry I can't help with that. I get headaches from huge bouts of coughing sometimes. The blood rushes to your head when we cough as hard as we do, so headaches are...
  11. N

    pain in legs and headaches

    I don't have leg pain, but sometimes I feel like the skin on my feet and legs crawl at night when I'm trying to get to sleep. Sorry I can't help with that. I get headaches from huge bouts of coughing sometimes. The blood rushes to your head when we cough as hard as we do, so headaches are...
  12. N

    pain in legs and headaches

    I don't have leg pain, but sometimes I feel like the skin on my feet and legs crawl at night when I'm trying to get to sleep. Sorry I can't help with that. <br />I get headaches from huge bouts of coughing sometimes. The blood rushes to your head when we cough as hard as we do, so headaches are...
  13. N

    colistyn

    Sorry to confuse you even further, but I use both sterile water AND 0.9% sodium chloride. I got this information from my pediatric nutritionist who has given me such great advice over the years. But I HAVE had others tell me differently. I wish a CF chemist or someone who knows their stuff would...
  14. N

    colistyn

    Sorry to confuse you even further, but I use both sterile water AND 0.9% sodium chloride. I got this information from my pediatric nutritionist who has given me such great advice over the years. But I HAVE had others tell me differently. I wish a CF chemist or someone who knows their stuff would...
  15. N

    colistyn

    Sorry to confuse you even further, but I use both sterile water AND 0.9% sodium chloride. I got this information from my pediatric nutritionist who has given me such great advice over the years. But I HAVE had others tell me differently. I wish a CF chemist or someone who knows their stuff would...
  16. N

    colistyn

    Sorry to confuse you even further, but I use both sterile water AND 0.9% sodium chloride. I got this information from my pediatric nutritionist who has given me such great advice over the years. But I HAVE had others tell me differently. I wish a CF chemist or someone who knows their stuff would...
  17. N

    colistyn

    Sorry to confuse you even further, but I use both sterile water AND 0.9% sodium chloride. I got this information from my pediatric nutritionist who has given me such great advice over the years. But I HAVE had others tell me differently. I wish a CF chemist or someone who knows their stuff would...
  18. N

    Saline/Nasal rinse with Pulmicort

    I started using Pulmicort in my nasal rinses in late november. I had been looking for something to add to my saline to help with inflammation and I can honestly say that I think it helps keep things open. I had sinus surgery in Oct and have seen my ENT 3 times since then and its been very clear...
  19. N

    Saline/Nasal rinse with Pulmicort

    I started using Pulmicort in my nasal rinses in late november. I had been looking for something to add to my saline to help with inflammation and I can honestly say that I think it helps keep things open. I had sinus surgery in Oct and have seen my ENT 3 times since then and its been very clear...
  20. N

    Saline/Nasal rinse with Pulmicort

    I started using Pulmicort in my nasal rinses in late november. I had been looking for something to add to my saline to help with inflammation and I can honestly say that I think it helps keep things open. I had sinus surgery in Oct and have seen my ENT 3 times since then and its been very clear...
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