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42 y/o. FEV1 in the 80s. To bcl0328's question, some 'secrets': exercise regularly, stay very hydrated, drink a lot of green tea, keep mentally positive and motivated in life, take therapies seriously.

Yes, Dr. Walker is my doctor at BI. Great staff!

The pediatric doctor at the CF clinic at Beth Israel is Dr. Maria N. Berdella. Phone number is (212) 420-4100. This link has more information on Dr. Berdella: http://livewellnewyork.com/maria-n-berdella-md

I don't know the doctor's at Columbia, but there is Dr. Patricia Walker from the CF clinic at Beth Israel hospital in NY City. They have a wonderful staff.

My sister who was diagnosed with CF had all the symptoms you described: the hands, digestive issues, allergies, post-nasal. She even had Hashimoto's and a number of other things. I had the hand thing when I was younger as well when I would stay in the water long. I would recommend a sweat test...

It's gotten a little better the last 2 days. Maybe my body needs to get used to it? I'll see how I do over the next few days. Thanks

Thanks for your responses.

I started using Advair about two weeks ago and have been diligent in rinsing after each use. I also use a spacer to administer the doses. I now find my voice to be really hoarse and is coming in and out over the past 4 days. Is this to be expected with the use of advair? Any similar experiences?

I am currently pancreatic sufficient but I am curious to know how many of you started out pancreatic sufficient and then became insufficient over time? How long were you PS and when did you become PI? Were there subtle signs before you got formally tested/received a formal diagnosis?

I have United Healthcare thru work and covers all costs. They covered my vest completely, all my doctor visits are covered less $20 copay. My prescriptions are covered less copays. I probably spend about $100 per month on meds and $20 per doctor visit plus $20 for any diagnostic testing...

From when my doctor put in the prescription I actually received it 5 weeks later. A nurse came by that same evening to show me how to use it. However, a couple of days after my doctor's office had sent in the prescription the vest manufacturer called me so I knew it was in the works. If you...

Check out these two links that may help you out. http://www.cff.org/treatments/Therapies/Respiratory/TOBI/index.cfm?dspPrintReady=Y. and http://www.cff.org/treatments/Therapies/Respiratory/Pulmozyme/

Anything green (trees, weeds, grass, etc..) and cats.

I will do exercises ( push ups, crunches, aerobics, light weights) about 4 times a week for about 45 minutes for each session. Gets the heart pumping and gets lungs moving stuff out. I'll usually do it after my vest treatment.

He should go get a simple sweat test considering what you have stated. Better to know than not to.

I too believe exercise fights infections. The stronger you are the better your body fights illness. The key is to get an exercise routine that works for a person and stick with it. Discipline and will power are needed. The benefits will then come.