Search results

  1. K

    Going to DisneyWorld

    <BR>Hi everyone, I know this has been covered before, but I am going to DisneyWorld in two weeks and have some questions. I know there is a way to avoid having to wait in all the long lines for rides since I have CF, but what do I have to do?? I think I remember reading before that a doctor's...
  2. K

    Port Accessed and Shower questions

    My port is in the side of my boob and I feel like I am accessed all the time. I shower every day. I have a rectangle tegaderm over it. I only need to change it every 4 days or so. When I use the dressings from the dressing change kit, they only last one day for me which is why I go for the...
  3. K

    Port Accessed and Shower questions

    My port is in the side of my boob and I feel like I am accessed all the time. I shower every day. I have a rectangle tegaderm over it. I only need to change it every 4 days or so. When I use the dressings from the dressing change kit, they only last one day for me which is why I go for the...
  4. K

    Port Accessed and Shower questions

    My port is in the side of my boob and I feel like I am accessed all the time. I shower every day. I have a rectangle tegaderm over it. I only need to change it every 4 days or so. When I use the dressings from the dressing change kit, they only last one day for me which is why I go for the...
  5. K

    inhaled levaquin study

    I am participating in a study, but it's with Levofloxin inhaled compared to TOBI to treat Pseudomonis. There are no placebos in the study I am in. You either get Levofloxin or TOBI...I got TOBI. I have been on/off TOBI for years already, so no biggie, but this time, I have a rash all over my...
  6. K

    inhaled levaquin study

    I am participating in a study, but it's with Levofloxin inhaled compared to TOBI to treat Pseudomonis. There are no placebos in the study I am in. You either get Levofloxin or TOBI...I got TOBI. I have been on/off TOBI for years already, so no biggie, but this time, I have a rash all over my...
  7. K

    inhaled levaquin study

    I am participating in a study, but it's with Levofloxin inhaled compared to TOBI to treat Pseudomonis. There are no placebos in the study I am in. You either get Levofloxin or TOBI...I got TOBI. I have been on/off TOBI for years already, so no biggie, but this time, I have a rash all over my...
  8. K

    port surgery questions

    Hi Liz, yes, when I am accessed for antibiotics, there is always a tube that I just hook up the meds to. The only thing is that when I am accessed, the needle is only good for 7 days and then needs to be changed. I am comfortable taking my own needle out, so I take it out, shower and shave my...
  9. K

    port surgery questions

    Hi Liz, yes, when I am accessed for antibiotics, there is always a tube that I just hook up the meds to. The only thing is that when I am accessed, the needle is only good for 7 days and then needs to be changed. I am comfortable taking my own needle out, so I take it out, shower and shave my...
  10. K

    port surgery questions

    Hi Liz, yes, when I am accessed for antibiotics, there is always a tube that I just hook up the meds to. The only thing is that when I am accessed, the needle is only good for 7 days and then needs to be changed. I am comfortable taking my own needle out, so I take it out, shower and shave my...
  11. K

    port surgery questions

    I have had my port for 11 years. I don't remember much about getting it placed, but I don't think I had to go back to have the stiches removed. Also, I was placed under "conscious sedation" which means they give you lots of drugs to make you loopy but not put you under. I am super sensitive to...
  12. K

    port surgery questions

    I have had my port for 11 years. I don't remember much about getting it placed, but I don't think I had to go back to have the stiches removed. Also, I was placed under "conscious sedation" which means they give you lots of drugs to make you loopy but not put you under. I am super sensitive to...
  13. K

    port surgery questions

    I have had my port for 11 years. I don't remember much about getting it placed, but I don't think I had to go back to have the stiches removed. Also, I was placed under "conscious sedation" which means they give you lots of drugs to make you loopy but not put you under. I am super sensitive to...
  14. K

    SSDI

    Yes! I was on it when I was very young.
  15. K

    SSDI

    Yes! I was on it when I was very young.
  16. K

    SSDI

    Yes! I was on it when I was very young.
  17. K

    Port Information for family members...

    I was hesitant to get a port, but I did finally get one. I have had it for 11 years and LOVE it!! I have never had any issues with it either. Also, I had mine placed in the side of my breast, because I am super boney too. I can wear tank tops, swimsuits, etc and you never see it!! Good luck!
  18. K

    Port Information for family members...

    I was hesitant to get a port, but I did finally get one. I have had it for 11 years and LOVE it!! I have never had any issues with it either. Also, I had mine placed in the side of my breast, because I am super boney too. I can wear tank tops, swimsuits, etc and you never see it!! Good luck!
  19. K

    Port Information for family members...

    I was hesitant to get a port, but I did finally get one. I have had it for 11 years and LOVE it!! I have never had any issues with it either. Also, I had mine placed in the side of my breast, because I am super boney too. I can wear tank tops, swimsuits, etc and you never see it!! Good luck!
  20. K

    Med's-Miscarriage

    Just wondering why you were still on birth control if you were pregnant?? Maybe that had something to do with it?? Have you looked into Zithromax and pregnancy? Antibiotics usually aren't good during pregnacy. I was on everything else you mentioned (except birth control and zithromax) during my...
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