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Ah yes, the good ol' "monitoring output" job of a CF parent. <img src="i/expressions/face-icon-small-wink.gif" border="0"> So glad you are home and hopefully enjoying a relaxing long weekend.

Ah yes, the good ol' "monitoring output" job of a CF parent. <img src="i/expressions/face-icon-small-wink.gif" border="0"> So glad you are home and hopefully enjoying a relaxing long weekend.

Ah yes, the good ol' "monitoring output" job of a CF parent. <img src="i/expressions/face-icon-small-wink.gif" border="0"> So glad you are home and hopefully enjoying a relaxing long weekend.

Ah yes, the good ol' "monitoring output" job of a CF parent. <img src="i/expressions/face-icon-small-wink.gif" border="0"> So glad you are home and hopefully enjoying a relaxing long weekend.

Ah yes, the good ol' "monitoring output" job of a CF parent. <img src="i/expressions/face-icon-small-wink.gif" border="0"> <br /> <br />So glad you are home and hopefully enjoying a relaxing long weekend.

I'm so sorry; this is a tough time and believe me we all know just how you feel. Our daughter was diagnosed at age 3 - same thing, tested based on GI symptoms only to "rule out CF" and the ped didn't actually believe it when the sweat test came back positive. She still does not have...

I'm so sorry; this is a tough time and believe me we all know just how you feel. Our daughter was diagnosed at age 3 - same thing, tested based on GI symptoms only to "rule out CF" and the ped didn't actually believe it when the sweat test came back positive. She still does not have...

I'm so sorry; this is a tough time and believe me we all know just how you feel. Our daughter was diagnosed at age 3 - same thing, tested based on GI symptoms only to "rule out CF" and the ped didn't actually believe it when the sweat test came back positive. She still does not have...

I'm so sorry; this is a tough time and believe me we all know just how you feel. Our daughter was diagnosed at age 3 - same thing, tested based on GI symptoms only to "rule out CF" and the ped didn't actually believe it when the sweat test came back positive. She still does not have...

I'm so sorry; this is a tough time and believe me we all know just how you feel. <br /> <br />Our daughter was diagnosed at age 3 - same thing, tested based on GI symptoms only to "rule out CF" and the ped didn't actually believe it when the sweat test came back positive. She still does not...

I thought this forum would be a great place to share info about our own personal experience with a clinical trial and encourage others to look into any and all of them. But my post was deleted and I was chastised by the moderators for "recruiting".

I thought this forum would be a great place to share info about our own personal experience with a clinical trial and encourage others to look into any and all of them. But my post was deleted and I was chastised by the moderators for "recruiting".

I thought this forum would be a great place to share info about our own personal experience with a clinical trial and encourage others to look into any and all of them. But my post was deleted and I was chastised by the moderators for "recruiting".

I thought this forum would be a great place to share info about our own personal experience with a clinical trial and encourage others to look into any and all of them. But my post was deleted and I was chastised by the moderators for "recruiting".

I thought this forum would be a great place to share info about our own personal experience with a clinical trial and encourage others to look into any and all of them. But my post was deleted and I was chastised by the moderators for "recruiting".

Been thinking about you guys all weekend. Sorry to see this latest update. Sending Alyssa lots of hugs and you as well. Praying that by Monday morning things will have turned around.

Been thinking about you guys all weekend. Sorry to see this latest update. Sending Alyssa lots of hugs and you as well. Praying that by Monday morning things will have turned around.

Been thinking about you guys all weekend. Sorry to see this latest update. Sending Alyssa lots of hugs and you as well. Praying that by Monday morning things will have turned around.

Been thinking about you guys all weekend. Sorry to see this latest update. Sending Alyssa lots of hugs and you as well. Praying that by Monday morning things will have turned around.

Been thinking about you guys all weekend. Sorry to see this latest update. Sending Alyssa lots of hugs and you as well. Praying that by Monday morning things will have turned around.