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Bellithorp: If you would tell me the name of a large city near you, I would be happy to assist in finding an APPROVED CF CLINIC in your area. Bill

OK, I have Cystic Fibrosis. I will be 77 in January. I have been married 54 years. From ages 16 t0 20 I was a lifeguard on a Commonwealth of Massachusetts, Atlantic Ocean Beach. This was a civil service position and requires certification prior to each summer. I played College Varsity...

John: I will be 77 next month. Welcome to this Forum. I would suggest that you take COMPLETE FORM SOFTGEL, these are a replacement for the ADEK mentioned in other posts. You will need a Rx from your CF Doctor. Feel free to contact me anytime.

Kayla: I have the impression that you are dealing with DD ped and a pulmo that he/she is sending you to see. You need to be seen at an APPROVED CYSTIC FIBROSIS CLINIC by a CYSTIC FIBROSIS SPECIALIST. If you tell us the name of the nearest nearby city, we will find a CF Clinic for you. Bill

"I did the testing, so did my daughter". There are almost 2000 known mutations, any two will cause CF. Because of limitations created by insurance companies based up on the cost of CF tests, CF testing is done in many "degrees". The first test is usually only for the first 32 most common...

Call Dr. Uluer

Lexi: I am a 75 year old male with CF. Like your daughter I have Delta F508 and a milder mutation. I am also PI. You are extremely lucky that she has been dx so early. Her life will be full and healthy, with a few bumps along the way. I have been married for 53 years. I have two college...

What do the CF and ENT Doctor's say about this situation.

Love: You are correct (as usual), they only need to do a FOLL CF SEQUENCING on the child. Bill

I would contact Ambry, tell them your story and have them recheck for M470V.

Try www.callionpharma.com

I vest for an hour at a time WITH 7% Sodium Chloride nebs

I have a 23 day supply of Cayston with an exp date of 3/17.. If anyone wants it, PM me. Bill

My Father was a contractor. I am / was a carpenter and I still do jobs for myself and friends. A good dust mask should work for you. A Dual Cartridge respirator would be even better Bill

I have a 23 day supply of Cayston with a exp date of 3/17. If anyone wants it send me a PM. Bill

Princess: It is important to understand that a real Sweat Test is only given by a trained CF Nurse or Doctor in a CF Clinic. My first sweat test, in a local hospital, was called a screening sweat test. I suspect that the reason that you are vomiting mucus, is because you are swallowing it...

I have CF and I never had a POSITIVE SWEAT TEST. Listen to AttyMom. Only a FULL CF SEQUENCING will test for the almost 2000 known mutations.

scanboyd I'm really glad to hear that you are doing so well. Bill

FYI There are almost 2000 known mutations, any two will cause CF. Early "genetic profiling" are for between 32 and 250 mutations. To rule out CF, even with a normal sweat test, you would need to have a FULL CF SEQUENCING. If this has been done, great, otherwise it should be food for...

I would be curious as to why you are so sure that you don't have CF. I was dx at age 47 and a woman, from VA was dx at age 76. Bill